Living with an incomplete vagina and womb: An interpretative phenomenological analysis of the experience of vaginal agenesis

Psychology, Health and Medicine

Volumn 8, Issue 1, 2003, Pages 19-33

  Holt, Rachel E ^a   Slade, P ^b  

^a S   (United Kingdom)

^b UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGENESIS; ARTICLE; CLINICAL ARTICLE; COGNITIVE THERAPY; DOCTOR PATIENT RELATION; EMOTION; EMOTIONAL STRESS; EXPERIENCE; FEMALE; GENDER IDENTITY; HEALTH CARE PERSONNEL; HEALTH SERVICE; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; PERSONALITY; PHENOMENOLOGY; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; RECURRENT DISEASE; REPRODUCTION; SAMPLING; SELF CONCEPT; SOCIAL ASPECT; SOCIAL ISOLATION; TIME; UTERUS MALFORMATION; VAGINA DISEASE;

EID: 0037329986     PISSN: 13548506     EISSN: None     Source Type: Journal    
DOI: 10.1080/1354850021000059232     Document Type: Article

References (38)

1. AFFLECK, G. & TENNEN, H. (1991). Social comparison and coping with major medical problems. In: J. SULS & T. ASHBY-WILLIS (Eds), Social comparison: contemporary theory and research (pp. 369-393). New Jersey: Lawrence Erlbaum.
2. ALESSANDRESCU, D., PELTECU, G. C., BUHIMSCHI, C. S. & BUHIMSCHI, I. A. (1996). Neocolpopoiesis with split-thickness skin graft as a surgical treatment of vaginal agenesis: retrospective review of 201 cases. American Journal of Obstetrics and Gynecology, 175(1), 131-138.
3. BARUCH, G., BARNETT, R. & RIVERS, C. (1983). Lifeprints: new patterns of love and work for today's women. New York: New American Library.
4. BREWIN, C. R. (1990). Cognitive foundations of clinical psychology. London: Lawrence Erlbaum.
5. BURY, M. (1991). The sociology of chronic illness: a review of research and prospects. Sociology of Health and Illness, 13, 451-468.
6. CHARMAZ, K. (1983). Loss of self: a fundamental form of suffering in the chronically ill. Sociology of Health and Illness, 5(2), 169-195.
7. CONRAD, P. (1987). The experience of illness: recent and new directions. In: J. A. ROTH & P. CONRAD (Eds), Research in the sociology of health care, Volume 6 (pp. 1-31). London: JAI Press Inc.
8. CONRAD, P. (1990). Qualitative research on chronic illness: a commentary on method and conceptual development. Social Science and Medicine, 30, 1257-1263.
9. DAVID, A., CARMIL, D., BAR-DAVID, E. & SERR, D. M. (1975). Congenital absence of the vagina: clinical and psychologic aspects. Obstetrics and Gynecology, 46(4), 407-409.
10. FLIEGNER, J. R. (1987). Congenital atresia of the vagina. Surgery, Gynecology & Obstetrics, 165, 387-391.
11. FLIEGNER, J. R. (1996). Long term satisfaction with Sheares vaginoplasty for congenital absence of the vagina. Australian and New Zealand Journal of Obstetrics and Gynaecology, 36(2), 202-204.
12. FRANK, R. T. (1938). The formation of an artificial vagina. American Journal of Obstetrics and Gynecology, 35, 1053-1055.
13. GOFFMAN, E. (1963). Stigma - notes on management of spoiled identity, 2nd edition. London: Penguin.
14. GREENFIELD, S., KAPLAN, S. & WARE, J. E. (1985). Expanding patient involvement in care: effects on patient outcomes. Annals of Internal Medicine, 102, 520-528.
15. HECKER, B. R. & MCGUIRE, I. S. (1977). Psychosocial function in women treated for vaginal agenesis. American Journal of Obstetrics and Gynecology, 129(5), 543-547.
16. HOJSGAARD, A. & VILLADSEN, I. (1995). McIndoe Procedure for congenital vaginal agenesis: complications and results. British Journal of Plastic Surgery, 48(2), 97-102.
