Adherence to physiotherapy and quality of life for adults and adolescents with cystic fibrosis

Physiotherapy

Volumn 89, Issue 7, 2003, Pages 397-407

  Ireland, Christine ^a  

^a NONE

Author keywords

Adherence; Evidence based practice; Health beliefs; Patient education; Professionalisation; Quality of life

Indexed keywords

ADOLESCENT; ADULT; CLINICAL RESEARCH; CYSTIC FIBROSIS; DISEASE COURSE; EVIDENCE BASED MEDICINE; EXERCISE TOLERANCE; HEALTH CARE NEED; HEALTH CARE PERSONNEL; HEALTH CARE PLANNING; HEALTH STATUS; HUMAN; LONGITUDINAL STUDY; LUNG INJURY; PATIENT COMPLIANCE; PATIENT EDUCATION; PHYSIOTHERAPY; PRIORITY JOURNAL; QUALITY OF LIFE; REVIEW; TREATMENT OUTCOME; TREATMENT PLANNING;

EID: 0038446997     PISSN: 00319406     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0031-9406(05)60073-9     Document Type: Review

References (70)

1. Abbott, J, Dodd, M and Bilton, D (1994). 'Treatment compliance in adults with cystic fibrosis', Thorax, 49, 115-120.
2. Abbott, J, Dodd, M and Webb, A K (1995). 'Different perceptions of disease severity and self care between patients with cystic fibrosis, their close companions, and physicians', Thorax, 50, 794-796.
3. Abbott, J, Dodd, M and Webb, A K (1996). 'Health perceptions and treatment adherence in adults with cystic fibrosis', Thorax, 51, 1233-38.
4. Abbott, J, Webb, K and Dodd, M (1997). 'Quality of life in cystic fibrosis', Journal of the Royal Society of Medicine, 90 (suppl 31) 37-42.
5. Andersen, D H (1938). 'Cystic fibrosis of the pancreas and its relation to coeliac disease: Clinical and pathological study', American Journal of Diseases of Childhood, 56, 344.
6. Association of Chartered Physiotherapists in Cystic Fibrosis (2002). Clinical Guidelines for the Physiotherapy Management of Cystic Fibrosis, ACPCF, London.
7. Barbero, G (1996). 'The science and humanity of cystic fibrosis', Current Problems in Paediatrics, Nov\Dec, 345-354.
8. Bergner, M, Bobbitt, R A, Carter, W B, Kressel, S et al (1981). 'The Sickness Impact Profile: Development and final revision of a health status measure', Medical Care, 18, 787-805.
9. Betts, P R (1998). 'Diabetes and glucose intolerance' in: Hill, C M (ed) Practical Guidelines for Cystic Fibrosis Care, Churchill Livingstone, London, pages 91-94.
10. Bithell, C (2000). 'Evidence-based physiotherapy', Physiotherapy, 86, 2, 58-60.
11. Brazier, J E, Harper, R, Jones, N M B et al (1992). 'Validating the SF-36 Health Survey Questionnaire: New outcome measure for primary care', British Medical Journal, 305, 160-164.
12. Brookfield, S D (1986). Understanding and Facilitating Adult Learning, Open University, Milton Keynes.
13. Busch, R (1986). 'Historical aspects of cystic fibrosis', Wissenshaftlike Zeitschrift der Willempieck, Universitat Rostock.
14. Carr, L, Pryor, J A, Smith, R E and Partridge, C (1996). 'Cystic fibrosis patients' views and beliefs about chest clearance and exercise: A pilot study', Physiotherapy, 82, 11, 621-626.
15. Chalmers, A F (1982). What is this Thing Called Science? Open University Press, Milton Keynes.
16. Chartered Society of Physiotherapy (1991). 'Standards for clinical educational placements', Standards of Physiotherapy Practice, Chartered Society of Physiotherapy, London.
17. Chartered Society of Physiotherapy (2000). Core Standards of Physiotherapy Practice, Chartered Society of Physiotherapy, London.
18. Churchill's Medical Dictionary (1989). Churchill Livingstone, New York.
19. Cochrane Institute (2000). 'Chest physiotherapy compared to no chest physiotherapy for cystic fibrosis', The Cochrane Library, issue 2, 1-25.
