Commentary on "research design in end-of-life research: State of science"

Gerontologist

Volumn 42, Issue SPEC. ISS. 3, 2002, Pages 99-103

  Tennstedt, Sharon L ^a  

^a NEW ENGLAND RESEARCH INSTITUTES   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CAREGIVER; COMORBIDITY; CONFERENCE PAPER; DATA ANALYSIS; DYING; HEALTH SERVICE; PATIENT CARE; RESEARCH;

EID: 0036772472     PISSN: 00169013     EISSN: None     Source Type: Journal    
DOI: 10.1093/geront/42.suppl_3.99     Document Type: Conference Paper

References (41)

1. Alzheimer's Association and the National Alliance for Caregiving. (1999). Who Cares? Families Caring for Persons with Alzheimer's Disease. Bethesda, MD: Author.
2. American Heart Association. (1994). 1994 Revisions to Classification of Functional Capacity and Objective Assessment of Patients with Diseases of the Heart [On-line]. Retrieved August 8, 2002 from www.americanheart. org/presenter.jhtml?identifier=9181.html
3. Asai, A., Fukuhara, S., Inoshita, O., Miura, Y., Tanabe, N., & Kurokawa, K. (1997). Medical decisions concerning the end of life: A discussion with Japanese physicians. Journal of Medical Ethics, 23(5), 323-327.
4. Calam, B., Far, S., & Andrew, R. (2000). Discussions of "code status" on a family practice teaching ward: What barriers do family physicians face? Canadian Medical Association Journal, 163(10), 1255-1259.
5. Calderon, V., & Tennstedt, S. (1998). Ethnic differences in expression of caregiver burden. Journal of Gerontological Social Work, 30(1/2). [Reprinted in M. Delgado (Ed.). (1998). Latino elders in the twenty-first century: Issues and challenges for culturally competent research and practice. New York: Hayworth Press.]
6. Christakis, N. A., & Iwashyna, T. J. (2000). Impact of individual and market factors on the timing of initiation of hospice terminal care. Medical Care, 38, 528-541.
7. Cook, T. D., & Campbell, D. T. (1979). Quasi-Experimentation: Design & Analysis Issues for Field Settings. Chicago; Rand McNally.
8. Doty, P. (1986). Family care of the elderly: The role of public policy. Milbank Memorial Fund Quarterly, 64, 34-75.
9. Ekblad, S., Marttila, A., & Emilsson, M. (2000). Cultural challenges in end-of-life care: Reflections from focus groups' interviews with hospice staff in Stockholm. Journal of Advance Nursing, 31(3), 623-630.
10. Fetters, M. D., Churchill, L., & Danis, M. (2001). Conflict resolution at the end of life. Critical Care Medicine, 29(5), 921-925.
11. Fisher, E. S., Wennberg, J. E., Stukel T. A., Skinner J. S., Sharp, S. M., Freeman, J. L., et al. (2000). Associations among hospital capacity, utilization, and mortality of U.S. Medicare beneficiaries, controlling for sociodemographic factors. Health Services Research, 34(6), 1351-1362.
12. Friedman, R. H., Stollerman, J., Rozenblyum, L., Belfer, D., Selim, A., Mahoney, D., et al. (1998). A telecommunications system to manage patients with chronic disease. Medinfo, 9, 1330-1334.
13. George, L. K. (2002). Research design in end-of-life research: State of science. The Gerontologist, 42(Special Issue III), 86-98.
14. Gill, C. E., Hinrichsen, G. A., & DiGiuseppe, R. (1998). Factors associated with formal service use by family members of patients with dementia. Journal of Applied Gerontology, 17, 38-52.
15. Graham, J. W., & Hofer, S. M. (2000). Multiple imputation in multivariate research. In T. D. Little, K. U. Schnabel, & J. Baumert (Eds.), Modeling Longitudinal and Multiple Group Data: Practical Issues, Applied Approaches, and Specific Examples (pp. 201-218). Hillsdale, NJ: Erlbaum.
16. Johnston, B., Wheeler, L., Deuser, J., & Sousa, K. H. (2000). Outcome of the Kaiser Permanente Tele-Home Health Research Project. Archives of Family Medicine, 9(1), 40-45.
17. Lunney, J. R., Lynn, J., & Hogan, C. (2001). Profiles of elderly Medicare decedents. Unpublished manuscript, George Washington University, Center to Improve Care of the Dying, Washington, DC.
18. Mahoney, D. M., Tarlow, B., Jones, R. N., Tennstedt, S., & Kasten, L. (2001). Factors affecting the use of a telephone-based intervention for caregivers of people with Alzheimer's disease. Journal of Telemedicine and Telecare, 7, 139-148.
19. Matzo, M. L., & Schwarz, J. K. (2001). In their own words: Oncology nurses respond to patient requests for assisted suicide and euthanasia. Applied Nursing Research, 14(2), 64-71.
