Spirituality and meaning: A qualitative inquiry with caregivers of Alzheimer's disease

Journal of Family Psychotherapy

Volumn 13, Issue 1-2, 2002, Pages 87-108

  Smith, Angela L ^a   Harkness, Jennifer ^a  

^a EAST CAROLINA UNIVERSITY   (United States)

Author keywords

Alzheimer's; Biopsychosocial; Caregiver; Family therapy; Meaning; Religiosity; Resources; Spirituality

Indexed keywords

ALZHEIMER DISEASE; ARTICLE; CAREGIVER; CHRONIC DISEASE; CLINICAL ARTICLE; FAMILY THERAPY; HEALTH CARE; HEALTH SERVICE; HUMAN; QUALITATIVE ANALYSIS; RELIGION; SOCIAL PSYCHOLOGY; STRESS; WELLBEING;

EID: 0036624705     PISSN: 08975353     EISSN: None     Source Type: Journal    
DOI: 10.1300/J085v13n01_05     Document Type: Article

References (39)

1. Alzheimer's Disease and Related Disorders Association, Inc. (1996). Understanding Difficult Behaviors. Ypsilanti, MI: Alzheimer's Education Program.
2. Alzheimer's Disease and Related Disorders Association, Inc. (1994). Alzheimer's Disease: Statistics. 919 North Michigan Avenue, Suite 1000, Chicago, IL 60611-1676.
3. Aponte, H. J. (2000, November). Spirituality Sensitive Therapy. Paper presented at the meeting of the American Association for Marriage and Family Therapy, Denver, CO.
4. Babbie, E. (1983). The Practice of Social Research (3rd Ed.). Belmont, CA: Wadsworth.
5. Barnes, R. F., Raskind, M. A., Scott, M., & Murphy, C. (1981). Problems of families caring for Alzheimer's patients: Use of a support group. Journal of the American Geriatrics Society, 29, 80-85.
6. Bernstein, A. (1994, Summer). Profiles 1993 Diversity Award Honorable Mention Frieda Hopkins-Outlaw and Cary Wright. American Family Therapy Academy Newsletter, 45-48.
7. Boscolo, L., Cecchin, G., Hoffman, L., & Penn, P. (1987). Milan systemic family therapy. New York: Basic Books.
8. Brenton, M. A., & Larson, L. N. (1995). The gift of peace of mind: For yourself, for your family. A Step-by-step Guide to Preparing Advance Directive Documents. Des Moines, IA: Drake Center for Health Issues.
9. Brown, D. R., & Gray, L. E. (1994). Religious involvement and health-status among African-American males. Journal of the National Medical Association, 86, 825-831.
10. Chang, B. H., Noonan, A. E., & Tennstedt, S. L. (1998). The role of religion/spirituality in coping with caregiver for disabled elders. Gerontologist, 38, 463-470.
11. Dosser, D., Smith, A. L., Markowski, M., & Cain, H. (in press). Including families' spiritual beliefs and their faith community in systems of care. Journal of Family Social Work.
12. Engel, G. L. (1980). The clinical application of the biopsychosocial model. American Journal of Psychiatry, 137, 535-544.
13. Family Caregivers Alliance (1990-1992). California's Caregiver Resource Centers, 425 Bush St., Suite 500, San Francisco, CA 94108.
14. Gallagher-Thompson, D., & DeVries, H. M. (1994). 'Coping with frustration' classes: Development and preliminary outcomes with women who care for relatives with dementia. The Gerontologist, 34, 548-552.
15. George, L. K., & Gwyther, L. P. (1986). Caregiver well-being: A multidimensional examination of family caregivers of demented adults. The Gerontologist, 26, 253-259.
16. Gwyther, L. P. (1985). Care of Alzheimer's patients: A manual for nursing home staff (pp. 25-27). American Health Care Association and ADRDA, Inc.
17. Harkness, J. L. (1997). Later-life marriage, chronic illness, and spouse-caregiver functioning. Dissertation Abstracts International, 58(6-B), 3339.
18. Helm, H. M., Hays, J. C., Flint, E. P., Koenig, H. G., & Blazer, D. G. (2000). Does private religious activity prolong survival? A six-year follow-up study of 3,851 older adults. Journals of Gerontology Series A-Biological Sciences and Medical Sciences, 55, 400-405.
