Dementia in the community: Challenges for primary care development

Reviews in Clinical Gerontology

Volumn 12, Issue 3, 2002, Pages 243-252

  Iliffe, Steve ^a,c   Manthorpe, Jill ^b  

^a ROYAL FREE AND UNIVERSITY COLLEGE MEDICAL SCHOOL   (United Kingdom)

^b UNIVERSITY OF HULL   (United Kingdom)

^c Royal Free Campus ^*  (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

AGING; DEMENTIA; DOCTOR PATIENT RELATION; EARLY DIAGNOSIS; GENERAL PRACTICE; HEALTH SERVICE; HUMAN; PATHOGENESIS; PATIENT EDUCATION; PRACTICE GUIDELINE; PRIMARY MEDICAL CARE; REVIEW;

EID: 0036706075     PISSN: 09592598     EISSN: None     Source Type: Journal    
DOI: 10.1017/S0959259802012376     Document Type: Review

References (114)

1. Hofman A, Rocca WA, Brayne C et al. The prevalence of dementia in Europe: a collaborative study of 1980/1990 findings. Eurodem Prevalence Group. Int J Epidemiol 1991; 20: 736-48.
2. Longley M, Warner M. Alzheimer's disease: an introduction to the issues In: Warner M, Furnish S, Longley M, Lawlor B ed. Alzheimer's disease: policy and practice across Europe. Oxford: Radcliffe Medical Press, 2002.
3. Audit Commission. Forget me not. London: Audit Commission, 2000.
4. Gray A, Fenn P. Alzheimer's disease: the burden of the illness in England. Health Trends 1993; 25: 31-37.
5. Wimo A, Ljunggren G, Winblad B. Costs of dementia and dementia care: a review. Int J Geriatr Psychiatry 1997; 12: 841-56.
6. Bosanquet N, May J, Johnson N. Alzheimer's disease in the United Kingdom: burden of disease and future care. London: Imperial College, 1998.
7. Masters C, Beyreuther K. Alzheimer's disease: science, medicine and the future. BMJ 1998; 316: 446-48.
8. Levin E, Sinclair I, Gorbach P. Families, confusion and old age. Aldershot: Gower, 1989.
9. Schulz R, O'Brien AT, Bookwala J, Fleisner K. Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates and causes. Gerontologist 1995; 35: 771-91.
10. Briggs R. Comment: Alzheimer's disease - your views. Geriatr Med 1993; 23: 401.
11. Mittelman MS, Ferris SH, Shulman E, Steinberg G, Levin B. A family intervention to delay nursing home placement of patients with Alzheimer's disease. JAMA 1996; 276: 1725-31.
12. McNamee P, Bond J, Buck D. Costs of dementia in England & Wales in the 21st century. Br J Psychiatry 2001; 179: 261-66.
13. National Institute for Clinical Excellence Guidance on the use of donepezil, rivastgmine and galantamine for the treatment of Alzheimer's disease. Technology Appraisal Guidance 19. London: NICE, 2001.
14. O'Connor D, Pollitt P, Hyde J, Reiss B, Roth M. Do general practitioners miss dementia in elderly patients? BMJ 1988; 297: 1107-10.
15. Iliffe S, Haines A, Gallivan S et al. Screening for cognitive impairment using the Mini-Mental State Examination. BJGP 1990; 40: 277-79.
16. Dartigues JF, Helmer C, Dubois B et al. Alzheimer's disease: a public health problem: yes, but a priority? Rev Neurol 2002; 158: 311-315.
17. Valcour V, Masaki K, Curb J, Blanchette P. The detection of dementia in the primary care setting. Arch Int Medicine 2000; 160: 2964-68.
18. Rubin SM, Glasser ML, Werckle MA. The examination of physicians' awareness of dementing disorders. J Am Geriat Soc 1987; 35: 1051-58.
19. Ineichen B. Managing demented old people in the community: a review. Fam Practice 1994; 11: 210-15.
20. Brodaty H, Howarth GC, Mant A, Kurrle SE. General practice and dementia: a national survey of Australian GPs. Med J Austral 1994; 160: 10-14.
21. Alzheimer's Society. Managing dementia in the community, second edition. London: Alzheimer's Disease Society, 2001.
22. De Lepeleire J, Heyrman J. Diagnosis and management of dementia in primary care at an early stage: the need for a new concept and an adapted structure. Theor Med Bioethics 1999; 20: 215-28.
23. Bair B. Frequently missed diagnosis in geriatric psychiatry. In: Tomb D ed. Psych Clin North Am. 1998; 21: 941-72.
24. Pollitt P. Dementia in old age: an anthropological perspective. Psychol Med 1996; 26: 1061-74.
25. Antonelli Incalzi R, Marra C, Gemma A, Capparella O, Carbonin PU. Unrecognised dementia; sociodemographic correlates. Aging (Milano) 1992; 4: 327-32.
