Patient participation in decision-making on the introduction of home respiratory care: Who does not participate?

Health Expectations

Volumn 6, Issue 2, 2003, Pages 118-127

  Hämäläinen, Päivi M ^a   Perälä, Marja Leena ^b   Poussa, Tuija ^c   Pelkonen, Marjaana ^a  

^a Sosiaali ja terveysministerio   (Finland)

^b NATIONAL PUBLIC HEALTH INSTITUTE   (Finland)

^c TAMPERE UNIVERSITY OF TECHNOLOGY   (Finland)

Author keywords

Decision making; Participation; Patient satisfaction; Respiratory care

Indexed keywords

ADULT; ARTICLE; DECISION MAKING; ETHICS; FEMALE; FINLAND; HEALTH CARE PERSONNEL; HOME CARE; HUMAN; LOGISTIC REGRESSION ANALYSIS; MAJOR CLINICAL STUDY; MALE; OUTPATIENT DEPARTMENT; PATIENT ATTITUDE; PATIENT SATISFACTION; PRIORITY JOURNAL; QUESTIONNAIRE; RESPIRATORY CARE;

AGED; DECISION MAKING; FEMALE; FINLAND; HEALTH CARE SURVEYS; HOME CARE SERVICES; HUMANS; MALE; MIDDLE AGED; PATIENT PARTICIPATION; QUESTIONNAIRES; RESPIRATORY THERAPY;

EID: 0038352224     PISSN: 13696513     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1369-6513.2003.00217.x     Document Type: Article

References (29)

1. Hämäläinen P. Home Respiratory Care; Implementation of Policy and Practice, Dissertation. Acta Universitatis Tamperensis 673, Tampere: University of Tampere, 1999.
2. Brownlea A. Participation: myths, realities and prognosis. Social Science and Medicine, 1987; 25: 605-614.
3. Cahill J. Patient participation: a concept analysis. Journal of Advanced Nursing, 1996; 24: 561-571.
4. Sätterlund Larsson U, Svärdsudd K, Wedel H, Säljö R. Patient involvement in decision-making in surgical, orthopaedic practice. Effects of outcome of operation and care process on patients' perception of their involvement in the decision-making process. Scandinavian Journal of Caring Sciences, 1992; 6: 87-96.
5. Clayton S. Patient participation: an undeveloped concept. Journal of the Royal Society of Health 1988; 2: 55-58.
6. Pesznecker BL, Zerwekh JV, Horn BJ. The mutual participation relationship: key to facilitating self-care in clients and families. Public Health Nursing, 1989; 6: 197-203.
7. Ashworth PD, Longmate MA, Morrison P. Patient participation: its meaning and significance in the context of caring. Journal of Advanced Nursing, 1992; 17: 1430-1439.
8. England SL, Evans J. Patients' choices and perceptions after an invitation to participate in treatment decisions. Social Science and Medicine, 1992; 34: 1217-1225.
9. Evans A. Patients experienced physiological and psychological difficulties on long term home oxygen treatment. Journal of Advanced Nursing, 1997, 2000; 26: 337-344.
10. Mansfield K. Evaluating a nebuliser service to improve patient care. Nursing Times, 1996; 92: 27-29.
11. O'Connor AM, Fiset V, Rostom A. et al. Decisions aids for people facing heath treatment or screening decisions. Cochrane Database of Systematic Reviews. The Cochrane Library, 2000; 1: updated 30 May 2001.
12. Suominen T. Rintaleikattujen naisten hoitokokemuksia. [Breast-operated women's experiences of their care]. Hoitotiede, 1990; 2: 146-151.
13. Waterworth S, Luker KA. Reluctant collaborators: do patients want to be involved in decisions concerning care. Journal of Advanced Nursing, 1990; 15: 971-976.
14. Biley FC. Some determinants that effect patient participation in decision making about nursing care. Journal of Advanced Nursing, 1992; 17: 414-421.
15. Kim HS, Holter IM, Lorensen M et al. Patient-nurse collaboration: a comparison of patients' and nurses' attitudes in Finland, Japan, Norway and the USA. International. Journal of Nursing Studies, 1993; 30: 387-401.
16. Avis M. Choice cuts. an exploratory study of patients' views about participation in decision-making in a day surgery unit. International Journal of Nursing Studies, 1994; 31: 189-198.
17. Partanen P. Kahvia vai teetä. Väestöon käsityksiä osallistumismahdollisuuksista terveydenhuollossa. [Coffee or tea. Perceptions of the Finnish Population of Their Opportunities to Participate in Their Care.] Kuopio: University of Kuopio, 1993.
18. Pelkonen M. Lapsiperheiden voimavarat ja niiden vahvistaminen hoitotyön keinoin. [Nursing Interventions Facilitating the Use of Parental Resources in Primary Health Care] Dissertation. Kuopio: University of Kuopio E. Social Sciences 18, 1994.
19. Pelkonen M, Perälä M-L, Vehviläinen-Julkunen K. Participation of expectant mothers in decision making in maternity care: results of a population-based survey. Journal of Advanced Nursing, 1998; 28: 21-29.
20. Kent MA. The ethical arguments concerning the artificial ventilation of patients with motor neurone disease. Nursing Ethics, 1996; 34: 317-328.
21. Bromberg MB, Forshew DA, Iaderosa S, McDonald ER. Ventilator dependency in ALS. management, disease progression, and issues of coping. Journal of Neurological Rehabilitation, 1996; 10: 195-215.
22. Benbassat J, Pilpel D, Tidhar M. Patients' preferences for participation in clinical decision making: a review of published surveys. Behavioral Medicine, 1998; 24: 81-88.
23. Guadagnoli E, Ward P. Patient participation in decision-making. Social Science and Medicine 1998; 47: 329-339.
24. Thompson SC, Pitts JS, Schwankovsky L. Preferences for involvement in medical decision-making: situational and demographic influences. Patient Education and Counseling, 1994; 22: 133-140.
25. Brody DS. Patient's role in clinical decision making. Annals of Internal Medicine, 1980; 93: 718-722.
26. Øvretveit J. Informed choice? Health service quality and outcome information for patients. Health Policy, 1996; 37: 75-90.
27. Jewell SE. Patient participation: what does it mean to nurses? Journal of Advanced Nursing, 1994; 19: 433-438.
28. Kasch CR. Establishing a collaborative nurse-patient relationship: a distinct focus of nursing action in primary care. Image: the Journal of Nursing Scholarship, 1986; 18: 44-47.
29. The Finnish Act. Act on the Status and Rights of Patients, 17. 1992; 8: 1992/785, 1992.