The lived experience of families of children who are failing to thrive

Journal of Advanced Nursing

Volumn 39, Issue 6, 2002, Pages 537-545

  Thomlinson, Elizabeth H ^a  

^a UNIVERSITY OF CALGARY   (Canada)

Author keywords

Children; Failure to thrive; Families; Hermeneutic phenomenology

Indexed keywords

ARTICLE; CHILD; EMOTION; FAILURE TO THRIVE; FAMILY; FAMILY RELATION; FEAR; FEMALE; GROWTH DISORDER; HUMAN; HUMAN RELATION; MALE; MENTAL STRESS; PSYCHOLOGICAL ASPECT;

CHILD; EMOTIONS; FAILURE TO THRIVE; FAMILY; FAMILY RELATIONS; FEAR; FEMALE; GROWTH DISORDERS; HUMANS; MALE; PROFESSIONAL-FAMILY RELATIONS; STRESS, PSYCHOLOGICAL;

EID: 0036728077     PISSN: 03092402     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2648.2002.02322.x     Document Type: Article

References (62)

1. Alderette P. & deGraffenried D.F. (1986) Nonorganic failure-to-thrive syndrome and the family system. Social Work 31, 207-211.
2. Altemeier W., O'Connor S., Sherrod K., Yeager T. & Vietze P. (1985) A strategy for managing nonorganic failure to thrive based on a prospective study of antecedents. In New Directions in Failure to Thrive: Implications for Research and Practice (Drotar D. ed.), Plenum Press, New York, pp. 211-233.
3. Baine S., Rosenbaum P. & King S. (1995) Chronic childhood illnesses: what aspects of caregiving do parents value? Child: Care, Health and Development 21, 291-304.
4. Benner P. & Wrubel J. (1989) The Primacy of Caring: Stress and Coping in Health and Illness. Addison-Wesley, Reading, MA.
5. Berwick D., Levy J. & Kleinerman R. (1982) Failure to thrive: diagnostic yield of hospitalization. Archives of Disease in Childhood 57, 347-351.
6. Bithoney W. & Newberger E. (1987) Child and family attributes of failure-to-thrive. Developmental and Behavioral Pediatrics 8, 32-36.
7. Black M.M., Dubowitz H., Hutcheson J., Berenson-Howard J. & Starr R.H. (1995) A randomized clinical trial of home intervention for children with failure to thrive. Pediatrics 19, 807-814.
8. Casey P., Bradley R. & Wortham B. (1984) Social and non-social home environments of infants with nonorganic failure to thrive. Pediatrics 73, 348-353.
9. Chesla C.A. (1995) Hermeneutic phenomenology: an approach to understanding families. Journal of Family Nursing 1, 68-78.
10. Cohen M.H. (1995) The triggers of heightened parental uncertainty in chronic, life-threatening childhood illness. Qualitative Health Research 5, 63-77.
11. Colaizzi P.F. (1978) Psychological research as the phenomenologist views it. In Existential-Phenomenological Alternatives for Psychology (Valle R.S. & King M. eds), Oxford University Press, New York, pp. 48-71.
12. Cupoli J., Hallock J. & Barness J. (1980) Failure to thrive. Current Problems in Pediatrics 10, 1-43.
13. Davis H. (1993) Counselling Parents of Children with Chronic Illness or Disability. BPS Books, Leicester.
14. Drotar D. (1988) Failure to thrive. In Handbook of Pediatric Psychology (Routh D. ed.), The Guilford Press, New York, pp. 71-107.
15. Drotar D. (1994) Impact of parental health problems on children: concepts, methods, and unanswered questions. Journal of Pediatric Psychology 19, 525-536.
16. Drotar D. & Eckerle D. (1989) The family environment in non-organic failure to thrive: a controlled study. Journal of Pediatric Psychology 14, 245-257.