26. Downs M, Cook A, Rae C, Collins K. Caring for patients with dementia: the GP perspective. Aging Ment Health 2000; 4: 301-04.
27. Vassilas CA, Donaldson J. Telling the truth: what do general practitioners say to patients with dementia or terminal cancer? BJGP 1998; 48: 1081-82.
28. Wolff LE. Do general practitioners and old age psychiatrists differ in their attitudes to dementia? Int J Geriatr Psychiatry 1994; 10: 63-69.
29. Glosser G, Wexler D, Balmelli M. Physicians' and families' perspectives on the medical management of dementia. J Am Geriatr Soc 1985; 33: 383-91.
30. van Hout H, Vernooij-Dassen M, Bakker K, Blom M, Grol R. General practitioners on dementia: tasks, practices and obstacles. Patient Ed Couns 2000; 39: 219-25.
31. De Lepeleire J, Heyrman J, Baro B, Buntix F, Lausy C. How do general practitioners diagnose dementia? Family Practice 1994; 11: 148-52.
32. Morgan D, Zhao P. The doctor-caregiver relationship: managing the care of family members with Alzheimer's Disease. Qual Health Res 1993; 3: 133-164.
33. Haley WE, Clair JM, Salusberry K. Family caregiver satisfaction with the medical care of their demented relatives. Gerontologist 1992; 32: 219-26.
34. Chenoweth B, Spencer B. Dementia: the experience of family caregivers. Gerontologist 1986; 26: 267-72.
35. Eefsting JA, Boersma F, Van den Brink W, Van Tilburg W. Differences in the prevalence of dementia based on community survey and general practitioner recognition. Psychol Med 1996; 26: 1223-30.
36. Iliffe S, Walters K, Rait G. Shortcomings in the diagnosis and management of dementia in primary care: towards an educational strategy. Aging Ment Health 2000; 4: 286-91.
37. Rosen CS, Chow HC, Greenbaum MA et al. How well are clinicians following dementia practice guidelines? Alz Dis Assoc Disord 2002; 16: 15-23.
38. Aupperle P, Coyne C. Primary vs subspeciality care - a structured follow-up of dementia patients and their caregivers. Am J Geriatr Psychiatry 2000; 8: 167-70.
39. Downs M, Iliffe S, Turner S et al. How can we improve GPs' response to dementia? Dementia Care 2002; 10: 18-19.
40. van Hout H. Diagnosing dementia: evaluation of the clinical practice of general practitioners and a memory clinic. University of Nijmegen, 1999.
41. Cody M, Beck C, Shue VM, Pope S. Reported practices of primary care physicians in the diagnosis and management of dementia. Aging Mental Health 2002; 6: 72-76.
42. van Hout H, Vernooji-Dassen M, Poels P, Hoefnagels W, Grol R. Applicability of diagnostic recommendations on dementia in family practice. Int J Quality Health Care 2001; 13: 127-33.
43. Olafsdottir M, Foldevi M, Marcusson J. Dementia in primary care: why the low detection rate? Scand J Primary Health Care 2001; 19: 194-98.
44. Wright J, Ball C, Coleman P. Collaboration in care. Mitcham: Age Concern England, 1988.
45. Ineichen B. Senile dementia: policy and services. London: Croom Helm, 1989.
46. Nolan M, Grant G, Keady J. Understanding family care. Buckingham: Open University Press, 1996.
47. Fortinsky RH. How linked are physicians to community support services for their patients with dementia? Applied Gerontol 1998; 17: 480-98.
48. Iliffe S, Downs M, Eden A, Rae C. The diagnosis and management of dementia in primary care: development, implementation and evaluation of a national training programme. Aging Mental Health 1999; 3: 129-35.
49. Department of Health. National Service Framework for Older People. London: DOH, 2001.
50. Downs M. The role of general practice and the primary care team in dementia diagnosis and management. Int J Geriatr Psychiatry 1996; 11: 937-42.
51. O'Brien J, Robinson L, Fairbairn A. Proposed shared care protocol between primary and secondary care for the ongoing management of those on anti-dementia medication. Primary Care Psychiatry 2001; 7: 111-13.
52. Patterson C, Gass D. Screening for cognitive impairment and dementia in the elderly. Can J Neurol Sciences 2001; 28: S42-S51.
53. Holzer C, Warshaw G. Clues to early Alzheimer dementia in the outpatient setting. Arch Fam Med 2000; 19: 1066-70.