20. Congleton, T, Hodson, M and Duncan-Skingle, F (1996). 'Quality of life in adults with cystic fibrosis', Thorax, 51, 936-940.
21. Conway, S P, Pond, M N, Hamnett, T and Watson, A (1996). 'Compliance with treatment in adult patients with cystic fibrosis', Thorax, 51, 29-33.
22. Cross, V (1996). 'Introducing learning contracts into physiotherapy clinical education', Physiotherapy, 82, 1, 21-27.
23. Cystic Fibrosis Trust (1997). The Care of Children and Adults with Cystic Fibrosis within the National Health Service, CFT, Bromley, London.
24. Cystic Fibrosis Trust (2001). Standards for the Clinical Care of Children and Adults with Cystic Fibrosis in the UK, CFT, Bromley, London.
25. Czajkowski, D R and Koocher, G P (1987). 'Medical compliance and coping with cystic fibrosis'. Journal of Child Psychiatry, 28, 2, 311-319.
26. Davids, L M and Henley, L D (1990). 'Investigation into compliance with physiotherapy regimes in cystic fibrosis', Physiotherapy, 46, 1, 7-10.
27. Decclache, A (1995). 'Teaching, training or educating patients? Influence of contexts and models of education and care of practice in patient education', Patient Education and Counselling, 26, 119-129.
28. Dewey, J (1938). Experience and Education, Collier Macmillan, London.
29. Dodd, M E, and Webb, A K (2000). 'Understanding non-compliance with treatment in adults with cystic fibrosis', Journal of the Royal Society of Medicine, 38, 93, 2-8.
30. Dorlands Medical Dictionary (2000). WB Saunders, USA.
31. Elborn, J S, Shale, D J and Britton, J R (1991). 'Cystic fibrosis: Current survival and population estimates to the year', Thorax, 46, 881-885.
32. EuroQoL Group (1990). 'Euro-QoL - A new facility for the measurement of health related quality of life', Health Policy, 16, 199-208.
33. Ewles, L and Simnett, I (1995). Promoting Health Practice Guide, Scutari Press, London.
34. Fong, S L K, Dales, R E and Tierney, M G (1990). 'Compliance among adults with cystic fibrosis', Annals of Pharmocotherapy, July/August, 24, 689-691.
35. Gee, L, Abbott, J, Conway, S P et al (2000). 'Development of a disease specific health related quality of life measure for adults and adolescents with cystic fibrosis', Thorax, 55, 946-954.
36. Guyatt, G, Berman, L, Townsend, M et al (1987). 'A measure of quality of life for clinical trials in chronic lung disease', Thorax, 42, 773-778.
37. Henry, B, Aussage, P, Grosskot, C and Launois, R (1996). 'Constructing a disease specific quality of the questionnaire for children and adults with cystic fibrosis' (abstract) Journal of Medical Science, 32 (suppl) 181.
38. Hodson, M E, Panketh, A L and Batten, J C (1984). 'Aerosol carbenicillin and gentamycin treatment of pseudomonas aeruginosa infections in patients with cystic fibrosis', Lancet, 2, 1137-39.
39. Hunt, S and McKenna, S (1991). The Nottingham Health Profile User's Manual, Galen Research and Consultancy, Manchester, revised edn.
40. Huss, K, Travis, P and Huss, R W (1997). 'Adherence issues in clinical practice', Lippincott's Primary Care Practice, 1, 2, 199-206.
41. Jarvis, P (1995). Adult and Continuing Education Theory and Practice, Routledge, London, page 97.
42. Jarvis, P and Gibson, S (1985). The Teaching Practitioner in Nursing, Midwifery and Health Visiting, Chapman and Hall, London.
43. Jones, P, Quirk, F, Baveystock, C and Littlejohns, P (1992). 'A self-complete measure for chronic airflow limitation: The St George's respiratory questionnaire', American Review of Respiratory Disease, 145, 1321-27.
