Parents' Views of their Children's Participation in Phase I Oncology Clinical Trials

Journal of Pediatric Oncology Nursing

Volumn 19, Issue 4, 2002, Pages 114-121

  Deatrick, Janet A ^a   Angst, Denise B ^b   Moore, Carol ^c  

^a UNIVERSITY OF PENNSYLVANIA SCHOOL OF NURSING   (United States)

^b Lutheran General Chzldren's Hospztal   (United States)

^c BLOOMSBURG UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CHILD PARENT RELATION; COMPARATIVE STUDY; CROSS-SECTIONAL STUDY; DECISION MAKING; FEMALE; HUMAN; HUMAN RELATION; MALE; NEOPLASM; NURSE ATTITUDE; ONCOLOGY; PARENT; PATIENT PARTICIPATION; PATIENT SELECTION; PHASE 1 CLINICAL TRIAL; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; STANDARD; UNITED STATES;

ADOLESCENT; ADULT; CHILD; CHILD, PRESCHOOL; CLINICAL TRIALS, PHASE I; CROSS-SECTIONAL STUDIES; DECISION MAKING; FEMALE; HUMANS; MALE; MEDICAL ONCOLOGY; NEOPLASMS; NURSE'S ROLE; PARENT-CHILD RELATIONS; PARENTS; PATIENT PARTICIPATION; PATIENT SELECTION; PROFESSIONAL-FAMILY RELATIONS; UNITED STATES;

EID: 0036633949     PISSN: 10434542     EISSN: None     Source Type: Journal    
DOI: 10.1177/104345420201900402     Document Type: Article

References (30)

