Ethical issues in qualitative health research with homeless youths

Journal of Advanced Nursing

Volumn 43, Issue 1, 2003, Pages 43-50

  Ensign, Josephine ^a  

^a UNIVERSITY OF WASHINGTON   (United States)

Author keywords

Adolescents; Ethics; Homeless youths; Nursing; Qualitative research

Indexed keywords

ETHICS; EXPERIENCE; HOMELESSNESS; HUMAN; INFORMED CONSENT; MEDICAL RESEARCH; NURSING; PRIVACY; QUALITATIVE ANALYSIS; REVIEW; RISK; SEXUAL DEVIATION; ADOLESCENT; ARTICLE; BIOMEDICAL AND BEHAVIORAL RESEARCH; CONFIDENTIALITY; HEALTH SERVICES RESEARCH; STANDARD;

BIOMEDICAL AND BEHAVIORAL RESEARCH;

ADOLESCENT; CONFIDENTIALITY; HEALTH SERVICES RESEARCH; HOMELESS YOUTH; HUMANS; INFORMED CONSENT;

EID: 0041350317     PISSN: 03092402     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2648.2003.02671.x     Document Type: Review

References (43)

1. Alty A. & Rodham K. (1998) The ouch! Factor: problems in conducting sensitive research. Qualitative Health Research 8, 275-282.
2. Barry P., Ensign J. & Lipke S. (2002) Embracing steet culture: fitting health care into the lives of street youth. Journal of Transcultural Nursing 13, 145-152.
3. Benatar S. (2002) Reflections and recommendations on research ethics in developing countries. Social Science and Medicine 54, 1131-1141.
4. Bhutta Z. (2002) Ethics in international health research: a perspective from the developing world. Bulletin of the World Health Organization 80, 114-120.
5. Boman J. & Jevene R. (2000) Ethical evaluation in qualitative research. Qualitative Health Research 10, 547-554.
6. Brandt A. (1978) Racism and research: the case of the Tuskegee Syphilis Study. Hastings Center Report 8, 21-29.
7. CIOMS (1991) International Guidelines for Ethical Review of Epidemiological Studies. CIOMS/WHO, Geneva.
8. Christakis N. (1992) Ethics are local: engaging cross-cultural variation in the ethics for clinical research. Social Science and Medicine 35, 1079-1091.
9. Commission N.B.A. (August 2001) Ethical and Policy Issues in Research Involving Human Participants. National Bioethics Advisory Commission. Available: http://bioethics.georgetown.edu/ nbac/human/oversumm.html [2002, January 10].
10. Council T.B. (2002) Children's Rights: A National and International Perspective. The British Council. Available: http//www. britcoun.org/governance/ jusrig/human/childrig/cr02a.htm [2003, January 19].
11. Craig T.K.J. & Hodson S. (1998) Homeless youth in London: childhood antecedents and psychiatric disorder. Psychological Medicine 28, 1379-1388.
12. Cutcliffe J. & Ramcharan P. (2002) Leveling the playing field? Exploring the merits of ethics-as-process approaches for judging qualitative research proposals. Qualitative Health Research 12, 1000-1010.
13. English A. (1995) Guidelines for adolescent health research: legal perspectives. Journal of Adolescent Health 17, 277-286.
14. Ensign J. (2000) Reproductive health of homeless adolescent women in Seattle, Washington, USA. Women and Health 31, 133-151.
15. Ensign J. & Gittelsohn J. (1998) Health and access to care: perspectives of homeless youth in Baltimore City, USA. Social Science and Medicine 47, 2087-2099.
16. Ensign J. & Panke A. (2000) Bridges and barriers to care: voices of homeless female adolescent youth in Seattle, Washington, USA. Journal of Advanced Nursing 37, 166-172.
17. Fisher C. & Wallace S. (2000) Through the community looking glass: reevaluating the ethical and policy implications of research on adolescent risk and psychopathology. Ethics and Behavior 10, 99-118.
18. Fisher C., Hoagwood K. & Jensen P. (1996) Casebook on ethical issues in research with children and adolescents with mental disorders. In Ethical Issues in Mental Health Research with Children and Adolescents (Hoagwood K., Jensen P. & Fisher C. eds), Lawrence Erlbaum Associates, Mahwah, NJ, pp. 135-266.
