Genetic testing for hereditary disease: Attending to relational responsibility

Journal of Clinical Ethics

Volumn 12, Issue 4, 2001, Pages 361-372

  Burgess, Michael M ^a   D'Agincourt Canning, Lori ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; BIOETHICS; BREAST TUMOR; DECISION MAKING; EMPIRICAL APPROACH; FEMALE; GENETIC COUNSELING; GENETIC DISORDER; GENETIC SCREENING; GENETICS; GENETICS AND REPRODUCTION; HUMAN; HUNTINGTON CHOREA; OVARY TUMOR; PERSONAL AUTONOMY; SOCIAL BEHAVIOR; STANDARD; UNITED STATES;

EMPIRICAL APPROACH; GENETICS AND REPRODUCTION;

BIOETHICS; BREAST NEOPLASMS; DECISION MAKING; FEMALE; GENETIC COUNSELING; GENETIC DISEASES, INBORN; GENETIC SCREENING; HUMANS; HUNTINGTON DISEASE; OVARIAN NEOPLASMS; PERSONAL AUTONOMY; SOCIAL RESPONSIBILITY; UNITED STATES;

EID: 0035753927     PISSN: 10467890     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (19)

1. S. Sherwin, "A Relational Approach to Autonomy in Health Care," in The Politics of Women's Health, ed. S. Sherwin et al. (Philadelphia: Temple University Press, 1998), 19-47.
2. L. Code, What Can She Know? Feminist Theory and the Construction of Knowledge (Ithaca, N.Y.: Cornell University Press, 1991); M. Friedman, "Autonomy and Social Relations," in Feminists Rethink the Self, ed. D.T. Meyers (Boulder, Colo.: Westview Press, 1997), 40-61; V. Held, Feminist Morality (Chicago: University of Chicago Press, 1993); E.F. Keller, Reflections on Gender and Science (New Haven, Conn.: Yale University Press, 1985); J. Nedelsky, "Reconceiving Autonomy: Sources, Thoughts and Possibilities," Yale Journal of Law and Feminism 1 (1989): 7-36.
3. L. Code, What Can She Know? Feminist Theory and the Construction of Knowledge (Ithaca, N.Y.: Cornell University Press, 1991); M. Friedman, "Autonomy and Social Relations," in Feminists Rethink the Self, ed. D.T. Meyers (Boulder, Colo.: Westview Press, 1997), 40-61; V. Held, Feminist Morality (Chicago: University of Chicago Press, 1993); E.F. Keller, Reflections on Gender and Science (New Haven, Conn.: Yale University Press, 1985); J. Nedelsky, "Reconceiving Autonomy: Sources, Thoughts and Possibilities," Yale Journal of Law and Feminism 1 (1989): 7-36.
4. L. Code, What Can She Know? Feminist Theory and the Construction of Knowledge (Ithaca, N.Y.: Cornell University Press, 1991); M. Friedman, "Autonomy and Social Relations," in Feminists Rethink the Self, ed. D.T. Meyers (Boulder, Colo.: Westview Press, 1997), 40-61; V. Held, Feminist Morality (Chicago: University of Chicago Press, 1993); E.F. Keller, Reflections on Gender and Science (New Haven, Conn.: Yale University Press, 1985); J. Nedelsky, "Reconceiving Autonomy: Sources, Thoughts and Possibilities," Yale Journal of Law and Feminism 1 (1989): 7-36.
5. L. Code, What Can She Know? Feminist Theory and the Construction of Knowledge (Ithaca, N.Y.: Cornell University Press, 1991); M. Friedman, "Autonomy and Social Relations," in Feminists Rethink the Self, ed. D.T. Meyers (Boulder, Colo.: Westview Press, 1997), 40-61; V. Held, Feminist Morality (Chicago: University of Chicago Press, 1993); E.F. Keller, Reflections on Gender and Science (New Haven, Conn.: Yale University Press, 1985); J. Nedelsky, "Reconceiving Autonomy: Sources, Thoughts and Possibilities," Yale Journal of Law and Feminism 1 (1989): 7-36.
6. L. Code, What Can She Know? Feminist Theory and the Construction of Knowledge (Ithaca, N.Y.: Cornell University Press, 1991); M. Friedman, "Autonomy and Social Relations," in Feminists Rethink the Self, ed. D.T. Meyers (Boulder, Colo.: Westview Press, 1997), 40-61; V. Held, Feminist Morality (Chicago: University of Chicago Press, 1993); E.F. Keller, Reflections on Gender and Science (New Haven, Conn.: Yale University Press, 1985); J. Nedelsky, "Reconceiving Autonomy: Sources, Thoughts and Possibilities," Yale Journal of Law and Feminism 1 (1989): 7-36.
