Characteristics of pain managed at home in children and adolescents with sickle cell disease by using diary self-reports

Journal of Pain

Volumn 3, Issue 6, 2002, Pages 461-470

  Dampier, Carlton ^a,b   Ely, Beth ^a,b   Brodecki, Darcy ^a   O'Neal, Patricia ^a  

^a ST CHRISTOPHER'S HOSPITAL FOR CHILDREN   (United States)

^b DREXEL UNIVERSITY COLLEGE OF MEDICINE   (United States)

Author keywords

Pediatric pain; Sickle cell disease

Indexed keywords

ANALGESIC AGENT; OPIATE;

ADOLESCENT; ANALGESIA; ARTICLE; CHILD; CHILDHOOD DISEASE; CLINICAL ARTICLE; DRUG EFFICACY; HOME CARE; HUMAN; MEDICAL RECORD; PAIN; PATIENT COMPLIANCE; QUESTIONNAIRE; RELIABILITY; SELF REPORT; SICKLE CELL ANEMIA;

EID: 0036905062     PISSN: 15265900     EISSN: None     Source Type: Journal    
DOI: 10.1054/jpai.2002.128064     Document Type: Article

References (38)

1. Abu-Saad HH, Kroonen E, Halfens R: On the development of a multidimensional Dutch pain assessment tool for children. Pain 43:249-256, 1990
2. Abu-Saad HH, Pool H, Tulkens B: Further validity testing of the Abu-Saad paediatric pain assessment tool. J Adv Nurse 19:1063-1071, 1994
3. Alex MR, Ritchie JA: School-aged children's interpretation of their experience with acute surgical pain. J Pediatr Nurs 7:171-180, 1992
4. Ballas SK: Sickle Cell Pain, Progress in Pain Research and Management (Vol 11). Seattle, IASP Press, 1998.
5. Beyer JE: Judging the effectiveness of analgesia for children and adolescents during vaso-occlusive events of sickle cell disease. J Pain Symptom Manage 19:63-72, 2000
6. Beyer JE, Knott CB: Construct validity estimation for the African-American and Hispanic versions of the Oucher. J Pediatr Nurs 13:20-31, 1998
7. Beyer JE, Simmons LE, Woods GM, Woods PM: A chronology of pain and comfort in children with sickle cell disease. Arch Pediatr Adolesc Med 153:913-920, 1999
8. Broome ME: Measurement of pain: Self-report strategies. J Pediatr Oncol Nurs 8:131-133, 1991
9. Bunn HF: Pathogenesis and treatment of sickle cell disease. N Engl J Med 337:762-769, 1997
10. Champion GD, Goodenough B, von Baeyer CL, Thomas W: Measurement of pain by self-report, in Finley GA, McGrath PJ, (eds): Measurement of Pain in Infants and Children. Seattle, ISAP Press, 1989, pp 123-160
11. Conner-Warren RL: Pain intensity and home pain management of children with sickle cell disease. Issues Compr Pediatr Nurs 19:183-195, 1996
12. Damlouji NF, Georgopoulos A, Kevess-Cohen R, Georgopoulos A, Folstein MF: Social disability and psychiatric morbidity in sickle cell anemia and diabetes patients. Psychosomatics 23:92S-931, 1982
13. Fuggle P, Shand PAX, Gill LJ, Davies SC: Pain, quality of life, and coping in sickle cell disease. Arch Dis Child 75:199-203, 1996
14. Gil KM, Porter L, Ready J, Workman E, Sedway J, Anthony KK: Pain in children and adolescents with sickle cell disease: An analysis of daily pain diaries. Child Health Care 29:225-241, 2000
15. Gill LJ, Shand PAX, Fuggle P, Dugan B, Davies SC: Pain assessment for children with sickle cell disease: Improved validity of diary keeping versus interview ratings. Br J Health Psychol 2:131-140, 1997
16. Graumlich SE, Powers SC, Byars KC, Schwarber LA, Mitchell MJ, Kalinyak KA: Multidimensional assessment of pain in pediatric sickle cell disease. J Pediatr Psychol 26:203-214, 2001
17. Huth MM: A rendezvous with reliability. J Child Fam Nurs 1:49-53, 1998
18. Jordan-Marsh M, Yoder L, Hall D, Watson R: Alternate Oucher form testing: Gender, ethnicity, and age variations. Res Nurs Health 17:111-118, 1994