19. Foulks E. (1989) Misalliances in the Barrow Alcohol Study. American Indian and Native Alaska Mental Health Research 2, 7-17.
20. Greene J.M. (1995) Youth with Runaway, Throwaway and Homeless Experiences: Prevalence, Drug use, and Other At-risk Behaviors. National Clearinghouse on Families and Youth, Washington, DC.
21. Hoagwood K., Jensen P. & Fischer C. (1996) Toward a science of scientific ethics in research on child and adolescent mental disorders. In Ethical Issues in Mental Health Research with Children and Adolescents (Hoagwood K., Jensen P. & Fischer C. eds), Lawrence Erlbaum Associates, Mahwah, NJ, pp. 3-14.
22. Humphreys L. (1970) Tearoom Trade: Impersonal Sex in Public Places. Aldine Publishing Company, Chicago, IL.
23. Hurley R.E. (1999) Qualitative research and the profound grasp of the obvious. Health Services Research 34, 1119-1136.
24. Hutz C. & Koller S. (1999) Methodological and ethical issues in research with street children. New Directions for Child and Adolescent Development 85, 59-70.
25. Leadbeater B. (April 2002) Ethics in youth health research. Youth and Society Newsletter 4, 3-4.
26. Levine R. (1986) Ethics and Regulation of Clinical Research, 2nd edn. Yale University Press, New Haven.
27. Levine R.J. (1995) Adolescents as research subjects without permission of their parents or guardians: ethical considerations. Journal of Adolescent Health 17, 287-297.
28. Morse J.M. (2000) Researching illness and injury: methodological considerations. Qualitative Health Research 10, 538-546.
29. Moyle W. (2002) Unstructured interviews: challenges when participants have a major depressive illness. Journal of Advanced Nursing 39, 266-273.
30. NHMRC (2002) Research Involving Children and Young People. NHMRC. Available: http://www.haelth.gov.au/nhmrc/hrecbook/ 03_law/01.htm [2003, January 19].
31. Orb A., Eisenhauer L. & Wynaden D. (2001) Ethics in qualitative research. Journal of Nursing Scholarship 33, 93-96.
32. Panel I.A. (2003) Social Sciences and Humanities Research Ethics. NSERC. Available: http://www.nserc.ca/programs/ethics/english/ nomination_e.htm [2003, January 19].
33. Patton M.Q. (1999) Enhancing the quality and credibility of qualitative analysis. Health Services Research 34, 1189-1208.
34. Petersen A.C. & Leffert N. (1995) Developmental issues influencing guidelines for adolescent health research: a review. Journal of Adolescent Health 17, 298-305.
35. Punch M. (1994) Politics and ethics in qualitative research. In Handbook of Qualitative Research (Denzin N. & Lincoln Y. eds), Sage Publications, Thousand Oaks, CA, pp. 83-97.
36. Rew L., Taylor-Seehafer M. & Thomas N. (2000) Without parental consent: conducting research with homeless adolescents. Journal of the Society of Pediatric Nurses 5, 131-138.
37. Santelli J.S., Rosenfeld W.D., DuRant R.H., Dubler N., Morreale M., English A. & Rogers A.S. (1995) Guidelines for adolescent health research: a position paper of the Society for Adolescent Medicine. Journal of Adolescent Health 17, 270-276.
38. Scott-Jones D. (1994) Ethical issues in reporting and referring in research with low-income minority children. Ethics and Behavior 4, 97-108.
39. Seal D.W., Bloom F.R. & Somlai A.M. (2000) Dilemmas in conducting qualitative sex research in applied field settings. Health Education and Behavior 27, 10-23.
40. Soafer S. (1999) Qualitative methods: what are they and why use them? Health Services Research 34, 1101-1118.
41. Sugarman J., Mastroianni A. & Kahn J. (eds) (1998) Ethics of Research with Human Subjects: Selected Policies and Resources. University Publishing Group, Frederick, MD.
42. Williamson G.R. & Prosser S. (2002) Action research: politics, ethics, and participation. Journal of Advanced Nursing 40, 587-593.
43. Wolf A. (1989) The Barrow studies: an Alaskan's perspective. American Indian and Alaska Native Mental Health Research 2, 35-40.