54. Gillam S, Eversley J, Snell J, Wallace P. Building bridges: the future of GP education - developing partnerships with the service. London: King's Fund, 1999.
55. Grant J, Stanton F, Flood S, Mack J, Waring C. An evaluation of educational needs and provision for doctors within three years of completion of training. London: Joint Centre for Education in Medicine, 1998.
56. Willis SL, Dubin SS eds. Maintaining professional competence. San Francisco: Jossey Bass, 1990.
57. Knowles MS. The modern practice of adult education: from pedagogy to andragogy, second edition. New York: Cambridge Books, 1980.
58. Nowlem PM. A new approach to continuing education for business and the professions. New York: Macmillan, 1988.
59. Harden RM, Laidlaw JM. Effective continuing education: the CRISIS criteria. Med Educ 1992; 26: 408-22.
60. Kolb DA. Experiential learning: experience as the source of learning and development. Englewood Cliffs: Prentice Hall, 1984.
61. Brookfield SD. Understanding and facilitating adult learning. Buckingham: Open University Press, 1986.
62. Cervero RM. Effective continuing education for professionals. San Francisco: Jossey Bass, 1988.
63. Feltovitch PJ, Barrow HS. Issues of generality in medical problem solving. In: Schmidt HG, De Volder ML eds. Tutorials in problem-based learning. Assen: Van Gorcum 1984, 128-42.
64. NHS Centre for Reviews and Dissemination. Effective health care: Getting evidence into practice. 1999; Volume 5 (1).
65. Schon D. Educating the reflective practitioner. San Francisco: Jossey Bass, 1987.
66. Grant J, Stanton F. The effectiveness of continuing professional development. Edinburgh: The Association for the Study of Medical Education, 2000.
67. Durno D, Gill M. Survey of general practitioners' views on postgraduate education in north east Scotland. J Roy Coll Gen Pract 1974; 24; 648-54.
68. Reedy B. General practitioners and postgraduate education in the northern region: occasional paper 9. London: J Roy Coll Gen Pract, 1979.
69. Bayley J. Iris: a memoir. London: Duckworth, 2000.
70. Grant L. Remind me who I am again. London: Granta, 1998.
71. Appignanesi L. Losing the dead. London: Chatto & Windus, 1999.
72. Forster M. Have the men had enough? Harmondsworth, Penguin, 1990.
73. Kraft FA. Fading: one family's journey with a woman silenced by Alzheimer's disease. Detroit Lakes, MN: BL Publications, 2000.
74. Baker Spohr B, Bullard J. Catch a falling star: living with Alzheimer's. Seattle: Storm Peak Press, 1995.
75. Thompson C, Spilsbury K. Support for people with Alzheimer's type dementia (Cochrane Review). In: The Cochrane Library, Issue 3, 2001. Oxford: Update Software.
76. HM Government. Carers' National Strategy. London: HMSO, 1999.
77. Waldemar G, Dubois B, Emre M et al. Diagnosis and management of Alzheimer's disease and other disorders associated with dementia: the role of neurologists in Europe. Eur J Neurol 200; 7: 133-44.
78. New Zealand Guidelines Group. Guidelines for the support and management of people with dementia, 1998.
79. Donaldson C, Tarrier N, Burns A. The impact of the symptoms of dementia on caregivers. Br J Psychiatry 1997; 170: 62-68.
80. Schneider J, Murray J, Banerjee S, Mann A. EUROCARE: a cross-national study of co-resident spouse carers for people with Alzheimer's disease: 1. Factors associated with carer burden. Int J Geriatr Psychiatry 1999; 14: 651-61.
81. Levin E, Moriarty J, Gorbach P. Better for the break. London: HMSO, 1994.
82. Livingston G, Manela M, Katona C. Depression and other psychiatric morbidity in carers of elderly people living at home. BMJ 1996; 312: 153-56.
83. Philp I, McKee KJ, Meldrum P et al. Community care for demented and non-demented elderly people: a comparison study of financial burden, service use, and unmet needs in family supporters. BMJ 1995; 310: 1503-06.
84. Murray J, Banerjee S, Schneider J et al. A longitudinal study of carer burden and comprehensive costs in dementia. Unpublished report to Department of Health, 2001.
85. Briggs K, Askham J. The needs of people with dementia and those who care for them: A review of the literature. London: Alzheimer's Society, 1999.
