SCOPUS 정보 검색 플랫폼

Pediatrics

Volumn 109, Issue 2 I, 2002, Pages 269-273

Newborn screening program practices in the United States: Notification, research, and consent

(4) Mandl, Kenneth D a Feit, Shlomit b Larson, Cecilia c Kohane, Isaac S a

a BOSTON CHILDREN S HOSPITAL (United States)

b HARVARD MEDICAL SCHOOL (United States)

c New England Newborn Screening Program (United States)

Author keywords

Genetic screening; Medical records; Neonatal screening; Privacy

Indexed keywords

ARTICLE; DATA BASE; FOLLOW UP; GENOMICS; HEALTH CARE POLICY; INFORMED CONSENT; MEDICAL RECORD; MEDICAL RESEARCH; NEWBORN SCREENING; PRIORITY JOURNAL; PRIVACY; PUBLIC HEALTH; TELEPHONE; UNITED STATES;

EMPIRICAL APPROACH; HEALTH CARE AND PUBLIC HEALTH;

COMMUNICABLE DISEASE CONTROL; COMMUNICATION; CONFIDENTIALITY; HUMANS; INFANT, NEWBORN; MANDATORY TESTING; NEONATAL SCREENING; POPULATION SURVEILLANCE; PUBLIC HEALTH PRACTICE; RESEARCH DESIGN; TELEPHONE; THIRD-PARTY CONSENT; UNITED STATES;

EID: 0036164288 PISSN: 00314005 EISSN: None Source Type: Journal
DOI: 10.1542/peds.109.2.269 Document Type: Article

Times cited : (58)

References (13)

1
- 0003829722
- Atlanta, GA: Council of Regional Networks for Genetic Services
- (1999) National Newborn Screening Report - 1995

2
- 15844396182
- Guidelines for the retention, storage, and use of residual dried blood spot samples after newborn screening analysis: Statement of the Council of Regional Networks for Genetic Services
- (1996) Biochem Mol Med , vol.57 , pp. 116-124
- Therrell, B.L.¹ Hannon, W.H.² Pass, K.A.³

3
- 0033844765
- Serving the family from birth to the medical home: A report from the Newborn Screening Task Force convened in Washington DC, May 10-11, 1999
- (2000) Pediatrics , vol.106 , Issue.SUPPL. , pp. 383-427

4
- 0030746725
- Public participation in medical policy-making and the status of consumer autonomy: The example of newborn-screening programs in the United States
- (1997) Am J Public Health , vol.87 , pp. 1280-1288
- Hiller, E.H.¹ Landenburger, G.² Natowicz, M.R.³

5
- 0023936725
- Postrelational database implementation for newborn screening and tracking
- (1988) J Med Syst , vol.12 , pp. 105-113
- Wolfson, M.¹ Wu, M.M.²

6
- 0033785508
- US newborn screening system guidelines II: Follow-up of children, diagnosis, management, and evaluation. Statement of the Council of Regional Networks for Genetic Services (CORN)
- (2000) J Pediatr , vol.137 , Issue.4 SUPPL. , pp. 1-46
- Pass, K.A.¹ Lane, P.A.² Fernhoff, P.M.³

7
- 0035798841
- Public standards and patients' control: How to keep electronic medical records accessible but private
- (2001) BMJ , vol.322 , pp. 283-287
- Mandl, K.D.¹ Szolovits, P.² Kohane, I.S.³

8
- 0033458045
- Neonatal screening: Ethical aspects
- (1999) Acta Paediatr Suppl , vol.88 , pp. 99-103
- Hermeren, G.¹

9
- 0033405722
- Ethical, legal and health economic aspects of neonatal screening
- (1999) Acta Paediatr Suppl , vol.88 , pp. 96-98
- Riis, P.¹

10
- 0028809482
- Informed consent for genetic research on stored tissue samples
- (1995) JAMA , vol.274 , pp. 1786-1792
- Clayton, E.W.¹ Steinberg, K.K.² Khoury, M.J.³

11
- 0030333205
- Replacing personally-identifying information in medical records, the Scrub system
- (1996) Proc AMIA Annu Fall Symp , pp. 333-337
- Sweeney, L.¹

12
- 0031150446
- Weaving technology and policy together to maintain confidentiality
- (1997) J Law Med Ethics , vol.25 , pp. 98-110
- Sweeney, L.¹

13
- 0032498969
- Privacy and medical-records research
- discussion 1077-1078
- (1998) N Engl J Med , vol.338 , pp. 1077
- Sweeney, L.¹

* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.