17. Drotar D., Malone C., Devost L., Brickell C., Mantz-Clumpner C., Negray J., Wallace M., Woychik J., Wyatt B., Eckerle D., Finlon M., El-amin D., Stola M. & Pallotta J. (1985) Early preventive intervention in failure to thrive. In New Directions in Failure to Thrive (Drotar D. ed.), Plenum Press, New York, pp. 119-139.
18. Elmer E. (1960) Failure to thrive: role of the mother. Pediatrics 55, 717-725.
19. Fraiberg S., Adelson E. & Shapiro V. (1980) Ghosts in the nursery. In Clinical Studies in Infant Mental Health (Fraiberg S. ed.), pp. 164-196, Basic Books, New York.
20. Frank D. (1985) Biologic risks in nonorganic failure to thrive: diagnostic and therapeutic implication. In New Directions in Failure to Thrive (Drotar D. ed.), Plenum Press, New York, pp. 17-27.
21. Galler J., Ramsey F., Solimano G., Lowell W. & Mason E. (1983) The influence of early malnutrition on subsequent behavioral development. Journal of the American Academy of Child Psychiatry 22, 8-15.
22. Galler J., Ramsey F. & Solimano G. (1985) A follow up study of the effects of early malnutrition on subsequent development. Pediatric Research 19, 524-527.
23. Gallo A. & Knafl K.A. (1998) Parents' reports of 'tricks of the trade' for managing childhood chronic illness. Journal of the Society of Pediatric Nurses 3, 93-100.
24. Goldbloom R. (1982) Failure to thrive. Pediatric Clinics of North America 29, 151-166.
25. Goldbloom R. (1987) Growth in infancy. Pediatrics in Review 9, 57-61.
26. Heidegger M. (1927/62) Being and Time (Macquarrie, J., Robinson, E., Trans.). Harper-Collins, San Francisco, CA.
27. Herman-Staab B. (1992) Antecedents to nonorganic failure-to-thrive. Pediatric Nursing 18, 579-590.
28. Hufton I. & Oates K. (1977) Nonorganic failure to thrive: a long-term follow-up. Pediatrics 59, 73-77.
29. Kempe R., Cutler C. & Dean J. (1980) The infant with failure to thrive. In The Battered Child (Kempe C.H. & Helfer R. eds), 3rd edn, The University of Chicago Press, Chicago, pp. 56-76.
30. Kirk S. (1998) Families' experiences of caring at home for a technology-dependent child: a review of the literature. Child: Care, Health and Development 24, 101-113.
31. Klein D. & Jurich J. (1993) Metatheory and family studies. In Sourcebook of Family Theory and Methods: A Contextual Approach (Boss P.G., Doherty W.J., LaRossa R., Schumm W.R. & Steinmetz S.K. eds), Plenum, New York, pp. 31-67.
32. Lawson M. (2001, 27 September) Failure to thrive. Update 226, 228-230. Retrieved 22 March 2002 from http://www.DoctorUpdate. net.
33. Lincoln Y.S. & Cuba E.G. (1985) Naturalistic Inquiry. Sage Publications, Beverly Hills.
34. Lobo M.L., Barnard K.E. & Coombs J.B. (1992) Failure to thrive: a parent-infant interaction perspective. Journal of Pediatric Nursing 7, 251-261.
35. MacPhee M. (1995) The family systems approach and pediatric nursing care. Pediatric Nursing 21, 417-423, 437.
36. MacPhee M. & Hoffenberg E. (1996) Nursing case management for children with failure to thrive. Journal of Pediatric Health Care 10, 63-73.
37. MacPhee M. & Schneider J. (1996) A clinical tool for nonorganic failure-to-thrive feeding interactions. Journal of Pediatric Nursing 11, 29-39.
38. MacPhee M., Mori C. & Goldson E. (1994) Change in the hospital setting: adopting a team approach for nonorganic failure-to-thrive. Journal of Pediatric Nursing 9, 218-225.
39. van Manen M. (1990) Researching Lived Experience: Human Science for an Action Sensitive Pedagogy. The Althouse Press, London, ON.
