Experience of prophylaxis treatment in children with severe haemophilia

Haemophilia

Volumn 8, Issue 2, 2002, Pages 76-82

  Yee, Thynn Thynn ^a   Beeton, K ^b   Griffioen, A ^b   Harrington, C ^b   Miners, A ^b   Lee, C A ^b   Brown, S A ^b  

^a ROYAL FREE LONDON NHS FOUNDATION TRUST   (United Kingdom)

^b ROYAL FREE AND UNIVERSITY COLLEGE MEDICAL SCHOOL   (United Kingdom)

Author keywords

Haemophilia; Inhibitor; Joint scores; Port a Cath; Prophylaxis

Indexed keywords

ANTIBIOTIC AGENT; BLOOD CLOTTING FACTOR 7A; BLOOD CLOTTING FACTOR 8 CONCENTRATE; BLOOD CLOTTING FACTOR 9 CONCENTRATE; BLOOD CLOTTING FACTOR CONCENTRATE; BLOOD CLOTTING INHIBITOR; BLOOD CLOTTING FACTOR 8; BLOOD CLOTTING FACTOR 9;

ADOLESCENT; ANAPHYLAXIS; ANXIETY; ARTICLE; CATHETER INFECTION; CHILD; CHILD HOSPITALIZATION; CLINICAL ARTICLE; CLINICAL FEATURE; CONTROLLED STUDY; COST BENEFIT ANALYSIS; COST OF ILLNESS; DISEASE SEVERITY; FAMILY LIFE; FOLLOW UP; HEALTH PROGRAM; HEMARTHROSIS; HEMOPHILIA A; HEMOPHILIA B; HOME CARE; HUMAN; INFANT; INTRAVENOUS CATHETER; MALE; PHYSICAL ACTIVITY; PHYSIOTHERAPY; PRIMARY PREVENTION; PRIORITY JOURNAL; QUALITY OF LIFE; SELF MEDICATION; STATISTICAL ANALYSIS; TREATMENT OUTCOME; VASCULAR ACCESS; VEIN CATHETERIZATION; BACTERIAL INFECTION; CAREGIVER; CATHETERIZATION; DRUG ADMINISTRATION; EDUCATION; HOSPITALIZATION; METHODOLOGY; PRESCHOOL CHILD; RETROSPECTIVE STUDY;

BACTERIAL INFECTIONS; CAREGIVERS; CATHETERIZATION, PERIPHERAL; CHILD; CHILD, PRESCHOOL; DRUG ADMINISTRATION SCHEDULE; FACTOR IX; FACTOR VIII; FOLLOW-UP STUDIES; HEMARTHROSIS; HEMOPHILIA A; HEMOPHILIA B; HOME NURSING; HUMANS; INFANT; MALE; RETROSPECTIVE STUDIES; SEVERITY OF ILLNESS INDEX;

EID: 0036489589     PISSN: 13518216     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2516.2002.00630.x     Document Type: Article

References (22)

1. Ahlberg A. Haemophilia in Sweden. VII: Incidence, treatment and prophylaxis of arthropathy and other musculoskeletal manifestations of haemophilia A and B. Acta Orthopaedica Scand 1965; 77: 6-98.
2. UKHCDO. Clinical Guidelines: Prophylaxis in the Treatment of Haemophilic Boys 1994.
3. Lusher JM. Considerations for recurrent and future management of hemophilia and its complications. Haemophilia 1995; 1: 2-10.
4. Löfqvist T, Nilsson IM, Berntop E, Petterson H. Haemophilia prophylaxis in young patients - a long-term follow-up. J Intern Med 1997; 241: 395-400.
5. Kreuz W, Escuriola-Ettinghausen C, Funk M, Schmidt H, Kornhuber B. When should prophylactic treatment in patients with haemophilia A and B start? The German experience. Haemophilia 1998; 1: 413-7.
6. Van Den Berg HM, Fischer K, Mauser-Bunschoten EP, Beek FJA, Roosendaal G, Van der Bom JG. Long-term outcome of individualized prophylactic treatment of children with severe haemophilia. Br J Haematol 2001; 112: 561-5.
7. UKHCDO. Report on the Annual returns for 1998.
8. Liesner RJ, Khair K, Hann IM. The impact of prophylactic treatment on children with severe haemophilia. Br J Haematol 1996; 92: 973-8.
9. Petterson C. Orthopaedic joint evaluation in haemophilia. In: Nilsson IM, Berntop E eds). Prophylactic Treatment of Haemophilia A and B. Current and Future Perspectives 1994: 35-39.
10. UKHCDO. Guidelines on therapeutic products to treat haemophilia and other hereditary coagulation disorders. Haemophilia 1997; 3: 63-7.
11. Ljung R, Aronis-Vournas S, Kurnik-Auberger K et al. Treatment of children in Europe: a survey of 20 centres in 16 countries. Haemophilia 2000; 6: 619-24.
12. Nilsson IM, Berntop E, Löfqvist T, Petterson H. Twenty-five years' experience of prophylactic treatment in severe haemophilia A and B. J Intern Med 1992; 232: 25-32.
13. Manco-Johnson MJ, Nuss R, Funk S, Murphy J. Joint evaluation instruments for children and adults with haemophilia. Haemophilia 2000; 6: 649-57.
14. Pollman H, Richter H, Ringkamp H, Jurgens H. When are children diagnosed as having severe haemophilia and when do they start to bleed? A 10-year single centre PUP study. Eur J Pediatrics 1999; 158 (Suppl. 3): S166-170.
15. Lusher JM Inhibitors in young boys with haemophilia. Balliere's Clin Haematol 2000; 13: 457-68.
16. McMahon C, Smith J, Lakshmandass G, Smith OP. Right atrial catheters, the way forward to facilitate successful prophylactic treatment regimens in severe haemophilia. Haemophilia 1998; 4: 171 (a).
17. Blanchette VS, Al-Musa A, Staine A-M, Ingram J, Fille RM. Central venous access devises in children with hemophilia: an update. Blood Coagu Fibrinol 1997; 8: S11-S14.
18. Bollard CM, Teague LR, Berry EW, Ockelford PA. The use of central venous catheters (portacaths) in children with haemophilia. Haemophilia 2000; 6: 66-70.
19. Van Den Berg HM, Fischer K, Roosendaal G, Mauser-Bunschoten EP. The use of the Port-A-Cath in children with haemophilia-a review. Haemophilia 1998; 4: 418-20.
20. Yee TT, Williams MD, Hill FGH, Lee CA, Pasi KJ. Absence of inhibitors in previously untreated patients with severe haemophilia A after exposure to a single intermediate purity factor VIII product. Thromb Haemost 1997; 78: 1021-9.
21. Yee TT, Pasi KJ, Lilley PA, Lee CA. Factor VIII inhibitors in haemophiliacs: a single-centre experience over 34 years 1964-97. Br J Haematol 1999; 104: 909-14.
22. Miners AH, Sabin CA, Tolley KH, Lee CA. Primary prophylaxis for individuals with severe haemophilia: how many hospital visits could treatment prevent? J Intern Med 2000; 247: 493-9.