20. McKinlay, J. B., Burns, R. B., Feldman H. A., Freund, K. M., Irish J. T., Kasten, L. E., et al. (1998). Physician variability and uncertainty in the management of breast cancer. Medical Care, 36(3), 385-396.
21. McKinlay, J. B., Potter, D. A., & Feldman, H. A. (1996). Non-medical influences on medical decision-making. Social Science and Medicine, 42(5), 769-776.
22. Mebane, E. W., Oman, R. E, Kroonen, L. T., & Goldstein, M. K. (1999). The influence of physician race, age, and gender on physician attitudes toward advance care directives and preferences for end-of-life decision-making. Journal of the American Geriatrics Society, 47(5), 579-591.
23. Mitty, E. L. (2001). Ethnicity and end of life decision making. Reflections on Nursing Leadership, First Quarter, 28-31.
24. National Alliance for Caregiving and the American Association of Retired Persons. (1997). Family Caregiving in the U.S.: Findings from a National Survey. Bethesda, MD: Author.
25. Oberle, K., & Hughes, D. (2001). Doctors' and nurses' perceptions of ethical problems in end-of-life decisions. Journal of Advanced Nursing, 33(6), 707-715.
26. Ory, M. G., Hoffman, R. R., Yee, J., Tennstedt, S., & Schulz, R. (1999). Prevalence and impact of caregiving: A detailed comparison between dementia and non-dementia caregivers. The Gerontologist, 39, 177-186.
27. Pan, C. X., Morrison, R. S., Ness, J., Fugh-Berman, A., & Leipzig, R. M. (2000). Complementary and alternative medicine in the management of pain, dyspnea, and nausea and vomiting near the end of life. A systematic review. Journal of Pain and Symptom Management, 20(5): 374-387.
28. Piette, J. D., Weinberger, M., & McPhee, S. J. (2000). The effect of automated calls with telephone nurse follow-up on patient-centered outcomes of diabetes care: A randomized, controlled trial. Medical Care, 38(2), 218-230.
29. Rogers, M. A., Small, D., Buchan, D. A., Butch, C. A., Stewart, C. M., Krenzer, B. E., et al. (2001). Home monitoring service improves mean arterial pressure in patients with essential hypertension. A randomized, controlled trial. Annals of Internal Medicine, 134(11), 1024-1032.
30. Rossi, P. H., & Freeman, H. E. (1985). Evaluation. A Systemic Approach. Beverly Hills: Sage.
31. Steinhauser, K., Christakis, N. A., Clipp, E. C., McNeilly, M., McIntyre, L., & Tulsky, J. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. Journal of the American Medical Association, 284, 2476-2482.
32. Steinhauser, K. E., Clipp, E. C., McNeilly, M., Christakis, N. A., McIntyre, L. M., & Tulsky, J. A. (2000). In search of good death: Observations of patients, families, and providers. Annals of Internal Medicine, 132, 825-832.
33. Stone, R., Cafferata, G. L., & Sangl, J. (1987). Caregivers of the frail and elderly: A national profile. The Gerontologist, 27, 677-683.
34. Stricklin, M. L., Jones, S., & Niles, S. A. (2000). Hometalk/Healthy Talk: Improving patients' health status with telephone technology. Home Healthcare Nurse, 18(1), 53-61.
35. Tennstedt, S. (1999). Family caregiving in an aging society. Presented at the U.S. Administration on Aging Symposium: Longevity in the New American Century [On-line]. Retrieved August 8, 2002 from www.aoa.gov/caregivers/famcare.html
36. Tennstedt, S., & Chang, B. (1998). The relative contribution of ethnicity versus socioeconomic status in explaining differences in disability and receipt of informal care. Journal of Gerontology: Social Sciences, 53B, S861-S870.
37. Teno, J. M., Byock, I., & Field, M. J. (1999). Research agenda for developing measures to examine quality of care of patients diagnosed with life-limiting illness. Journal of Pain and Symptom Management, 17, 75-81.
38. Tsang, M. W., Mok, M., Kam, G., Jung, M., Tang, A., Chan, U., et al. (2001). Improvement in diabetes control with a monitoring system based on a hand-held, touch screen electronic diary. Journal of Tele-medicine and Telecare, 7(1), 47-50.
39. Wennberg, J. E. (1993). Future directions for small area variations. Medical Care, 31 (Suppl. 5), YS75-YS80.
40. Whitlock, W. L., Brown, A., Moore, K., Pavliscsak H., Dingbaum, A., Lacefield, D., et al. (2000). Telemedicine improved diabetic management. Military Medicine, 165(8), 579-584.
41. Yordi, C., DuNah, R., Bostrom, A., Fox, P., Wilkinson, A., & Newcomer, R. (1997). Caregiver supports: Outcomes from the Medicare Alzheimer's disease demonstration. Health Care Financing Review, 19(2), 97-117.