Formal and informal care for people with dementia: Variations in costs over time

Ageing and Society

Volumn 23, Issue 3, 2003, Pages 303-326

  Schneider, Justine ^a   Hallam, Angela ^b   Islam, M Kamrul ^c   Murray, Joanna ^b   Foley, Beth ^b   Atkins, Louise ^b   Banerjee, Sube ^b   Mann, Anthony ^b  

^a DURHAM UNIVERSITY   (United Kingdom)

^b KING'S COLLEGE LONDON   (United Kingdom)

^c JAHANGIRNAGAR UNIVERSITY   (Bangladesh)

Author keywords

Carers; Community care; Costs; Dementia; Informal care; Substitution; Supplementation

Indexed keywords

COMMUNITY CARE; ELDERLY CARE; HEALTH CARE; WELFARE PROVISION;

EID: 0038684595     PISSN: 0144686X     EISSN: None     Source Type: Journal    
DOI: 10.1017/S0144686X02001149     Document Type: Article

References (34)

1. Bamford, C., Gregson, B., Farrow, G., Buck, D., Dowswell, T., McNamee, P. and Bond, J. 1998. Mental and physical frailty in older people: the costs and benefits of informal care, Resource Implications Study of Medical Research Council Cognitive Functioning and Ageing Study. Ageing and Society, 18, 317-54.
2. Bass, D. M., Noelker, L. S. and Rechlin, L. R. 1996. The moderating influence of service use on negative caregiving consequences. Journals of Gerontology Series B - Psychological Sciences and Social Sciences, 51, S121-31.
3. Beecham, J. and Knapp, M. R. J. 1992. Costing psychiatric interventions. In Thornicroft, G. J., Brewin, C. R. and Wing, J. K. (eds), Measuring Mental Health Needs. Gaskell, London, 179-90.
4. British Medical Association and Royal Pharmaceutical Society of Great Britain 1998. British National Formulary, Number 35 (March 1998). British Medical Association and Royal Pharmaceutical Society of Great Britain, London.
5. Chisholm, D. 2000. 'Mind how you go': issues in the analysis of cost-effectiveness in mental health care. PSSRU and CEMH Mental Health Research Review, 7, 33-8.
6. Chartered Institute of Public Financial Accountants 1999. Housing Revenue Account Statistics 1998. CIPFA Statistical Information Service, London.
7. Davis, K., Marin, D., Kane, R., Patrick, D., Peskind, E., Raskind, M. and Puder, K. 1997. The Caregiver Activity Survey (CAS): development and validation of a new measure for caregivers of persons with Alzheimer's disease. International Journal of Geriatric Psychiatry, 12, 978-88.
8. Department of Health 2000. The NHS Plan: The Government's Response to the Commission on Long-Term Care. Cm 4818-II. Her Majesty's Stationery Office, London.
9. Department of Environment Transport and Roads (DETR) 1998. Housing and Construction Statistics 1987-1997. DETR, London.
10. Drummond, M. F. and Jefferson, T. O. 1996. Guidelines for authors and peer reviewers of economic submissions to the BMJ. British Medical Journal, 313, 275-83.
11. Edelman, P. and Hughes, S. 1990. The impact of community care on provision of informal care to homebound elderly persons. Journal of Gerontology, 45, 874-84.
12. Government Statistical Service 1998. Housing and Construction Statistics, Great Britain, June Quarter 1998, Part 2. Stationery Office, London.
13. Gray, A., Marshall, M., Lockwood, A. and Morris, J. 1997. Problems in constructing economic evaluations alongside clinical trials. British Journal of Psychiatry, 170, 47-52.
14. Greene, V. 1983. Substitution between formally and informally provided care for the impaired elderly in the community. Medical Care, 21, 609-19.
15. Halifax Building Society 1998. Halifax House Price Index, Fourth Quarter, 1998. Halifax plc, Halifax, Yorkshire.
16. Hughes, C. P., Berg, L., Danziger, W. L., Cohen, L. A. and Martin, R. L. 1982. A new clinical scale for the staging of dementia. British Journal of Psychiatry, 140, 566-72.
17. Islam, M. K. 1999. Costing informal care: methods and practice: the case of the south London costs of dementia study. MSc dissertation, Department of Economics and Related Studies, University of York, York.
18. Katz, S., Ford, A. B., Moskowitz, R. W., Jackson, B. A. and Jaffe, M. W. 1963. Studies of illness in the aged. The index of ADL: a standardised measure of biological and psychosocial function. Journal of the American Medical Association, 185, 914-19.
19. Knapp, M. and Beecham, J. 1995. Reduced-list costings: examination of an informed short cut in mental health research. Health Economics, 2, 313-22.
20. Levin, E., Moriarty, J. and Gorbach, P. 1994. Better for the Break. Her Majesty's Stationery Office, London.
21. Lyons, K. and Zarit, S. 1999. Formal and informal support: the great divide. International Journal of Geriatric, Psychiatry, 14, 183-96.
22. Marin, D., Dugue, M., Schmeidler, J., Santoro, J., Neugroschl, J., Zaklad, G., Brickman, A., Schnur, E., Hoblyn, J. and Davis, K. 2000. The Caregiver Activity Survey (CAS): Longitudinal validation of an instrument that measures time spent care-giving for individuals with Alzheimer's disease. International Journal of Geriatric Psychiatry, 15, 680-6.
23. McDaid, D. 2001, Estimating the costs of informal care for people with Alzheimer's disease: methodological and practical challenges. International Journal of Geriatric Psychiatry, 16, 400-5.
24. McNamee, P., Gregson, B., Buck, D., Bamford, C., Bond, J., Wright, K. 1999. Costs of formal care for frail older people in England: the resource implications study of the MRC cognitive function and ageing study. Social Science and Medicine, 48, 331-41.
25. McNamee, P., Bond, J. and Buck, D. 2001. Costs of dementia in England and Wales in the 21st century. British Journal of Psychiatry, 179, 261-6.
26. Mittelman, M. S., Steinberg, G., Shulman, E., Mackell, J., Ambinder, A. and Cohen, J. 1993. An intervention that delays institutionalisation of Alzheimer's disease patients - treatment of spouse-care-givers. Gerontologist, 33, 730-40.
27. Netten, A., Dennett, J. and Knight, J. 1998. Unit Costs of Health and Social Care 1998. PSSRU, University of Kent at Canterbury, Canterbury, Kent.
28. O'Rouke, N. and Tuokko, H. 2000. The psychological and physical costs of care giving: the Canadian study of health and aging. Journal of Applied Gerontology, 19, 389-404.
29. Office of National Statistics 1999a. New Earnings Survey 1998. Office of National Statistics, Newport, Wales.
30. Office of National Statistics 1999b. Family Spending 1997-98. Office of National Statistics, London.
31. Reisberg, B., Ferris, S. H., de Lean, M. J. and Crook, T. 1982. The Global Deterioration Scale (GDS) for assessment of primary degenerative dementia. American Journal of Psychiatry, 139, 1136-9.
32. Royal Commission on Long Term Care 1999. With Respect to Old Age: Executive Summary. Department of Health, London.
33. Schneider, J., Hallam, A., Murray, J., Foley, B., Atkins, L., Banerjee, S., Islam, K. and Mann, A. 2002. Formal and informal care for people with dementia: factors associated with service receipt. Aging and Mental Health, 6, 255-65.
34. Thompson, C. and Spilsbury, K. 1998. Support for carers of people with Alzheimer's type dementia (Cochrane Review). In The Cochrane Library, Issue I, 2002. Update Software, Oxford.