44. Juniper, E, Guyatt, G, Epstein, R (1992). 'Evaluation of impairment of health rated quality of life in asthma: Development for a questionnaire for the use in clinical trials', Thorax, 47, 76-83.
45. Kaplan, R M and Anderson, J P (1987). 'The Quality of Well-being Scale: Rationale for a single quality of life index' in: Walker, S R and Rosser, R (eds) Quality of Life. Assessment and application, MTP/Kluwer, Lancaster.
46. Knowles, M (1989). The Making of an Adult Educator, Jossey-Bass, San Francisco.
47. Knowles, M S (1980). The Modern Practice of Adult Education: From pedagogy to androgogy, Cambridge Books, New York, cited in Brookfield, S D (1986) op cit.
48. Koocher, G P (1982). 'The medical compliance incomplete stories test', unpublished manuscript.
49. Lask, B (1997). 'Understanding and managing poor adherence in cystic fibrosis', Paediatric Pulmonology (suppl 16) 260-261.
50. Matthews, L W and Drotar, D (1984). 'Cystic fibrosis: A challenging long-term chronic disease', Paediatric Clinics of North America, 31, 133-152,
51. Mead, J (2000). 'Patient partnership', Physiotherapy, 86, 282-284.
52. Moreau, D (2002). Patient Teaching Reference Manual, Springhouse Corporation, USA.
53. Mullen, P D (1997). 'Compliance becomes concordance', British Medical Journal, 314, 7082, 691-692.
54. National Health Service Executive (1999). Patient and Public Involvement in the New NHS, Department of Health, London.
55. Newham, D J (1997). 'Physiotherapy for best effect', Physiotherapy, 83, 1, 5-11.
56. Pryor, J A and Webber, B A (1998), Physiotherapy for Respiratory and Cardiac Problems, Churchill Livingstone, Edinburgh, 2nd edn.
57. Quittner, A L, Sweeney, S, Watrous, M et al (2000). 'Translation and linguistic validation of a disease specific quality of life measure for cystic fibrosis', Journal of Paediatric Psychology, 25, 6, 403-414.
58. Richardson, B (1999). 'Professional development', Physiotherapy, 85, 9, 461-467.
59. Robertson, VJ (1996). 'Epistemology, private knowledge, and the real problems in physiotherapy', Physiotherapy, 82, 9, 534-539.
60. Robinson, P (2001). 'Paediatric origins of adult lung disease: 7. Cystic fibrosis', Thorax, 56, 3, 237-241.
61. Royal College of Physicians of London (1996). Clinical Guidelines for Cystic Fibrosis Care, RCP, London.
62. Stabb, D, Wainger, K, Gebert, N et al (1998). 'Quality of life in patients with cystic fibrosis and their parents: What is important besides disease severity', Thorax, 53, 9, 27-31.
63. Super, M (1992). 'Milestones in cystic fibrosis', British Medical Bulletin, 48, 4, 717-737.
64. Tsui, C (1985). 'Cystic fibrosis locus defined by a genetically linked polymorphic marker', Science, 230, 1054-57.
65. United Nations (1948). Universal Declaration of Human Rights, UN.
66. Walters, S (2001). Adults with Cystic Fibrosis: A millenium survey 2000, Cystic Fibrosis Trust, Bromley, London.
67. Wane, J E and Sherbourne, C D (1992). 'The MOS 36-Item short-form health survey: 1. Conceptual framework and item selection', Medical Care, 30, 473-483.
68. Webber, B A and Pryor, J (1993). Physiotherapy for Respiratory and Cardiac Problems, Churchill Livingstone, Edinburgh.
69. World Health Organisation (1984). 'Health promotion: A WHO discussion document on the concepts and principles' reprinted in: Journal of the Institute of Health Education (1985) 23, 1.
70. World Health Organisation (1978). Declaration of Alma-Ata International Conference on Primary Healthcare, Alm-Ata, USSR, 6-12 September.