Epilepsy - Giving the diagnosis. A survey of British paediatric neurologists

Seizure

Volumn 11, Issue 8, 2002, Pages 500-511

  Cunningham, Cliff ^a   Newton, Richard ^b   Appleton, Richard ^c   Hosking, Gwilym ^d   McKinlay, Ian ^b  

^a LIVERPOOL JOHN MOORES UNIVERSITY   (United Kingdom)

^b ROYAL MANCHESTER CHILDREN S HOSPITAL   (United Kingdom)

^c Liverpool Hospital   (United Kingdom)

^d NONE

Author keywords

Diagnosis; Disclosure process; Epilepsy; Family practice

Indexed keywords

ADAPTATION; ARTICLE; AWARENESS; CONSULTATION; CONTROLLED STUDY; DOCTOR PATIENT RELATION; EMOTION; EPILEPSY; HEALTH SURVEY; HUMAN; MEDICAL INFORMATION; MEDICAL SPECIALIST; METHODOLOGY; NEUROLOGY; NURSE; PARENT; PATIENT EDUCATION; PEDIATRICS; PRACTICE GUIDELINE; PRIORITY JOURNAL; QUESTIONNAIRE; UNITED KINGDOM; ADULT; CHILD; EDUCATION; FEMALE; INFORMATION PROCESSING; INTERPERSONAL COMMUNICATION; MALE; NURSING; PATIENT CARE; PATIENT REFERRAL; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT;

ADULT; CHILD; CHILD, PRESCHOOL; DATA COLLECTION; EPILEPSY; FEMALE; GREAT BRITAIN; HUMANS; MALE; NEUROLOGY; NURSE CLINICIANS; PARENTS; PATIENT CARE TEAM; PATIENT EDUCATION; PHYSICIAN-PATIENT RELATIONS; REFERRAL AND CONSULTATION; TRUTH DISCLOSURE;

EID: 0036903363     PISSN: 10591311     EISSN: None     Source Type: Journal    
DOI: 10.1016/S1059-1311(02)00136-X     Document Type: Article

References (16)

1. Cunningham, C. C., Morgan, P. and McGucken, R. B. Down's syndrome: is dissatisfaction with disclosure of diagnosis inevitable. Developmental Medicine and Child Neurology 1984; 26: 33-39.
2. Cottrell, D. J. and Summers, K. Communicating an evolutionary diagnosis of disability to parents. Child: Care, Health and Development 1990; 16: 211-218.
3. McKinlay, I. Disclosure of developmental disorders. The SLD Experience 1995; 11: 12-13.
4. Laybourn, A. and Hill, M. Children with epilepsy and their families: needs and services. Child: Care, Health and Development 1994; 20: 1-14.
5. Cunningham, C. C. and Newton, R. A question sheet to encourage written consultation questions. Quality in Health Care 2000; 9: 42-46.
6. Houston, E., Cunningham, C. C., Metcalf, E. and Newton, R. The information needs and understanding of 5-10 year-old children with epilepsy, asthma or diabetes. Seizure 2000; 9: 340-343.
7. Sloper, P. and Turner, S. Determinants of parental satisfaction with disclosure of disability. Developmental Medicine and Child Neurology 1993; 35: 816-825.
8. Quine, L. and Rutter, D. R. First diagnosis of severe mental and physical disability: a study of doctor-parent communication. Journal of Child Psychology and Psychiatry 1994; 35: 1273-1287.
9. Turner, S. and Sloper, P. Paediatricians' practice in disclosure and follow-up of severe physical disability in young children. Developmental Medicine and Child Neurology 1992; 34: 348-358.
10. Kenny, T., Wilson, R. G., Purves, I. N., Clark Sr, J., Newton, L. D., Newton, D. P. and Mosely, D. V. A PIL for every ill? Patient information leaflets (PILs): a review of past present and future use. Family Practice 1998; 15: 471-479.
11. Buck, D., Jacoby, A., Baker, G. A., Graham-Jones, S. and Chadwick, D. W. Patient's experience of and satisfaction with care for their epilepsy. Epilepsia 1996; 37: 841-849.
12. Poole, K., Moran, N., Bett, G., Solomon, J., Kendall, S., McCarthy, M., McCormick, G., Nashef, L., Johnson, A., Sander, J. and Shorvon, S. Patient's perspectives on services for epilepsy: a survey of patient satisfaction, preferences and information provision in 2394 people with epilepsy. Seizure 2000; 9: 551-558.
13. Long, L., Reeves, A. L., Moore, J. L., Roach, J. and Pickering, C. T. Epilepsia 2000; 41: 727-731.
14. Ridsdale, L., Kwan, I. and Cryer, C. Newly diagnosed epilepsy: can nurse specialists help? A randomised controlled trial. Epilepsy Care Evaluation Group. Epilepsia 2000; 41: 1014-1019.
15. Appleton, R., Besag, F., Kennedy, C., Wallace, S. and Hopkins, A. An audit of children referred with suspected epilepsy. Seizure 1990; 7: 489-495.
16. Dilorio, C. and Manteuffel, B. Preferences concerning epilepsy education: opinions of nurses, physicians, and persons with epilepsy. Journal of Neuroscience Nursing 1995; 27: 29-34.