86. Milne A, Hatzidimitriadou E, Chryssanthopulou C, Owen T. Caring in later life: reviewing the role of older carers. London: Help the Aged, 2001.
87. Twigg J, Atkin K. Carers: perceived policy and practice in informal care. Buckingham: Open University Press, 1994.
88. Wilkinson H ed. The perspectives of people with dementia. London: Jessica Kingsley, 2002.
89. Sterin GJ. Essay on a word: a lived experience of Alzheimer's disease. Dementia 2002; 1: 7-10.
90. Prattt R, Wilkinson H. Tell me the truth: the effect of being told the diagnosis of dementia from the perspective of the person with dementia. London: Mental Health Foundation, 2001.
91. Moriarty J, Webb S. Part of their lives: community care for older people with dementia. Bristol: Policy Press, 2000.
92. Jha A, Tabet N, Orrell M. To tell or not to tell - comparison of older patients' reaction to their diagnosis of dementia and depression. Int J Geriatr Psychiatry. 2001; 16: 879-85.
93. Sullivan K, O'Conor F. Should a diagnosis of dementia be disclosed? Aging Mental Health 2001; 5: 340-48.
94. Smith A, Beattie B. Disclosing a diagnosis of Alzheimer's disease: patient and family experiences. Can J Neurol Sciences 2001; 28: S67-S71.
95. Husband H. Diagnostic disclosure in dementia: an opportunity for intervention? Int J Geriatr Psychiatry 2000; 15: 544-47.
96. Litherland R. Involving people with dementia. Alzheimer's Nederland, Maastricht, 4 June 2002.
97. Clarke CL, Heyman B. Risk management for people with dementia. In: Heyman B ed. Risk, health and health care. London: Arnold, 1998.
98. Douglas M. Risk and blame: Essays in cultural theory. London: Routledge, 1994.
99. Alaszewski A. Health and welfare: managing risks in late modern society. In: Alaszewski A, Harrison L, Manthorpe J eds. Risk, health and welfare. Buckingham: Open University Press, 1998.
100. Kitwood T, Bredon K. A new approach to the evaluation of dementia care. J Adv Health Nurs Care 1992; 1: 41-60.
101. Killick J. You are words: dementia poems. London: Hawker Publications, 1997.
102. Goldsmith M. Hearing the voice of people with dementia: opportunities and obstacles. London: Jessica Kingsley, 1996.
103. Allan K. Communication and consultation: exploring ways for staff to involve people with dementia in developing services. Bristol: Policy Press, 2001.
104. Bamford C, Bruce E. Defining the outcomes of community care: the perspective of older people with dementia and their carers. Ageing Society 2000; 20: 543-70.
105. Gwyther L. The perspective of the person with Alzheimer's disease: which outcomes matter in early to middle stages of dementia? Alz Dis Relat Disord 1997; 11: 18-24.
106. McClatchley T, Means R, Morbey H. Housing adaptations and improvements for people with dementia: developing the role of home improvement agencies. Bristol: Univ. West of England, 2001.
107. Marshall M ed. A guide to using technology within dementia care: social and technological response to meeting the needs of individuals with dementia and their carers (ASTRID). London: Hawker Publications, 2000.
108. Cooney C, Howard R. Abuse of patients with dementia by their carers: out of sight but not out of mind, Int J Geriatric Psychiatry 1995; 10: 735-41.
109. Richardson B, Kitchen G, Livingston G. The effect of education on knowledge and management of elder abuse: a randomised controlled trial. Age Ageing 2002; 31: 335-41.
110. Daker-White G, Beattie A, Means R, Gilliard J. Serving the needs of marginalized groups in dementia care: younger people and minority ethnic groups. Bristol: Univ. West of England, 2002.
111. Hinton L. Improving care for ethnic minority elderly and their family caregivers across the spectrum of dementia severity. Alz Dis Assoc Disord 2002; 16: 550-55.
112. Royal College of Psychiatry. Psychiatric services for black and ethnic minority elders. Council Report CR103. London: RCP, 2002.
113. Rait G, Iliffe S. Ethnicity, ageing and health. In: Kai J ed. Ethnicity and health. Oxford: Oxford University Press (forthcoming).
114. Faculty of Old Age Psychiatry. Forgetful but not forgotten: assessment by a specialist service. London: Royal College of Psychiatry, 2001.