Strategies to promote better outcomes in young people with chronic illnesses

Annals of the Academy of Medicine Singapore

Volumn 32, Issue 1, 2003, Pages 36-42

  Yeo, Michele ^a   Sawyer, S M ^a,b  

^a ROYAL CHILDREN'S HOSPITAL   (Australia)

^b UNIVERSITY OF MELBOURNE   (Australia)

Author keywords

Chronic Illness; Disability; Outcomes; Young people

Indexed keywords

CHRONIC DISEASE; COMPETENCE; DISABILITY; FAMILY; GROUP PSYCHOLOGY; HEALTH CARE DELIVERY; HEALTH CARE NEED; HUMAN; JUVENILE; OUTCOMES RESEARCH; PROGNOSIS; REVIEW; SCHOOL; SELF ESTEEM; SOCIAL SUPPORT; WELLBEING;

EID: 0037260403     PISSN: 03044602     EISSN: 29724066     Source Type: Journal    
DOI: None     Document Type: Review

References (45)

1. Blum R. Global trends in adolescent health. JAMA 1991; 265:2711-9.
2. Newacheck P W, Taylor W R. Childhood chronic illness: prevalence, severity, and impact. Am J Public Health 1992; 82:364-71.
3. Al-Yaman F, Bryant M, Sargeant H. Australia's Children: Their health and wellbeing 2002. Canberra: Australian Institute of Health and Welfare, 2002.
4. Moon L, Meyer P, Grau J. Australia's young people: their health and wellbeing 1999. Canberra: Australian Institue of Health and Welfare, 1999.
5. World Health Organisation. International Classification of Impairments, Disabilities, and Handicaps. Geneva: WHO, 1980.
6. Newacheck P W, Halfon N. Prevalence and impact of disabling chronic conditions in childhood. Am J Public Health 1998; 88:610-7.
7. Gledhill J, Rangel L, Garralda E. Surviving chronic physical illness: psychosocial outcome in adult life. Arch Dis Child 2000; 83:104-10.
8. Wolman C, Resnick M D, Harris L J, Blum R W. Emotional well-being among adolescents with and without chronic conditions. J Adolesc Health 1994; 15:199-204.
9. Pless I B, Cripps H A, Davies J M C, Wadsworth M E J. Chronic physical illness in childhood: psychological and social effects in adolescence and adult life. Dev Med Child Neurol 1989; 31:746-55.
10. Kokkonen J, Kokkonen E. Prevalence of mental disorders in young adults with chronic physical diseases since childhood as identified by the Present State Examination and the CATEGO program. Acta Psychiatr Scand 1993; 87:239-43.
11. Lavigne J V, Faier-Routman J. Psychological adjustment to pediatric physical disorders: a meta-analytic review. J Pediatr Psychol 1992; 17:133-57.
12. Blum R W, Kelly A, Ireland M. Health-risk behaviours and protective factors among adolescents with mobility impairments and learning and emotional disabilities. J Adolesc Health 2001; 28:481-90.
13. Kokkonen J. The social effects in adult life of chronic physical illness since childhood. Eur J Pediatr 1995; 154:676-81.
14. Jessor R. Risk behaviour in adolescence: A psychosocial framework for understanding and action. J Adolesc Health 1991; 12:597-605.
15. Rutter M. Resilience: some conceptual considerations. J Adolesc Health 1993; 14:626-31.
16. Resnick M D, Harris L J, Blum R W. The impact of caring and connectedness on adolescent health and well-being. J Paediatr & Child Health 1993; 29(Suppl 1):S3-S9.
17. Resnick M D, Bearman P S, Blum R W, Bauman K E, Harris K M, Jones J, et al. Protecting adolescents from harm: findings from the National Longitudinal Study on Adolescent Health. JAMA 1997; 278:823-32.
18. Olsson C A, Bond L, Burns J M, Vella-Brodrick D A, Sawyer S M. Adolescent resilience: a concept analysis. J Adolesc 2003 [in press].
19. Heaven P. Contemporary adolescence: a social psychological approach. Melbourne: Macmillan Education, 1994.
20. Blum R. Sexual health and contraceptive needs of adolescents with chronic conditions. Arch Pediatr Adolesc Med 1997; 151:289-97.
21. Sawyer S M, Roberts K V. Sexual and reproductive health in young people with spina bifida. Dev Med Child Neurol 1999; 41:671-5.