17. INGRAM, J. M. (1981). The bicycle seat stool in the treatment of vaginal agenesis and stenosis. American Journal of Obstetrics and Gynecology, 140, 867-873.
18. JACKSON, N. D. & ROSENBLATT, P. L. (1994). Use of interceed absorbable adhesion barrier for vaginoplasty. Obstetrics and Gynecology, 84(6), 1048-1050.
19. JANOFF-BULMAN, R. (1992). Shattered assumptions: towards a new psychology of trauma. New York: Free Press.
20. LANGER, M., GRUNBERGER, W. & RINGLER, M. (1990). Vaginal agenesis and congenital adrenal hyperplasia: psychosocial sequelae of diagnosis and neovagina formation. Acta Obstetrica Gynecologica Scandinavica, 69, 343-349.
21. LEY, P. (1988). Communicating with patients. London: Croom Helm.
22. MAGUIRE, P. (1985). Barriers to psychological care of the dying. British Medical Journal, 291, 1711-1713.
23. NICHOLS, K. A. (1993). Psychological care in physical illness. 2nd edition. London: Chapman Hall.
24. OSBORN, M. & SMITH, J. (1998). The personal experience of chronic benign lower back pain: an interpretative phenomenological analysis. British Journal of Health Psychology, 3, 65-83.
25. POLAND, M. L. & EVANS, T. N. (1985). Psychologic aspects of vaginal agenesis. Journal of Reproductive Medicine, 30(4), 340-344.
26. ROCK, J. A. & AZZIZ, R. (1987). Genital anomalies in childhood. Clinical Obstetrics and Gynecology, 30, 682-696.
27. SINGER, D. & HUNTER, M. (1999). The experience of premature menopause: a thematic discourse analysis. Journal of Reproductive and Infant Psychology, 17(1), 63-81.
28. SMITH, J. A. (1995). Semi structured interviewing and qualitative analysis. In: J. A. SMITH, R. HARRE & L. V. LANGENHOVE (Eds), Rethinking methods in psychology (pp. 9-26). London: Sage.
29. SMITH, J. A. (1996a). Beyond the divide between cognition and discourse: using interpretative phenomenological analysis in health psychology. Psychology and Health, 11, 261-271.
30. SMITH, J. A. (1996b). Evolving issues in qualitative psychology. In: J. RICHARDSON (Ed.), Handbook of qualitative research methods for psychology - the social sciences. Leicester: British Psychological Society.
31. SMITH, J. A., HARRE, R. & VAN LANGENHOVE, L. (1995). Idiography and the case study. In: J. A. SMITH, R. HARRE & L. VAN LANGENHOVE (Eds), Rethinking psychology (pp. 59-69). London: Sage.
32. SMITH, J. A., OSBORN, M. & JARMAN, M. (1999). Doing interpretative phenomenological analysis. In: M. MURRAY & K. CHAMBERLAIN (Eds), Qualitative health psychology. London: Sage.
33. STEWART, M. A. (1995). Effective physician-patient communication and health outcomes: a review. Canadian Medical Association Journal, 152, 1423-1433.
34. STILES, W. B. (1993). Quality control in qualitative research. Clinical Psychology Review, 13, 593-618.
35. WEINMAN, J. (1997). Doctor-patient communication. In: A. BAUM, S. NEWMAN, J. NEWMAN, R. WEST & C. MCMANUS (Eds), Cambridge handbook of psychology, health and medicine. Cambridge: Cambridge University Press.
36. WILLIAMS, J. K., LAKE, M. & INGRAM, J. M. (1985). The bicycle seat stool in the treatment of vaginal agenesis and stenosis. Journal of Obstetrics and Gynecological Neonatal Nursing, 14(2), 147-150.
37. WILLMOTT, J. (2000). The experiences of women with Polycistic Ovarian Syndrome. Feminism and Psychology, 10(1), 107-116.
38. WORDEN, J. W. (1983). Grief counselling and grief therapy: a handbook for the mental health practitioner. London: Routledge.