7. S. Benahabib, Situating the Self: Gender, Community and Postmodernism in Contemporary Ethics (New York: Routledge, 1992); A Donchin, "Autonomy, Interdependence, and Assisted Suicide: Respecting Boundaries/Crossing Lines," Bioethics 14 (2000): 187-204; Friedman, "Autonomy and Social Relations," see note 2 above; G. Lloyd, "Individuals, Responsibility and the Philosophical Imagination," in Relational Autonomy, ed. C. MacKenzie and N. Stoljar (New York: Oxford University Press, 2000), 112-23; Sherwin, see note 1 above; S. Sherwin, No Longer Patient: Feminist Ethics and Health Care (Philadelphia: Temple University Press, 1992).
8. S. Benahabib, Situating the Self: Gender, Community and Postmodernism in Contemporary Ethics (New York: Routledge, 1992); A Donchin, "Autonomy, Interdependence, and Assisted Suicide: Respecting Boundaries/Crossing Lines," Bioethics 14 (2000): 187-204; Friedman, "Autonomy and Social Relations," see note 2 above; G. Lloyd, "Individuals, Responsibility and the Philosophical Imagination," in Relational Autonomy, ed. C. MacKenzie and N. Stoljar (New York: Oxford University Press, 2000), 112-23; Sherwin, see note 1 above; S. Sherwin, No Longer Patient: Feminist Ethics and Health Care (Philadelphia: Temple University Press, 1992).
9. S. Benahabib, Situating the Self: Gender, Community and Postmodernism in Contemporary Ethics (New York: Routledge, 1992); A Donchin, "Autonomy, Interdependence, and Assisted Suicide: Respecting Boundaries/Crossing Lines," Bioethics 14 (2000): 187-204; Friedman, "Autonomy and Social Relations," see note 2 above; G. Lloyd, "Individuals, Responsibility and the Philosophical Imagination," in Relational Autonomy, ed. C. MacKenzie and N. Stoljar (New York: Oxford University Press, 2000), 112-23; Sherwin, see note 1 above; S. Sherwin, No Longer Patient: Feminist Ethics and Health Care (Philadelphia: Temple University Press, 1992).
10. S. Benahabib, Situating the Self: Gender, Community and Postmodernism in Contemporary Ethics (New York: Routledge, 1992); A Donchin, "Autonomy, Interdependence, and Assisted Suicide: Respecting Boundaries/Crossing Lines," Bioethics 14 (2000): 187-204; Friedman, "Autonomy and Social Relations," see note 2 above; G. Lloyd, "Individuals, Responsibility and the Philosophical Imagination," in Relational Autonomy, ed. C. MacKenzie and N. Stoljar (New York: Oxford University Press, 2000), 112-23; Sherwin, see note 1 above; S. Sherwin, No Longer Patient: Feminist Ethics and Health Care (Philadelphia: Temple University Press, 1992).
11. S. Benahabib, Situating the Self: Gender, Community and Postmodernism in Contemporary Ethics (New York: Routledge, 1992); A Donchin, "Autonomy, Interdependence, and Assisted Suicide: Respecting Boundaries/Crossing Lines," Bioethics 14 (2000): 187-204; Friedman, "Autonomy and Social Relations," see note 2 above; G. Lloyd, "Individuals, Responsibility and the Philosophical Imagination," in Relational Autonomy, ed. C. MacKenzie and N. Stoljar (New York: Oxford University Press, 2000), 112-23; Sherwin, see note 1 above; S. Sherwin, No Longer Patient: Feminist Ethics and Health Care (Philadelphia: Temple University Press, 1992).
12. A. Donchin, "Autonomy and Interdependence: Quandaries in Genetic Decision Making," in Relational Autonomy, ed. C. MacKenzie and N. Stoljar (New York: Oxford University Press, 2000), 236-58; Keller, see note 2 above.
13. See note 1 above.
14. M.U. Walker, Moral Understandings: A Feminist Study in Ethics (New York: Routledge, 1998), 16.
15. Donchin, see note 4 above, p. 247.
16. Susan M. Cox is a co-investigator who led the focus groups and is currently involved in analysis.
17. The names used here are pseudonyms.
18. L. d'Agincourt-Canning, "Experiences of Genetic Risk: Disclosure and the Gendering of Responsibility," Bioethics 15 (2001): 231-47.
19. E. Potter, Women and Moral Identity (North Sydney, N.S.W., Australia: Allen & Unwin, 1991); see note 6 above.