22. Sawyer S M, Tully M A, Colin A A. Reproductive and sexual health in males with cystic fibrosis: A case for health professional education and training. J Adolesc Health 2001; 28:36-40.
23. Sawyer S, Phelan P, Bowes G. Reproductive health in young women with cystic fibrosis: knowledge, attitudes and behaviour. J Adolesc Health 1995; 17:46-50.
24. Goldenring J, Cohen E. Getting into adolescents heads. Contemp Pediatr 1988; 5:75-90.
25. Ford C A, Millstein S G, Halpern-Felsher B L, Irwin Jr C E. Influence of physician confidentiality assurances on adolescents 'willingness to disclose information and seek future healthcare: A randomized controlled trial. JAMA 1997; 278:1029-34.
26. Northam E. Psychosocial impact of chronic illness in children. J Paediatr Child Health 1997; 33:369-72.
27. Blum R, Resnick M, Nelson R, St Germain A. Family and peer issues among adolescents with spina bifida and cerebral palsy. Pediatrics 1991; 88:280-5.
28. Westwood A T, Henley L D, Willcox P. Transition from paediatric to adult care for persons with cystic fibrosis: Patient and parent perspectives. J Paediatr Child Health 1999; 35:442-5.
29. Perrin E C, Lewkowicz C, Young M H. Shared vision: concordance among fathers, mothers, and pediatricians about unmet needs of chronic health conditions. Pediatrics 2000; 105:277-85.
30. Swanston H, Williams K, Nunn K. The psychological adjustment of children with chronic conditions. In: Kosky R, O'Hanlon A, Martin G, Davis C, editors. Clinical approaches to early intervention in child and adolescent mental health. Adelaide: Australian Early Intervention Network for Mental Health in Young People, 2000.
31. Fowler M G, Johnson M P, Atkinson S S. School achievement and absence in children with chronic health conditions. J Pediatr 1985; 106:683-7.
32. Batten M, Russell J. Students at risk: A review of the Australian literature 1980-1994. Melbourne: ACER, 1995.
33. Patton G C, Glover S, Bond L, Butler H, Godfrey C, Di Pietro G, et al. The Gatehouse Project: a systematic approach to mental health promotion in secondary schools. Aust N Z J Psychiatry 2000; 34:586-93.
34. Olsson C A, Bond L, Johnson M W, Forer D, Boyce M F, Sawyer S M. Adolescent chronic illness: a qualitative study of psychosocial adjustment. Ann Acad Med Singapore 2003; 32:43-50.
35. Olsson C A, Toumbourou J, Bowes G, Walsh B W. Peer Support Programs. In: Court J, Werther G, editors. Diabetes and the adolescent. Australia: Miranova Publishers, 1998.
36. Olsson C A, Walsh B W, Toumbourou J W, Bowes G. Chronic Illness Peer Support (ChIPS). Aust Fam Physician 1997; 26:500-1.
37. Lam P Y, Yeo M, Sawyer S M. Adolescent admissions to a tertiary paediatric hospital: a dynamic pattern. Ann Acad Med Singapore 2003; 32:58-63.
38. Fisher M, Kaufman M. Adolescent inpatient units: A position statement of the Society for Adolescent Medicine. J Adolesc Health 1996; 18: 307-8.
39. Sawyer S, Shea L, G P. Do we need specialist units for adolescents in hospitals? BMJ 2001; 323:401.
40. Blum R, Garell D, Hodgman C, Jorissen T, Okinow N, Orr D, et al. Transition from child-centred to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health 1993; 14:570-6.
41. Blum R W. Transition to adult health care: setting the stage. J Adolesc Health 1995; 17:3-5.
42. Rosen D. Transition from pediatric to adult-oriented care for the adolescent with chronic illness or disability. Adolesc Med 1994; 5:241-8.
43. Anderson D L, Flume P A, Hardy K K, Gray S. Transition programs in cystic fibrosis centers: perceptions of patients. Pediatr Pulmonol 2002; 33:327-31.
44. Sawyer S, Blair S, Bowes G. Chronic illness in adolescents: Transfer or transition to adult services. J Paediatr Child Health 1997; 33:88-90.
45. Abdale B, Kuhl K, Tullis D. Evaluation of patient satisfaction with the transition from a pediatric hospital to an adult centre. Pediatr Pulmonol 1994; 18(Suppl 10):291-2.