3. Uses of Evidence in Disability Outcomes and Effectiveness Research

Milbank Quarterly

Volumn 80, Issue 2, 2002, Pages 325-345

  Jette, Alan M ^a   Keysor, Julie J ^b  

^a BOSTON UNIVERSITY   (United States)

^b NONE

Author keywords

[No Author keywords available]

Indexed keywords

DISABLED PERSON; EVIDENCE BASED MEDICINE; HEALTH PROMOTION; HEALTH SERVICES RESEARCH; HUMAN; METHODOLOGY; QUALITY OF LIFE; REVIEW; THEORETICAL MODEL; TREATMENT OUTCOME; UNITED STATES;

DISABLED PERSONS; EVIDENCE-BASED MEDICINE; HEALTH PROMOTION; HEALTH SERVICES RESEARCH; HUMANS; MODELS, THEORETICAL; OUTCOME AND PROCESS ASSESSMENT (HEALTH CARE); QUALITY OF LIFE; UNITED STATES;

EID: 0036052101     PISSN: 0887378X     EISSN: None     Source Type: Journal    
DOI: 10.1111/1468-0009.t01-1-00006     Document Type: Article

References (64)

1. Agency for Health Care Policy and Research (AHCPR). 1999. The Outcome of Outcomes Research at AHCPR: Final Report. Available at http://www.ahcpr.gov/clinic/out2res/ (accessed January 9, 2002).
2. Allaire, S.H. 2001. Update on Work Disability in Rheumatic Diseases. Current Opinion in Rheumatology 13:93-8.
3. Americans with Disabilities Act of 1989. 1989. 104 Stat 327: 101-336, 42 USC 12101 s2 (a) (8).
4. Anderson, C. 1994. Measuring What Works in Health Care. Science 263:1080-3.
5. Andresen, E.M. 2000. Criteria for Assessing the Tools of Disability Outcomes Research. Archives of Physical Medicine and Rehabilitation 81(suppl. 2):S15-20.
6. Andresen, E.M., B. Fouts, J. Romeis, and C. Brownson. 1999. Performance of Health-Related Quality of Life Instruments in a Spinal Cord Injured Population. Archives of Physical Medicine and Rehabilitation 80:877-84.
7. Andresen, E.M., G.W.J. Gravitt, M.E. Aydelotte, and C. A. Podgorski.1999. Limitations of the SF-36 in a Sample of Nursing Home Residents. Age and Aging 28:562-6.
8. Andresen, E.M., D.J. Lollar, and A.R. Meyers. 2000. Disability Outcomes and Research: Why This Supplement, on This Topic, at This Time? Archives of Physical Medicine and Rehabilitation 81(suppl. 2): S1-4.
9. Andresen, E.M., and A.R. Meyers. 2000. Health-Related Quality of Life Outcomes Measures. Archives of Physical Medicine and Rehabilitation 81(suppl. 2):S30-45.
10. Andresen, E.M., B.M. Rothenberg, R. Panzer, P. Katz, and M.P. McDermott. 1998. Selecting a Generic Measure of Health-Related Quality of Life for Use among Older Adults: A Comparison of Candidate Instruments. Evaluation and the Health Professions 21: 244-64.
11. Barnett, D. 1991. Assessment of Quality of Life. American Journal of Cardiology 67:41c-44c.
12. Brazier, J.E., S.J. Walters, J.P. Nicholl, and B. Kohler. 1996. Using the SF-36 and Euroqol on an Elderly Population. Quality of Life Research 5:195-204.
13. Brown, I., R. Renwick, and M. Nagler. 1996. The Centrality of Quality of Life in Health Promotion and Rehabilitation. In Quality of Life in Health Promotion and Rehabilitation: Conceptual Approaches, Issues, and Applications, eds. R. Renwick, I. Brown, and M. Nagler, 3-13. Thousand Oaks, Calif.: Sage Foundation.
14. Brown, M., and W.A. Gordon. 1999. Quality of Life as a Construct in Health and Disability Research. Mount Sinai Journal of Medicine 66:160-9.
15. Brunet, D.G., W.M. Hopman, M.A. Singer, C.M. Edgar, and T.A. MacKenzie. 1996. Measurement of Health-Related Quality of Life in Multiple Sclerosis Patients. Canadian Journal of Neurological Sciences 23:99-103.
16. Campbell, S., M. Roland, and S. Buetow. 2000. Defining Quality of Care. Social Science and Medicine 51:1611-25.
17. Carr, A., P. Thompson, and J. Kirwan. 1996. Quality of Life Measures. British Journal of Rheumatology 35:275-81.
18. Cella, D., and C. Chang. 2000. A Discussion of Item Response Theory and Its Applications in Health Status Assessment. Medical Care 38(9, suppl. II):II66-72.
