Challenges in the care of adult patients with congenital heart defects

Heart

Volumn 89, Issue 4, 2003, Pages 465-469

  Webb, Gary D ^a  

^a TORONTO GENERAL HOSPITAL   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

AORTA COARCTATION; AORTA STENOSIS; COMPUTER ASSISTED TOMOGRAPHY; CONGENITAL HEART MALFORMATION; CYANOSIS; DISEASE ASSOCIATION; EBSTEIN ANOMALY; ECHOCARDIOGRAPHY; EISENMENGER COMPLEX; FALLOT TETRALOGY; GREAT VESSELS TRANSPOSITION; HEART ATRIUM SEPTUM DEFECT; HEART VENTRICLE SEPTUM DEFECT; HUMAN; NUCLEAR MAGNETIC RESONANCE IMAGING; PATENT DUCTUS ARTERIOSUS; PATIENT CARE; PREGNANCY COMPLICATION; PRIORITY JOURNAL; REVIEW; SURGICAL TECHNIQUE; TREATMENT PLANNING;

EID: 0037382440     PISSN: 13556037     EISSN: None     Source Type: Journal    
DOI: 10.1136/heart.89.4.465     Document Type: Review

References (19)

1. Therrien J, Dore A, Gersony W, et al. Canadian Cardiovascular Society consensus conference 2001 update: recommendations for the management of adults with congenital heart disease. Can J Cardiol 2001;17:940-59, 1029-50, 1135-58. This set of guidelines for major adult CHD lesions is the only publication of its kind. Its membership was international, and key US and European heart groups have adopted the recommendations.
2. Murphy JG, Gersh BJ, McGoon MD, et al. Long-term outcome after surgical repair of isolated atrial septal defect. Follow-up at 27 to 32 years. N Engl J Med 1990;323:1645-50. This small study produced the best long term outcome information regarding a surgical cohort of patients at different ages who have ASDs.
3. Anzai T, Iijima T, Yoshida I, et al. The natural history and timing of the radical operation for subpulmonic ventricular septal defects. Jpn J Surg 1991;21:487-93.
4. Neumayer U, Stone S, Somerville J. Small ventricular septal defects in adults. Eur Heart J 1998;19:1573-82. This paper reminds medical practitioners to be alert to the possibility that a "small VSD" may become a complicated VSD.
5. Serfontein SJ, Kron IL. Complications of coarctation repair. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu 2002;5:206-11. Coarctation repair is often thought of as "curative". This manuscript reminds the reader why that assumption is incorrect, and that the identification of known complications may lead to the saving of a life, or to treatment that improves outcomes.
6. Kaemmerer H, Theissen P, Konig U, et al. Follow-up using magnetic resonance imaging in adult patients after surgery for aortic coarctation. Thorac Cardiovasc Surg 1993;41:107-11.
7. Rominger MB, Bachmann GF, Pabst W, et al. Right ventricular volumes and ejection fraction with fast cine MR imaging in breath-hold technique: applicability, normal values from 52 volunteers, and evaluation of 325 adult cardiac patients. J Magn Reson Imaging 1999;10:908-18. The whole issue of how best to evaluate the right ventricle is confronted in this paper. Although "old technology" was used, MRI is the best way to do this, much better as a rule than does echocardiography.
8. Gatzoulis MA, Balaji S, Webber SA, et al. Risk factors for arrhythmia and sudden cardiac death late after repair of tetralogy of Fallot: a multicentre study. Lancet 2000;356:975-81. This multicentre study confirms the hypothesis that, in a repaired tetralogy patient, a QRS duration ≥ 180 ms is associated with the occurrence of sudden death and sustained ventricular tachycardia.
9. Deal BJ, Mavroudis C, Backer CL, et al. Impact of arrhythmia circuit cryoablation during Fontan conversion for refractory atrial tachycardia. Am J Cardiol 1999;83:563-8.
10. Collins K, Love B, Walsh E, et al. Location of acutely successful radiofrequency catheter ablation of intra-atrial reentrant tachycardia in patients with congenital heart disease. Am J Cardiol 2000;86:969-74. The development of invasive electrophysiologic treatment options for adult CHD patients is extremely important. Many forms of adult CHD may be complicated in adult life by atrial more than ventricular arrhythmias. In the post-CAST era, non-pharmacologic methods hold great promise, especially in this young patient population.
11. van Son JA, Schaff HV, Danielson GK, et al. Surgical treatment of discrete and tunnel subaortic stenosis. Late survival and risk of reoperation. Circulation 1993;88:II159-69.
12. Driscoll DJ, Offord KP, Feldt RH, et al. Five- to fifteen-year follow up after Fontan operation. Circulation 1992;85:469-96.
13. Presbitero P, Somerville J, Stone S, et al. Pregnancy in cyanotic congenital heart disease. Outcome of mother and fetus. Circulation 1994;89:2673-6.
14. Warnes CA, Liberthson R, Danielson GK, et al. Task force 1: the changing profile of congenital heart disease in adult life. J Am Coll Cardiol 2001;37:1170-5. The first part of the Bethesda conference report designed to develop an American model for the management of adult CHD patients. See references 17 and 18 as well.
15. Swan L, Hillis WS. Family planning requirements of adults with congenital heart disease. Heart 1997;78:9-11.
16. Siu SC, Sermer M, Colman JM, et al. Prospective multicenter study of pregnancy outcomes in women with heart disease. Circulation 2001;104:515-21. The only large prospective study of pregnancy outcomes in women with heart conditions. It confirms maternal risk prediction rules derived from a previous retrospective study, and clearly delineates which women need special surveillance and care during pregnancy.
17. Foster E, Graham TP Jr, Driscoll DJ, et al. Task force 2: special health care needs of adults with congenital heart disease. J Am Coll Cardiol 2001;37:1176-83.
18. Landzberg MJ, Murphy DJ Jr, Davidson WR Jr, et al. Task force 4: organization of delivery systems for adults with congenital heart disease. J Am Coll Cardiol 2001;37:1187-93.
19. British Cardiac Society Working Party. Grown-up congenital heart (GUCH) disease: current needs and provision of service for adolescents and adults with congenital heart disease in the UK. Heart 2002;88:i1-i14.