19. Hooker, K., Monahan, D. J., Bowman, S. R., Frazier, L. D., & Shifren, K. (1998). Personality counts for a lot: Predictors of mental and physical health of spouse caregivers in two disease groups. Journal of Gerontology: Series B: Psychological Sciences and Social Sciences, 53B, 73-85.
20. Lofland, J., & Lofland, L. H. (1984). Analyzing social settings. Belmont, CA: Wadsworth.
21. Mace, N. L., & Rabins, P. V. (1991). The 36-hour Day (Revised Ed.). Baltimore, MD: Johns Hopkins University Press.
22. Mace, N. L., & Rabins, P. V. (1981). The 36-hour Day. Baltimore, MD: Johns Hopkins University Press.
23. Maltby, J., Lewis, C. A., & Day, L. (1999). Religious orientation and psychological well-being: The role of the frequency of personal prayer. British Journal of Health Psychology, 4, 363-378.
24. Max, W. (1993). The economic impact of Alzheimer's disease. Neurology, 43, 6-10.
25. McDaniel, S., Hepworth, J., & Doherty, W. (1992). Medical Family Therapy: A Biopsychosocial Approach to Families with Health Problems. New York, NY: Basic Books.
26. Morycz, R. (1985). Caregiving strain and desire to institutionalize family members with Alzheimer's disease. Research on Aging, 7, 329-361.
27. Nadeau, J. W. (1998). Families making sense of death. Thousand Oaks, CA: Sage Publications.
28. Narrow, W., Regier, D. A., Rae, D., Manderscheid, R. N., & Locke, B. Z. (1993). Use of services by persons with mental and addictive disorders: Findings from the National Institute of Mental Health Epidemiologic Catchment Area Program. Archives of General Psychiatry, 50, 95-107.
29. Rabins, P.V., Mace, N.L., & Lucas, M.J. (1982). The impact of dementia on the family. Journal of the American Medical Association, 248, 333-335.
30. Ross, W., Petrovitch, H., & White, L. R. (1996-1997). Update on dementia. Generations (Winter), 22-27.
31. Schultz, R., Biegel, D., Morycz, R., & Visintainer, P. (1989). Current psychological paradigms for understanding caregiver well being and burden within the family context. In E. Light & B. Lebowitz (Eds.), Alzheimer's Disease Treatment and Family Stress: Directions for Research (pp. 106-127). Washington, DC: U.S. Government Printing Office.
32. Schultz, R., & Williamson, G. M. (1991). A 2-year longitudinal study of depression among Alzheimer's caregivers. Psychology and Aging, 6, 569-578.
33. Schurman, R. A., Kramer, P. D., & Mitchell, J. B. (1985). The hidden mental health network: Treatment of mental illness by nonpsychiatric physicians. Archives of General Psychiatry, 42, 89-94.
34. Smith, A. L. (1999). The forgotten victim: An in-depth look and an overall assessment of Alzheimer's caregivers' needs, struggles, and satisfactions. Dissertation Abstracts International, 60(4-A), 1272.
35. Straw, L. B., O'Bryant, S. L., & Meddaugh, D. L. (1991). Support system participation in spousal caregiving: Alzheimer's disease versus other illness. Journal of Applied Gerontology, 10, 359-371.
36. Theesen, K. A., & Boyd, J. A. (1990). Dementia of the Alzheimer's type: An update. The Consultant Pharmacist, 5, 535-540.
37. Tix, A. P., & Frazier, P. A. (1998). The use of religious coping during stressful life events: Main effects, moderation, and medication. Journal of Consulting and Clinical Psychology, 66(2), 411-422.
38. Wright, L. M., Watson, W. L., & Bell, J. M. (1996). Beliefs: The Heart of Healing in Families and Illness. New York, NY: Basic Books.
39. Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of impaired elderly: Correlates of feelings of burden. The Gerontologist, 20, 649-655.