Informed consent and research involving the newly dead

Kennedy Institute of Ethics Journal

Volumn 12, Issue 4, 2002, Pages 351-372

  Wicclair, Mark R ^a  

^a NONE

Author keywords

[No Author keywords available]

Indexed keywords

ANALYTICAL APPROACH; ARTICLE; BIOMEDICAL AND BEHAVIORAL RESEARCH; BRAIN DEATH; CADAVER; DECISION MAKING; DONOR; ETHICS; FAMILY; HUMAN; HUMAN EXPERIMENT; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; LIVING WILL; PERSONAL AUTONOMY; PSYCHOLOGICAL ASPECT; SOCIAL PSYCHOLOGY; UNIFORM ANATOMICAL GIFT ACT;

ANALYTICAL APPROACH; BIOMEDICAL AND BEHAVIORAL RESEARCH; UNIFORM ANATOMICAL GIFT ACT;

ADVANCE DIRECTIVES; BRAIN DEATH; CADAVER; DECISION MAKING; DISCLOSURE; ETHICAL ANALYSIS; FAMILY; HUMAN EXPERIMENTATION; HUMANS; PERSONAL AUTONOMY; SOCIAL VALUES; THIRD-PARTY CONSENT; TISSUE DONORS;

EID: 0036988141     PISSN: 10546863     EISSN: None     Source Type: Journal    
DOI: 10.1353/ken.2002.0028     Document Type: Article

References (51)