19. Clancy, C., and J. Eisenberg. 1998. Outcome Research: Measuring the End Results of Health Care. Science 282:245-6.
20. Cohen, M.E., and R.J. Marino. 2000. The Tools of Disability Outcomes Research Functional Status Measures. Archives of Physical Medicine and Rehabilitation 81(suppl. 2):S21-9.
21. DiFabio, R.P., T Choi, J. Soderberg, and C.R. Hansen. 1997. Health-Related Quality of Life for Patients with Progressive Multiple Sclerosis: Influence of Rehabilitation. Physical Therapy 77:1704-16.
22. Dijkers, M.P.J.M., G. Whiteneck, and R. El-Jaroudi. 2000. Measures of Social Outcomes in Disability. Archives of Physical Medicine and Rehabilitation 81(suppl. 2):S63-80.
23. Dupuy, H. 1984. The Psychological General Well-being (PGWB) Index. In Assessment of Quality of Life in Clinical Trials of Cardiovascular Therapies, eds. N.K. Wenger, M.E. Mattson, C.D. Furberg, and J. Elinson. New York: Le Jacq Publishing.
24. Epstein, A. 1990. The Outcomes Movement - Will It Get Us Where We Want to Go? New England Journal of Medicine 323: 266-70.
25. Erickson, P. 2000. Assessment of the Evaluative Properties of Health Status Instruments. Medical Care 38(9, suppl. II):II95-9.
26. Ettinger, W.H., R. Burns, S.P. Messier, et al. 1997. A Randomized Trial Comparing Aerobic Exercise and Resistance Exercise with a Health Education Program in Older Adults with Knee Osteoarthritis: The Fitness Arthritis and Seniors Trial. Journal of the American Medical Association 277:25-31.
27. Foundation for Health Services Research (FHSR). 1994. Health Outcomes Research: A Primer. Washington, D.C.
28. Fuhrer, M.J. 1997. Assessing Medical Rehabilitation Practices: The Promise of Outcomes Research. Baltimore: Paul H. Brookes.
29. Gill, T., and A. Feinstein. 1994. A Critical Appraisal of the Quality of Quality-of-Life Measurements. Journal of the American Medical Association 272:619-26.
30. Gray, D.B., and G.E. Hendershot. 2000. The ICIDH-2: Developments for a New Era of Research. Archives of Physical Medicine and Rehabilitation 81(suppl. 2):S10-4.
31. Hadley, J. 2000. Better Health Care Decisions: Fulfilling the Promise of Health Services Research. 1999 AHSR Presidential Address. Health Services Research 35:175-86.
32. Haley, S., and A. Jette. 2000. Extending the Frontier of Rehabilitation Outcome Measurement and Research. Journal of Rehabilitation Outcome Measurement 4(4):31-41.
33. Hambleton, R. 2000. Emergence of Item Response Modeling in Instrument Development and Data Analysis. Medical Care 38(9, suppl. II):II60-5.
34. Hambleton, R., and H. Swaminathan. 1985. Item Response Theory: Principles and Applications. Boston: Kluwer Nijhoff.
35. Hays, R., L. Morales, and S. Reise. 2000. Item Response Theory and Health Outcomes Measurement in the 21st Century. Medical Care 38(9, suppl. II):II28-42.
36. Institute of Medicine (IOM). 1991. Disability in America, eds. A.M. Pope and A.R. Tarlov. Washington, D.C.: National Academy Press.
37. Institute of Medicine (IOM). 1997. Enabling America: Assessing the Role of Rehabilitation Science and Engineering, eds. E.N. Brandt, Jr., and A.M. Pope. Washington, D.C.: National Academy Press.
38. Keith, R.A. 1995. Conceptual Basis of Outcome Measures. American Journal of Physical Medicine and Rehabilitation 74:73-80.
39. Kersten, P., M.A. Mullee, J.A. Smith, L. McLellan, and S. George. 1999. Generic Health Status Measures Are Unsuitable for Measuring Health Status in Severely Disabled People. Clinical Rehabilitation 13:219-28.
40. Lehman, A.F. 1995. Measuring Quality of Life in a Reformed Health System. Health Affairs 14:90-101.
41. Lollar, D.J., R.J. Simeonsson, and V. Nanda. 2000. Measures of Outcomes for Children and Youth. Archives of Physical Medicine and Rehabilitation 80(suppl. 2):S46-52.
