Thalassaemia carrier testing in Pakistani adults: Behaviour, knowledge and attitudes

Community Genetics

Volumn 5, Issue 2, 2002, Pages 120-127

  Ahmed, Shenaz ^a   Bekker, Hilary ^a   Hewison, Jenny ^a   Kinsey, Sally ^b  

^a UNIVERSITY OF LEEDS   (United Kingdom)

^b ST JAMES S UNIVERSITY HOSPITAL   (United Kingdom)

Author keywords

Attitudes; Carriers; Knowledge; Pakistani; Testing; Thalassaemia

Indexed keywords

ADULT; ARTICLE; CONTROLLED STUDY; DISEASE CARRIER; FEMALE; GENETIC PROCEDURES; HUMAN; INHERITANCE; INTERVIEW; MALE; MEDICAL DECISION MAKING; PAKISTAN; PATIENT ATTITUDE; PATIENT EDUCATION; PREGNANCY TERMINATION; PRENATAL DIAGNOSIS; PRIORITY JOURNAL; THALASSEMIA;

EID: 0036970710     PISSN: 14222795     EISSN: None     Source Type: Journal    
DOI: 10.1159/000065167     Document Type: Article

References (16)

1. Modell B, Anionwu EN: Guidelines for screening for haemoglobin disorders: Service specifications for low and high prevalence DHAs; in Ethnicity and Health: Reviews of Literature and Guidance for Purchasers in the Areas of Cardiovascular Disease, Mental Health and Haemoglobinopathies. York, University of York, NHS Centre for Reviews and Dissemination, 1996, pp 127-224.
2. Hickman M, Modell B, Greengross P, Chap-man C, Layton M, Falconer S, Davies SC: Mapping the prevalence of sickle cell and beta thalassaemia in England: Estimating and validating ethnic-specific rates. Br J Haematol 1999;4:860-867.
3. Lucarelli G, Galimbert M, Polichi P, Angelucci E, Baronciani D, Giardini C, Durazzi SM, Muretto P, Albertini F: Bone marrow transplantation in patients with thalassaemia. N Engl J Med 1990;322:417-421.
4. Kuliev A: Thalassaemia can be prevented. World Health Forum 1986;7:286-290.
5. Hadjiminas M: The Cypriot experience -Screening to combat a serious genetic disease; in Council of Europe, Ethics and Human Genetics. Proc 2nd Symposium of the Council of Europe on Bioethics, Strasbourg, Council of Europe Press, 1994, pp 26-48.
6. Gill PS, Modell B: Thalassaemia in Britain: A tale of two communities. Br Med J 1998;317: 761-762.
7. Darr A, Modell B: The frequency of consanguineous marriage among British Pakistanis. J Med Genet 1988;25:186-190.
8. Darr A: The Social Implications of Thalassaemia among Muslims of Pakistani Origin in England - Family Experience and Service Delivery, PhD thesis, London, 1991.
9. Dyson S, Davis V, Rahman R: Thalassaemia: Current community knowledge in Manchester. Health Visit 1993;66:447-448.
10. Lakhani N: Thalassaemia among Asians in Britain. Thalassaemia Society is working to improve awareness. Br Med J 1999;318:837.
11. Bekker H, Model M, Denniss G, Silver A, Mathew C, Bobrow M, et al: Uptake of cystic fibrosis testing in primary care: Supply push or demand pull? Br Med J 1993;306:1584-1586.
12. Denayer L, De Boeck K, Evers-Kiebooms G, Van den Berghe H: The transfer of information about genetic transmission to brothers and sisters of parents with a CF child. Birth Defects Orig Artic Ser 1992;28:149-158.
13. Denayer L, Evers-Kiebooms G, De Boeck K, Van den Berghe H: Reproductive decision making of aunts and uncles of a child with cystic fibrosis: Genetic risk perception and attitudes toward carrier identification and prenatal diagnosis. Am J Med Genet 1992;44:104-111.
14. Green JM: Principles and practicalities of carrier screening: Attitudes of recent parents. J Med Genet 1992;29:313-319.
15. Mertz J: Matching scheme solves Tay Sachs problems. J Am Med Assoc 1987;258:2636-2637.
16. Angastiniotis MA, Hadjiminas MG: Prevention of thalassaemia in Cyprus. Lancet 1981;i:369-371.