40. van Manen M. (1997) From meaning to method. Qualitative Health Research 7, 345-369.
41. Marino R., Weinman M.L. & Soudelier K. (2001) Social work intervention and failure to thrive in infants and children. Health and Social Work 26, 90-97.
42. Mitchell W., Gorrell R. & Greenberg R. (1980) Failure to thrive: a study in a primary care setting. Pediatrics 65, 971-977.
43. Oates K. (1984) Child abuse and nonorganic failure to thrive: similarities and differences in parents. Australian Pediatric Journal 20, 177-180.
44. Oates K. (1986) Child Abuse and Neglect: What Happens Eventually. Brunner/Mazel, New York.
45. Oates K., Peacock A. & Forrest D. (1985) Long-term effects of nonorganic failure to thrive. Pediatrics 75, 36-40.
46. Patterson J. & Blum R.W. (1996) Risk and resilience among children and youth with disabilities. Archives of Pediatric Adolescent Medicine 150, 692-698.
47. Pieranunzi V.R. (1997) The lived experience of power and powerlessness in psychiatric nursing: a Heideggerian hermeneutic analysis. Archives of Psychiatric Nursing 11, 155-162.
48. Polit D.F. & Hungler B.P. (1995) Nursing Research: Principles and Methods, 5th edn. J. B. Lippincott, Philadelphia.
49. Ray L.D. & Ritchie J.A. (1993) Caring for chronically ill children at home: factors that influence parents' coping. Journal of Pediatric Nursing 8, 217-225.
50. Raynor P., Rudolf M.C.J., Cooper K., Marchant P. & Cottrell D. (1999) A randomised controlled trial of specialist health visitor intervention for failure to thrive. Archives of Disease in Childhood 80, 500-506.
51. Reifsnider E. (1995) The use of human ecology and epidemiology in nonorganic failure to thrive. Public Health Nursing 12, 262-268.
52. Reifsnider E. (1998) Follow-up study of children with growth deficiency. Pediatric Nursing 20, 14-29.
53. Roberts M. & Maddux J. (1982) A psychosocial conceptualization of nonorganic failure to thrive. Journal of Clinical Child Psychology 11, 216-226.
54. Robinson J.R., Drotar D. & Boutry M. (2001) Problem-solving abilities among mothers of infants with failure to thrive. Journal of Pediatric Psychology 26, 21-32.
55. Steele S. (1986) Nonorganic failure to thrive: a pediatric social illness. Issues in Comprehensive Pediatric Nursing 9, 47-58.
56. Streubert H.J. & Carpenter D.R. (1999) Qualitative Research in Nursing: Advancing the Humanistic Imperative, 2nd edn. Lippincott, Philadelphia.
57. Sweeney J.K. & Bascom B.B. (1995) Motor development and self-stimulatory movement in institutionalized Romanian children. Pediatric Physical Therapy 7, 124-132.
58. Thomlinson E.H. (1990) A pilot study of the implementation of a coordinated multidisciplinary program to guide case finding and intervention with children who fail to thrive. Unpublished Master's Thesis, University of Manitoba, Winnipeg, Manitoba.
59. Thorne S.E., Kirkham S.R. & MacDonald-Emes J. (1997) Interpretive description: a noncategorical qualitative alternative for developing nursing knowledge. Research in Nursing and Health 20, 169-177.
60. Tomlinson P.S., Bryan A.A. & Esau A.L. (1996) Family centered intrapartum care: revisiting an old concept. Journal of Gynecologic and Neonatal Nursing (JOGNN) 25, 331-337.
61. Wright C. (2000) Identification and management of failure to thrive: a community perspective. Archives of Disease in Childhood 82, 5-9.
62. Zenel J. (1997) Failure to thrive: a general pediatrician's perspective. Pediatrics in Review 18, 371-378.