What do parents want?: An analysis of education-related comments made by parents of children with different genetic syndromes

Journal of Intellectual and Developmental Disability

Volumn 28, Issue 2, 2003, Pages 196-204

  Fidler, Deborah J ^a   Lawson, John E ^a   Hodapp, Robert M ^b  

^a Veterinary Dentistry and Oral Surgery   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTATION; ADULT; ARTICLE; CURRICULUM; DOWN SYNDROME; EDUCATION PROGRAM; FEMALE; GENETIC DISORDER; HUMAN; MALE; MUSIC; NORMAL HUMAN; PARENT; PHYSICAL EDUCATION; PRADER WILLI SYNDROME; READING; SPEECH THERAPY; WILLIAMS BEUREN SYNDROME;

EID: 0042367754     PISSN: 13668250     EISSN: None     Source Type: Journal    
DOI: 10.1080/1366825031000147120     Document Type: Article

References (26)

1. Bellugi, U., Lichtenberger, L., Jones, W., Lai, Z., & St. George, M. (2000). The neurocognitive profile of Williams syndrome: a complex pattern of strengths and weaknesses. Journal of Cognitive Neuroscience, 12(supplement), 7-29.
2. Buckley, S. (1995). Teaching children with Down syndrome to read and write. In L. Nadel & D. Rosenthal (Eds.), Down syndrome: living and learning in the community (pp. 158-169). New York: Wiley-Liss.
3. Cicchetti, D. (1984). The emergence of developmental psychopathology. Child Development, 55, 1-7.
4. Coffey, A., & Atkinson, P. (1996). Making sense of qualitative data: complementary research strategies. Thousand Oaks, CA: Sage.
5. Dykens, E. M. (1995). Measuring behavioral phenotypes: provocations from the "new genetics". American Journal on Mental Retardation, 99, 522-532.
6. Dykens, E. M. (2003). Anxiety, fears, and phobias in Williams syndrome. Developmental Neuropsychology, 23, 291-316.
7. Dykens, E. M., & Cassidy, S. B. (1996). Prader-Willi syndrome: genetic, behavioral, and treatment issues. Child and Adolescent Psychiatric Clinics of North America, 5, 913-927.
8. Dykens, E. M., Goff, B. J., Hodapp, R. M., & Davis, L. (1997). Eating themselves to death: have "personal rights" gone too far in treating people with Prader-Willi syndrome? Mental Retardation, 4, 312-314.
9. Dykens, E. M., & Hodapp, R. M. (1997). Treatment issues in genetic mental retardation syndromes. Professional Psychology: Research and Practice, 28, 263-270.
10. Dykens, E. M., Leckman, J. F., & Cassidy, S. B. (1996). Obsessions and compulsions in Prader-Willi syndrome. Journal of Child Psychology and Psychiatry, 37, 995-1002.
11. Dykens, E. M., & Rosner, B. A. (1999). Refining behavioral phenotypes: personality-motivation in Williams and Prader-Willi syndromes. American Journal on Mental Retardation, 104(2), 158-169.
12. Fidler, D. J., Hodapp, R. M., & Dykens, E. M. (2002). Educational experiences of children with Down syndrome, Prader-Willi syndrome, and Williams syndrome. Journal of Special Education, 36, 80-88.
13. Forness, S., & Kavale, K. (1994). The Balkanization of special education: proliferation of categories for "new" behavioral disorders. Education and Treatment of Children, 17, 215-227.
14. Fowler, A. (1990). Language abilities in children with Down syndrome: evidence for a specific syntactic delay. In D. Cicchetti & M. Beeghly (Eds.), Children with Down syndrome: a developmental perspective (pp. 302-328). Cambridge: Cambridge University Press.
15. Hodapp, R. M., & Dykens, E. M. (1994). Mental retardation's two cultures of behavioral research. American Journal on Mental Retardation, 98, 675-687.
16. Hodapp, R. M., & Dykens, E. M. (2001). Strengthening behavioral research on genetic mental retardation syndromes. American Journal on Mental Retardation, 106, 4-15.
17. Hodapp, R. M., & Fidler, D. J. (1999). Special education and genetics: connections for the 21st century. Journal of Special Education, 33, 130-137.
18. Hodapp, R. M., Leckman, J. F., Dykens, E. M., Sparrow, S. S., Zelinsky, D., & Ort, S. I. (1992). K-ABC profiles in children with fragile X syndrome, Down syndrome, and non-specific mental retardation. American Journal on Mental Retardation, 97, 39-46,
19. Jones, W., Bellugi, U., Lai, Z., Chiles, M., Reilly, J., Lincoln, A., & Adolphs, R. (2000). Hypersociability in Williams syndrome. Journal of Cognitive Neuroscience, 12(supplement), 30-46.
20. Kumin, L. (1994). Intelligibility of speech in children with Down syndrome in natural settings: parents' perspective. Perceptual and Motor Skills, 78, 307-313.
21. Lenhoff, H. M. (1998). Insights into the musical potential of cognitively impaired people diagnosed with Williams syndrome. Music Therapy, 16, 33-36.
22. Mervis, C. B., Morris, C. A., Bertrand, J. M., & Robinson, B. F. (1999). Williams syndrome: findings from an integrated program of research. In H. Tager-Flusberg (Ed.), Neurodevelopmental disorders: contributions to a framework from the cognitive sciences (pp. 65-110). Cambridge: MIT Press.
23. Miller, J. (1999). Profiles of language development in children with Down syndrome. In J. F. Miller, M. Leddy, & L. A. Leavitt (Eds.), Improving the communication of people with Down syndrome (pp. 11-39). Baltimore, MD: Paul H. Brookes.
24. Miller, J. F., & Leddy, M. (1999). Verbal fluency, speech intelligibility, and communicative effectiveness. In J. F. Miller, M. Leddy, & L. A. Leavitt (Eds.), Improving the communication of people with Down syndrome (pp. 81-91). Baltimore, MD: Paul H. Brookes.
25. Pober, B. R., & Dykens, E. M. (1996). Williams syndrome: an overview of medical, cognitive, and behavioral features. Child and Adolescent Psychiatric Clinics of North America, 5, 929-943.
26. Pueschel, S. R., Gallagher, P. L., Zartler, A. S., & Pezzullo, J. C. (1987). Cognitive and learning profiles in children with Down syndrome. Research in Developmental Disabilities, 8, 21-37.