1. Alden, Andrew W.; Ward, Kristen L .M.; and Moore, Gregory P. 1999. Should Postmortem Procedures Be Practiced on Recently Deceased Patients? A Survey of Relatives' Attitudes. Academic Emergency Medicine 6: 749-52.
2. Brody, Baruch A. 1998. The Ethics of Biomedical Research: An International Perspective. New York: Oxford University Press.
3. Buchanan, Allen E., and Brock, Dan W. 1989. Deciding for Others: The Ethics of Surrogate Decision Making. New York: Cambridge University Press.
4. Burns, J. P.; Reardon, R. E.; and Truog, R. D. 1994. Using Newly Deceased Patients to Teach Resuscitation Procedures. New England Journal of Medicine 331: 1652-55.
5. Callahan, Joan C. 1987. On Harming the Dead. Ethics 97: 341-52.
6. Carson, Ronald A.; Frias, Jaime L.; and Melker, Richard J. 1981. Research with Brain-Dead Children. IRB (January): 5-6.
7. Coller , Barry S. 1989. The Newly Dead as Research Subjects. Clinical Research 37: 487-94.
8. _; Scudder, Lesley E.; Berger, Harvey J.; and Iuliucci, John D. 1988. Inhibition of Human Platelet Function In Vivo with a Monoclonal Antibody. Annals of Internal Medicine 109: 635-38.
9. Council on Ethical and Judicial Affairs 1994. Strategies for Cadaveric Organ Procurement: Mandated Choice and Presumed Consent. JAMA 272: 809-12.
10. Couzin, Jennifer. 2002. Study of Brain Dead Sparks Debate. Science 295: 1210-11.
11. Culver, Charles M. 1986. Using a Cadaver to Practice and Teach. Hastings Center Report 16 (3): 29.
12. de Frias, Casado; de Paz, F. Balboa; Martinez, A. Perez; and Mestres, C. Palacio. 1980. Inappropriate Secretion of Antidiuretic Hormone and the Effect of Lithium on its Treatment. Journal of Pediatrics 96: 153-55.
13. Dresser, Rebecca. 1986. Life, Death, and Incompetent Patients: Conceptual Infirmities and Hidden Values in the Law. Arizona Law Review 28: 373-405.
14. Feinberg, Joel. 1977. Harm and Self-interest. In Law, Morality, and Society: Essays in Honour of H. L. A. Hart, ed. P. M. S. Hacker and J. Raz, pp. 285-308. Oxford: Clarendon Press.
15. _. 1984 Harm to Others: The Moral Limits of the Criminal Law, Volume I. New York: Oxford University Press.
16. Firestone, David, and McFadden, Robert D. 2002. Scores of Bodies Strewn at Site of Crematory. New York Times (17 February): 1, 25.
17. Fost, Norman. 1980. Research on the Brain Dead. Journal of Pediatrics 96: 54-56.
18. Gallup Organization, Inc. 1993. The American Public's Attitudes Toward Organ Donation and Transplantation. Boston: The Partnership for Organ Donation.
19. Gaylin, Willard. 1974. Harvesting the Dead. Harpers (September): 23-30.
20. Grover, Dorothy. 1989. Posthumous Harm. Philosophical Quarterly 39: 334-53.
21. Hernandez, Tanya K. 1999. The Property of Death. University of Pittsburgh Law Review 60: 971-1028.
22. Iserson, Kenneth V. 1991. Requiring Consent to Practice and Teach Using the Recently Dead. Journal of Emergency Medicine 9: 509-10.
23. _. 1994. Life versus Death: Exposing a Misapplication of Ethical Reasoning. Journal of Clinical Ethics 5: 261-66.
24. Kagan, Shelly. 1998. Normative Ethics. Boulder, CO: Westview Press.
25. La Puma, John. 1988. Discovery and Disquiet: Research on the Brain-Dead. Annals of Internal Medicine 109: 606-8.
26. Levenbook, Barbara Baum. 1984. Harming Someone after His Death. Ethics 94: 407-19.
27. Manifold, Craig A.; Storrow, Alan; and Rodgers, Kevin. 1999. Patient and Family Attitudes Regarding the Practice of Procedures on the Newly Deceased. Academic Emergency Medicine 6: 110-15.
28. Marquis, Don. 1986. Harming the Dead. Ethics 96: 159-61.
29. Martyn, Susan R. 1986. Using the Brain Dead for Medical Research. Utah Law Review (no. 1): 1-28.
30. May, Thomas; Aulisio, Mark P.; and DeVita, Michael A. 2000. Patients, Families, and Organ Donation: Who Should Decide? Milbank Quarterly 78:323-36.
31. McNamara, Robert M.; Monti, Susan; and Kelly, John. 1995. Requesting Consent for an Invasive Procedure in Newly Deceased Adults. JAMA 273: 310-12.
32. Metcalf, Peter, and Huntington, Richard. 1991. Celebrations of Death. 2d ed. Cambridge: Cambridge University Press.
33. Moorhouse, A., and Weisstub, D. N. 1996. Advance Directives for Research: Ethical Problems and Responses. International Journal of Law & Psychiatry 19: 107-41.
34. NBAC. National Bioethics Advisory Commission. 1998. Research Involving Persons With Mental Disorders that May Affect Decisionmaking Capacity. Volume I: Report and Recommendations of the National Bioethics Advisory Commission. Available at http://bioethics.georgetown.edu/nbac/capacityl TOC.htm.
35. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. 1978. The Belmont Report. Washington, DC: U.S. Government Printing Office.
36. Olsen, Jon C.; Buenefe, Michael L.; and Falco, William D. 1998. Death in the Emergency Department. Annals of Emergency Medicine 31: 758-65.
37. Partridge, Ernest. 1981. Posthumous Interests and Posthumous Respect. Ethics 91: 243-64.
38. Peters, David A. 1986. Protecting Autonomy in Organ Procurement Procedures: Some Overlooked Issues. Milbank Quarterly 64: 241-70.
39. Pitcher, George. 1984. The Misfortunes of the Dead. American Philosophical Quarterly 21: 183-88.
40. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. 1983. Implementing Human Research Regulations: The Adequacy and Uniformity of Federal Rules and of their Implementation. Washington, DC: U.S. Government Printing Office.
41. Rao, Radhika. 2000. Property, Privacy, and the Human Body. Boston University Law Review 80: 359-460.
42. Robertson, John A. 1980. Research on the Brain-Dead. IRB (April): 4-6.
43. _. 1991. Second Thoughts on Living Wills. Hastings Center Report 21 (6): 6-9.
44. Siminoff, Laura A., and Mercer, Mary Beth. 2001. Public Policy, Public Opinion, and Consent for Organ Donation. Cambridge Quarterly of Healthcare Ethics 10: 377-86.
45. Siminoff, L. A.; Gordon, N.; Hewlett, J.; and Arnold, R. M. 2001. Factors Influencing Families' Consent for Donation of Solid Organs for Transplantation. JAMA 286: 71-77.
46. Smith, David H. 1980. On Being Queasy. IRB (April): 6-7.
47. UAGA. Uniform Anatomical Gift Act. 1987. National Conference of Commissioners on Uniform State Laws. Available at http://www.law.upenn.edu/bll/ ulc/fnact99/uaga87.pdf.
48. Veatch, Robert M. 1981. Research on "Nonconsentables." IRB (January): 6-7.
49. Wicclair, Mark R. 1993. Ethics and the Elderly. New York: Oxford University Press.
50. Wilkinson, T. M. 2001. Parental Consent and the Use of Dead Children's Bodies. Kennedy Institute of Ethics Journal 11: 337-58.
51. Wittgenstein, Ludwig. 1958. Philosophical Investigations. Oxford: Blackwell.