19. LaFleur CJ, Raway B: School-age child and adolescent perception of the pain intensity associated with three word pain descriptors. Pediatr Nurs 25:45-55, 1999
20. Lollar DJ, Smits SJ, Patterson D: Assessment of pediatric pain: An empirical perspective. J Pediatr Psychol 7:267-277, 1982
21. Lovell DJ, Howe S, Shear E, Hartner S, McGirr G, Schulte M, Levinson J: Development of a disability measurement tool for juvenile rheumatoid arthritis: The Juvenile Arthritis Functional Assessment Score. Arthritis Rheum 32:1390-1395, 1989
22. Morgan SA, Jackson J: Psychological and social concomitants of sickle cell anemia in adolescents. J Pediatr Psychol 11:429-440, 1986
23. Platt OS, Thorington BD, Brambilla DJ, Milner PF, Rosse WF, Vichinsky E: Pain in sickle cell disease: Rates and risk factors. N Engl J Med 325:11-16, 1991
24. Reese FL, Smith WR: Psychosocial determinants of health care utilization in sickle cell disease patients. Ann Behav Med 19:171-178, 1997
25. Savedra MC, Holzemer WL, Tesler MD, Wilkie DJ: Assessment of postoperative pain in children and adolescents using the adolescent pediatric pain tool. Nurs Res 42:5-9, 1993
26. Savedra MC, Tesler MD, Holzemar WL, Brokaw P: A strategy to assess the temporal dimension of pain in children and adolescents. Nurs Res 44:272-276, 1995
27. Savedra MC, Tesler MD, Holzemar WL, Wilkie DJ, Ward JA: Pain location: Validity and reliability of body outline markings by hospitalized children and adolescents. Res Nurs Health 12:307-314, 1989
28. Shapiro B, Dinges DF, Orne EC, Bauer N, Reilly LB, Whitehouse WG, Ohene-Frempong K, Orne MT: Home management of sickle cell-related pain in children and adolescents: Natural history and impact on school attendance. Pain 61:. 139-144, 1995
29. Shapiro B, Dinges DF, Orne EC, Ohene-Frempong K, Orne MT: Recording of crisis pain in sickle cell disease, in Tyler DC, Krane EJ (eds): Advances in Pain Research and Therapy (Vol 15). New York, Raven Press, 1990, pp 313-321
30. Sporrer KA, Jackson SM, Agner S, Laver J, Abboud MR: Pain in children and adolescents with sickle cell anemia: A prospective study utilizing self-reporting. Am J Pediatr Hematol Oncol 16:219-224, 1994
31. Tesler MD, Wilkie DJ, Holzmer WL, Savedra MC: Postoperative analgesics for children and adolescents: Prescription and administration. J Pain Symptom Manage 9:85-95, 1994
32. Tesler MD, Savedra MC, Holzemer WL, Wilkie DJ, Ward JA, Paul SM: The word-graphic rating scale as a measure of children's and adolescent's pain intensity. Res Nurs Health 14:361-371, 1991
33. Varni JW, Thompson KL, Hanson V: The Varni/Thompson pediatric pain questionnaire. I. Chronic musculoskeletal pain in juvenile rheumatoid arthritis. Pain 33:27-38, 1987
34. Varni JW, Walco GA, Katz ER: Assessment and management of chronic and recurrent pain in children with chronic diseases. Pediatrician 16:S6-63, 1989
35. Vichinsky EP, Johnson R, Lubin BH: Multidisciplinary approach to pain management in sickle cell disease. Am J Pediatr Hematol Oncol 4:328-333, 1982
36. Walco G, Dampier C: Pain in children and adolescents with sickle cell disease: A descriptive study. J Pediatr Psychol 15:643-658, 1990
37. Westerman MP, Bailey K, Freels S, Schlegel R, Williamson P: Assessment of painful episode frequency in sickle-cell disease. Am J Hematol S4:183-188, 1997
38. Yaster M, Kost-Byerly S, Maxwell LG: The management of pain in sickle cell disease. Pediatr Clin North Am 47:699-710, 2000