1. Adamson, P.C., & Starr, S.E. (2001). Pediatric clinical trials: Design and performance. Research and Practice, 1(1), 41-47.
2. American Society of Clinical Oncology. (1997 ). Critical role of Phase I clinical trials in cancer treatment. Journal of Clinical Oncology, 15(2), 853-859.
3. Broome, M.E. (2001a). Response: A different type of classroom-on leading and learning. Journal of Family Nursing, 7(7), 214-218.
4. Broome, M.E., Richards, D.J., & Hall, J.M. (2001b). Children in research: The experience of ill children and adolescents. Journal of Family Nursing, 7(1), 32-49.
5. Denger, L. (1998). Preferences to participate in treatment decision-making: The adult model. Journal of Pediatric Oncology Nurszng, 15(3), 3-9.
6. Eisenhauer, E.A., O'Dwyer, P.J., Christian, M., & Humphrey. ( 2000). Phase I clinical trial design in cancer drug development. Journal of Clinical Oncology, 18(3), 684-692.
7. Estlin, E.J., Cotterill, S., Pratt, C.B., Pearson, A.D.J., & Bernstein, M. (2000). Phase I trials in pediatric oncology: Perceptions of pediatricians from the United Kingdom Children's Cancer Study Group and the Pediatric Oncology Group. Journal of Clinical Oncology, 18(9), 1900-1905.
8. Hall, J.M., Stevens, P.E., & Pletsch, P.K. (2001). Team research using qualitative methods: Investigatmg children's involvement in clinical research. Journal of Famaly Nursing, 7(1), 7-31.
9. Hinds, P., Drew, D., DeSwart-Wallis, J., Gibson, F., Hollen, P., Hunt, J. et al. (1998a). Consensus statement: Decision making in pediatric oncology. Journal of Pediatric Oncology Nursing, 15(3, suppl 1), 24.
10. Hinds, P., Oakes, L., & Furman, W. (2001a). End of life decision-making in pediatric oncology. In B. Ferrell & N. Coyle (Eds.). Oxford textbook of palliative care. New York: Oxford University Press.
11. Hinds, P., Oakes, L., Furman, W., Foppiano, P., Olson, M.S., Quargnenti, A., et al. (1997a). Decision making by parents and healthcare professionals when considering continued care for pediatric patients with cancer. Oncology Nursing Forum, 24(9), 1523-1528.
12. Hinds, P., Oakes, L., Furman, W., Quargnenti, A., Olson, M.S., Foppiano, P., & Srivastava, D.K. (2001b). End-of-life decision making by adolescents, parents, and healthcare providers in pediatric oncology. Cancer Nursing, 24(2), 122-136.
13. Hinds, P., Oakes, L., Quargnenti, A., Furman, W., Sandlund, J., Bowman, L., et al. (1998c). Treatment decision making for pediatric oncology patients by their parents and healthcare professionals. Funded by the Association of Critical Care Nurses.
14. Hinds, P., Oakes, L., Quargnenti, A., Furman, W., Sandlund, J.T., Bowman, L., et al. (1998b). Challenges and issues in conducting descriptive decision-making in pediatric oncology : A tale of two studies. Journal of Pediatric Oncology Nursing, 15(3, suppl 1), 10-17.
15. Hinds, P., Votel, R., & Clarke-Steffen, L. (1997b). The possibilities and pitfalls of doing a secondary analysis of a qualitative data set. Qualitative Health Research, 7(3), 408-424.
16. Kirschbaum, M. (1996) Life support decisions for chil dren: What do parents value? Advances in Nursing Science, 19(1), 51-71.
17. Knafl, K., & Deatrick, J. (1990). Family management style: Concept analysis and development. Journal ofPediatric Nursing, 5(1), 209-214.
18. Kodish, E., Stocking, C., Ratain, M.J., Kohrman, A., & Siegler, M. (1992). Ethical issues in phase I oncology research : A comparison of investigators and institutional review board chairpersons. Journal of clinical Oncology, 10(11), 1810-1816.
19. Liaschenko, J. & Underwood, S.M. (2001). Children in research: Fathers in cancer research-meanings and reasons for participation. Journal of Family Nursing, 7(1), 71-91.
20. Nelson, R.M., & Rushton, C.H. (2001). Commentary on special issue on informed consent with families of ill children : Understanding devastation and difference in informed permission and assent. Journal of Family Nursing, 7(1), 208-213.
21. Norton, S., & Bowers, B. (2001). Working toward a consensus : Providers' strategies to shift patients from curative to palliative treatment choices. Research in Nursing & Health, 24, 258-269.
22. Pierce, P., & Hicks, F. (2001). Patient decision-making behavior: An emerging paradigm for nursing science. Nursing Research, 50(5), 267-274.
23. Pike-Grimm, K., Degner, L., Small, A., & Mueller, B. (1999). Preferences for participation in treatment decision-making and information needs of parents of children with cancer: A pilot study. Journal of Pediatric Oncology Nurszng, 16(1), 13-24.
24. Pletsch, P.M., & Stevens, P.E. (2001). Children in research : Informed consent and critical factors affecting mothers. Journal of Family Nursing, 7(1), 50-70.
25. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. (1983). Deciding to forego life-sustaining treatment Washington, DC: U.S. Government Printing Office.
26. Rushton, C. (1994). Ethical decision-making: The role of parents. Capsules and Comments in Pediatric Nursing, 1(2), 1-10.
27. Santacroce, S., Deatrick,j., & Ledlie, S. (May/June 2000) Secondary analysis of qualitative data: A means of collaboration in HIV-related research. Journal of the Association of Nurses in AIDS Care, 11(3), 99-104.
28. Smith, M., Bernstein, M., Bleyer, W., Borsi, J., Ho, P., Lewis, I., et al. (1998). Conduct of phase I trials in children with cancer. Journal of Clanical Oncology, 16(3), 966-978.
29. Snethen, J.A., & Broome, M.E. (2001). Children in research: The experiences of siblings in research is a family affair. Journal of Family Nursing, 7(1), 92-110.
30. Wiley, F., Ruccione, K., Moore, I., McGuire-Cullen, P., Fergusson, J., Waskerwitz, M., et al. (1999). Parents' perceptions of randomized pediatric clinical trials. Cancer Practice, 7(5), 248-256.