Quality of life in children and adolescents with epilepsy in Greece (pilot study)

Paediatria Croatica

Volumn 47, Issue 2, 2003, Pages 53-56

  Rizou, Ioanna ^a   Kotsalis, Charalampos ^b   Panou, Christina ^b   Demakakos, Panayotes ^b   Papavasiliou, Atigone ^a  

^a PENTELI CHILDREN S HOSPITAL   (Greece)

^b Pendeli Children's Hospital ^*

Author keywords

Epilepsy psychology; Greece; Quality of life; Questionnaires

Indexed keywords

ADOLESCENT; ARTICLE; ATTITUDE; CHILD; DEMOGRAPHY; EPILEPSY; FEMALE; GREECE; HUMAN; MAJOR CLINICAL STUDY; MALE; MEMORY; PILOT STUDY; QUALITY OF LIFE; RELIABILITY; SEIZURE; SOCIAL SUPPORT;

EID: 0038007904     PISSN: 13301403     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (23)

1. Cramer JA, Westbrook L, Devinsky O, Perrine K, Glassman M, Camfield C. Development of a quality of life inventory for adolescents: The QOLIE-AD-48. Epilepsia 1999;40(8):1114-21.
2. Birberck GL, Kim S, Hays RD, Vickrey BG. Quality of life measures in epilepsy. How well can they detect change over time. Neurology 2000;54:1822-7.
3. Baker GA, Jacoby A, Smith DF, Dewey ME, Chadwick DW. Development of a novel scale to assess life fulfillment as part of the refinement of a quality of life model of epilepsy. Epilepsia 1994;35:591-6.
4. Perucca E. Evaluation of drug treatment outcome in epilepsy: a clinical perspective. Pharm World Sci 1997;19:217-22.
5. Hirsh JD, Van Den Eeden SK. Epilepsy. Searching for outcomes data beyond seizure frequency in a managed care organization. J Outcomes Manage 1997;4:9-17.
6. Dordrill CB, Batzel LW, Queisser HR, Temkin NR. An objective method for the assessment of psychological and social problems among epileptics. Epilepsia 1980;21:123-35.
7. Vickrey BG, Hays RD, Graber J, Raush R, Enge J Jr, Brook RH. A health-related quality of life instrument for patients evaluated for epilepsy surgery. Med Care 1990;264:729-35.
8. Devinsky O, Westbrook L, Cramer J, Glassman M, Perrine K, Camfield C. Risk factors for poor health-related quality of life in adolescents with epilepsy. Epilepsia 1999;40(12):1715-20,
9. Ziegler RG, Erba G, Holden L, Dennison H. The coordinated psychosocial and neurologic care of children with seizures and their families. Epilepsia 2000;41(6):732-43.
10. Ziegler R. Epilepsy: individual illness, human predicament and family dilemma. Family Relations 1982;31:435-44.
11. Ronen GM, Rosenbaum P, Law M, Streiner D. Health-related quality of life in childhood disorders: a modified focus group technique to involve children. Quality of Life Research 2001;10:71-9.
12. Jacoby A, Johnson AL, Chadwick DW. Psycho-social outcomes of antiepileptic drug discontinuation. Epilepsia 1992;33:1123-31.
13. Vickrey BG, Hays RD, Graber J, Raush R, Engel J, Brook RH. A health-related quality of life instrument for patients evaluated for epilepsy surgery. Med Care 1992;30:299-319.
14. Smith DF, Baker GA, Davis G. Outcome of add-on treatment lamotrigine in partial epilepsy. Epilepsia 1993;34:312-22.
15. Gerharz EW, Eiser C, Woodhouse CRJ. Current approaches to assessing the quality of life in children and adolescents. BJU International 2003;91:150-4.
16. Eiser C, Morse R. The measurement of quality of life in children: past and future perspectives. Dev Behav Ped 2001;22:248-56.
17. Disth TH, Emblem R, Schultz A. Mental health, psychosocial functioning, and quality of life in patients with bladder exstrophy and epispadias-an overview. Worl J Urol 1999;17:239-48.
18. Dennison H. The coordinated psychosocial and neurologic care of children with seizures and their families. Epilepsia 2000;41(6):732-43.
19. Camfield C, Breau L, Camfield P. Impact of pediatric epilepsy on the family: a new scale for clinical and research use. Epilepsia 2001;42(1):104-12.
20. Mitchell W. Social outcome of childhood epilepsy. Associations and mechanisms. Semin Pediatr Neurol 1994;1:136-42.
21. Boice MM. Chronic illness in adolescence. Adolescence 1998.
22. Thompson RJ Jr, Merritt KA, Keith BR, Murphy LB, Johndrow DA. The role of maternal stress and family. Functioning in maternal distress and mother-reported and child-reported psychological adjustment of non-referred children. Journal of Clinical Child Psychology 1993;22:78-84.
23. Millstein SG, Adler NE, Irwin CE. Conceptions of illness in young adolescents. Pediatrics 1981;68:834-83.