Creating a context of safety and achievement at school for children who are medically fragile/technology dependent

Advances in Nursing Science

Volumn 24, Issue 3, 2002, Pages 71-84

  Rehm, Roberta S ^a  

^a UNIVERSITY OF NEW MEXICO   (United States)

Author keywords

Chronic condition; Chronic illness; Developmentally disabled; Medically fragile child; Multiple handicaps; School; Technology dependent

Indexed keywords

ARTICLE; CHILD; CHILD ADVOCACY; EDUCATIONAL STATUS; HANDICAPPED CHILD; HUMAN; LEGAL ASPECT; SAFETY; SCHOOL; SELF HELP; STANDARD;

CHILD; CHILD ADVOCACY; DISABLED CHILDREN; EDUCATIONAL STATUS; HUMANS; SAFETY; SCHOOLS; SELF-HELP DEVICES;

EID: 0036514344     PISSN: 01619268     EISSN: None     Source Type: Journal    
DOI: 10.1097/00012272-200203000-00008     Document Type: Article

References (34)

1. Ahmann E, Lierman C. Promoting normal development in technology dependent children: an introduction to the issues. Pediatr Nurs. 1992;18:143-148.
2. Vessey JA, Jackson PL. School and the child with a chronic condition. In: Jackson PL, Vessey JA, eds. Primary Care of the Child with a Chronic Condition. 3rd ed. St. Louis: Mosby; 2000:83-100.
3. Haffner JC, Schurman SJ. The technology-dependent child. Pediatr Clin North Am. 2001;48(3):751-764.
4. O'Brien M. Living in a house of cards: family experiences with long-term childhood technology dependence. J Pediatr Nurs. 2001;16(1):13-22.
5. Kirk S. Families' experiences of caring at home for a technology-dependent child: a review of the literature. Child Care Health Dev. 1998;24(2): 101-114.
6. Newacheck PW, Strickland B, Shonkoff J, et al. An epidemiologic profile of children with special health care needs. Pediatrics. 1998;102(1): 117-123.
7. US Congress. Technology-Dependent Children: Hospital v Home Care - A Technical Memorandum. Washington, DC: Government Printing Office; 1987. OTA-TM-H-38.
8. Fleming J, Challela M, Eland J, et al. Impact on the family of children who are technology dependent and cared for in the home. Pediatr Nurs. 1994;20:379-388.
9. Koenning GM, Todaro AW, Benjamin JE, Curry MR, Spraul GE, Marer MC. Health services delivery to students with special health care needs in Texas public schools. J School Health. 1995;65:119-123.
10. Stein REK, Bauman LJ, Westbrook LE, Coupey SM, Ireys HT. Framework for identifying children who have chronic conditions: the case for a new definition. J Pediatr. 1993;122:342-347.
11. American Academy of Pediatrics. Policy statement: care coordination: integrating health and related systems of care for children with special health care needs (RE9902). Pediatrics. 1999;104(4):978-981.
12. Jackson P. The primary care provider and children with chronic conditions. In: Jackson PL, Vessey JA, eds. Primary Care of the Child with a Chronic Condition. 3rd ed. St. Louis: Mosby; 2000:3-19.
13. Lynch EW, Lewis RB, Murphy DS. Educational services for children with chronic illnesses: perspectives of educators and families. Except Child. 1993;59:210-220.
14. Leonard BJ, Brust JD, Nelson RP. Parental distress: caring for medically fragile children at home. J Pediatr Nurs. 1993;8:22-30.
15. Vessey JA, Jackson PL, Rabin N, McFadden E. School and the child with a chronic condition. In: Jackson PL, Vessey JA, eds. Primary Care of the Child with a Chronic Condition. St. Louis: Mosby; 1996:72-85.
16. Vessey JA. School services for children with chronic conditions. Pediatr Nurs. 1997;23:507-510.
17. Izen CL, Brown F. Education and treatment needs of students with profound, multiply handicapping, and medically fragile conditions: a survey of teachers' perceptions. J Assoc Persons Severe Handicaps. 1991;16(2):94-103.
18. Krier JJ. Involvement of educational staff in the health care of medically fragile children. Pediatr Nurs. 1993; 19:251-254.
19. Katsiyannis A, Yell M. The Supreme Court and school health services: Cedar Rapids v Garret F. Except Child. 2000;6(3):317-326.
20. Missiuna C, Pollock N. Play deprivation in children with physical disabilities: the role of the occupational therapist in preventing secondary disability. Am J Occup Ther. 1991;45:882-888.
21. Rabin NB. School reentry and the child with a chronic illness: the role of the pediatric nurse practitioner. J Pediatr Health Care. 1994;8:227-232.
22. Sexson SB, Madan-Swain A. School reentry for the child with chronic illness. J Learning Disabil. 1993;26: 115-125.
23. Sherman LP, Rosen CD. Development of a preschool program for tracheostomy dependent children. Pediatr Nurs. 1990;16:357-361.
24. Shuster NE. Addressing assistive technology needs in special education. Am J Occup Ther. 1993;47: 993-997.
25. Ylvisaker M, Feeney T, Maher-Maxwell N, Meserve N, Geary PJ, DeLorenzo JP. School reentry following severe traumatic brain injury: guidelines for educational planning. J Head Trauma Rehabil. 1995;10(6): 25-41.
26. Gargiulo RM, Suder LC. Preparing early childhood educators for inclusive programs: a call for professional unification. Early Child Educ J. 1997;25: 137-139.
27. Honig AS. Creating integrated environments for young children with special needs. Early Child Educ J. 1997;25:93-100.
28. Jones HA, Rapport MJK. Research-to-practice in inclusive early childhood education. Teaching Except Child. 1997;30(2):57-61.
29. McCarthy AM, Williams JK, Eidahl L. Children with chronic conditions: educators' views. J Pediatr Health Care. 1996;10:272-279.
30. Palfrey JS, Singer JD, Walker DK, Butler JA. Health and special education: a study of new developments for handicapped children in five metropolitan communities. Public Health Rep. 1986;101:379-388.
31. Rehm RS, Rohr JA. Parents', nurses', and educators' perceptions of risks and benefits of school attendance by children who are medically fragile/ technology-dependent. J Pediatr Nurs. In press.
32. Guba E, Lincoln Y. Competing paradigms in qualitative research. In: Denzin NK, Lincoln YS, eds. Handbook of Qualitative Research. Thousand Oaks: Sage; 1994: 105-117.
33. Schwandt T. Constructivist, interpretivist approaches to human inquiry. In: Denzin NK, Lincoln YS, eds. Handbook of Qualitative Research. Thousand Oaks: Sage; 1994:118-137.
34. Strauss AL. Qualitative Analysis for Social Scientists. Cambridge: Cambridge University Press; 1987.