42. McDowell, I., and C. Newell. 1996. Measuring Health: A Guide to Rating Scales and Questionnaires. New York: Oxford University Press.
43. McHorney, C., and A. Cohen. 2000. Equating Health Status Measures with Item Response Theory. Medical Care 38(9, suppl. II):II43-59.
44. Mendelson, D.N., C.S. Goodman, R. Ahn, et al. 1998. Outcomes and Effectiveness Research in the Private Sector. Health Affairs 17(5):75-90.
45. Meyers, A. 1999. Enabling Our Instruments: Assuring Access to Health Care Research. Proceedings of the National Conference on Health Statistics, August 3. Washington, D.C.
46. Meyers, A., and E.M. Andresen. 2000. Enabling Our Instruments: Accommodation, Universal Design, and Access to Participation in Research. Archives of Physical Medicine and Rehabilitation 81(suppl. 2):S5-9.
47. Meyers, A.R., E.M. Andresen, and K.J. Hagglund. 2000. A Model of Outcomes Research: Spinal Cord Injury. Archives of Physical Medicine and Rehabilitation 81(suppl. 2):S81-9.
48. Mor, V., and E. Guadagnoli. 1988. Quality of Life Assessment: A Psychometric Tower of Babel. Journal of Clinical Epidemiology 41:1055-8.
49. National Committee for Quality Assurance (NCQA). 1999. HEDIS 1999 Reporting Set Measures by Domain. Available at http://www.ncqa. org/pages/communications/news/h99meas.htm (accessed February 19, 2002).
50. National Institute of Disability and Rehabilitation Research (NIDRR). 2002. U.S. Department of Education IOSERS. Available at http:// www.nidrr.org/new/announcements/nidrr-brochure.html (accessed February 19, 2002).
51. Patrick, D.L. 1997. Rethinking Prevention for People with Disabilities. Part I: A Conceptual Model for Promoting Health. American Journal of Health Promotion 11:257-60.
52. Rasch, G. 1980. Probabilistic Models for Some Intelligence and Attainment Tests. Chicago: University of Chicago Press.
53. Rubenstein, L.M., M.D. Voelker, E.A. Chrischilles, D.C. Glenn, R.B. Wallace, and R.L. Rodnitzkey. 1998. The Usefulness of the Functional Status Questionnaire and Medical Outcomes Study Short Form in Parkinson's Disease Research. Quality of Life Research 7:279-90.
54. Shortell, S.M. 1998. HSR: Annual Report to Our Readers and the Field, September 1, 1996 through August 31, 1997. Health Services Research 33:7-10.
55. Simeonsson, R., D. Lollar, J. Hollowell, and M. Adams. 2000. Revision of the International Classification of Impairments, Disabilities, and Handicaps Developmental Issues. Journal of Clinical Epidemiology 53:113-24.
56. Smith, K.W., N.E. Avis, and S.F. Assmann. 1999. Distinguishing between Quality of Life and Health Status in Quality of Life Research: A Meta-analysis. Quality of Life Research 8:447-59.
57. Stryer, D., S. Tunis, H. Hubbard, and C. Clancy. 2000. The Outcomes of Outcomes and Effectiveness Research: Impacts and Lessons from the First Decade. Health Services Research 35:977-93.
58. Vahle, V.J., E.M. Andresen, and K.J. Hagglund. 2000. Depression Measures in Outcome Research. Archives of Physical Medicine and Rehabilitation 81(suppl. 2):S53-62.
59. Verbrugge, L.M., and A.M. Jette. 1994. The Disablement Process. Social Science and Medicine 38:1-14.
60. Ware, J. 1993. SF-36 Health Survey: Manual and Interpretation Guide. Boston: Health Institute, New England Medical Center.
61. Ware, J., J. Bjorner, and M. Kosinski. 2000. Practical Implications of Item Response Theory and Computerized Adaptive Testing. Medical Care 38(suppl. II):II73-82.
62. Ware, J., and C. Sherbourne. 1992. The MOS 36-Item Short-Form Health Survey (SF-36), I: Conceptual Framework and Item Selection. Medical Care 30:473-83.
63. Weiss, D. 1982. Improving Measurement Quality and Efficiency with Adaptive Testing. Applied Psychological Testing 6:473-92.
64. Wilson, I., and P. Cleary. 1995. Linking Clinical Variables with Health-Related Quality of Life. Journal of the American Medical Association 273:59-65.