Informal help in the assisted living setting: A 1-year analysis

Family Relations

Volumn 50, Issue 4, 2001, Pages 335-347

  Gaugler, Joseph E ^a,b   Kane, Rosalie A ^c  

^a 203A Sanders Brown Building ^*  (United States)

^b UNIVERSITY OF KENTUCKY   (United States)

^c UNIVERSITY OF MINNESOTA   (United States)

Author keywords

Assisted living; Family caregiving; Informal care; Informal help

Indexed keywords

EID: 0035602235     PISSN: 01976664     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1741-3729.2001.00335.x     Document Type: Article

References (58)

1. Abel, E. K. (1987). Love is not enough: Family care of the frail elderly. Washington, DC: American Public Health Association.
2. Albert, S. M. (1991). Cognition of caregivmg tasks: Multidimensional scaling of the caregiver task domain. Gerontologist, 31, 726-734.
3. Andersen, R. M. (1995). Revisiting the behavioral model and access to medical care: Does it matter? Journal of Health and Social Behavior, 36, 1-10.
4. Andersen, R., & Newman, J. F. (1973). Societal and individual determinants of medical care utilization in the United States. Milbank Memorial Fund Quarterly, 51, 95-124.
5. Aneshensel, C. S., Pearlin, L. I., Mullan, J. T., Zarit, S. H., & Whitlatch, C. J. (1995). Profiles in caregiving: The unexpected career. San Diego, CA: Academic Press.
6. Antonucci, T. (1994). A life-span view of women's social relations. In B. F. Turner (Ed.), Women growing older: Psychological perspectives (pp. 239-269). Thousand Oaks, CA: Sage.
7. Arno, P. S., Levine, C., & Memmott, M. M. (1999). The economic value of informal caregiving. Health Affairs, 18, 182-188.
8. Bitzan, J. E., & Kruzich, J. M. (1990). Interpersonal relationships of nursing home residents. Gerontologist, 30, 385-390.
9. Bowers, B. J. (1988). Family perceptions of care in a nursing home. Gerontologist, 28, 361-368.
10. Bryk, A. S., & Raudenbush, S. W. (1987). Application of hierarchical linear models to assessing change. Psychological Bulletin, 101, 147-158.
11. Burr, J. A., & Nesselroade, J. R. (1990). Change measurement. In A. von Eye (Ed.), Statistical methods in longitudinal research (Vol. 1, pp. 3-33). Boston: Academic Press.
12. Cattell, R. B. (1966). Patterns of change: Measurement in relation to state-dimension, trait change, liability, and process concepts. In R. B. Cattell (Ed.), Handbook of multivariate experimental psychology (pp. 355-402). Chicago: Rand McNally.
13. Comrey, A., & Lee, H. B. (1992). A first course in factor analysis. Hillsdale, NJ: Erlbaum.
14. Cronbach, L. J., & Furby, L. (1970). How should we measure change-Or should we? Psychological Bulletin, 74, 68-80.
15. Doty, P. (1986). Family care of the elderly: The role of public policy. The Milbank Quarterly, 64, 34-75.
16. Duncan, M. T., & Morgan, D. L. (1994). Sharing the caring: Family caregivers' views of their relationships with nursing home staff. Gerontologist, 34, 235-244.
17. Ensel, W. M., & Lin, N. (1991). The life stress paradigm and psychological distress. Journal of Health and Social Behavior, 32, 321-341.
18. Finch, M. D., Kane, R. L., & Philip, I. (1995). Developing a new metric for ADLs. Journal of the American Geriatrics Society, 43, 877-884.
19. Friedemann, M. L., Montgomery, R. J., Maiberger, B., & Smith, A. A. (1997). Family involvement in the nursing homes: Family-oriented practices and staff-family relationships. Research in Nursing and Health, 20, 527-537.
20. Frytak, J. R., Kane, R. A., Finch, M. D., & Kane, R. L. (2001). Outcome trajectories for assisted living and nursing facility residents in Oregon. Health Service Research, 36, 91-111.
21. Gaugler, J. E., Edwards, A. B., Femia, E. E., Zarit, S. H., Greene, R., Stephens, M. A. P., & Townsend, A. (2000). Predictors of institutionalization of cognitively impaired older adults: Family help and the timing of placement. Journal of Gerontology: Psychological Sciences, 55B(4), P247-P256.
22. Gaugler, J. E., Kane, R. L., & Kane, R. A. (in press). Family care for older people with disabilities: Towards more targeted and interpretable research. International Journal of Aging and Human Development.
23. Gaugler, J. E., Leitsch, S. A., Zarit, S. H., & Pearlin, L. I. (2000). Caregiver involvement following institutionalization: Effects of preplacement stress. Research on Aging, 22, 337-359.
24. Greene, V., & Monahan, D. (1982). The impact of visitation on patient well-being in nursing homes. Gerontologist, 22, 418-423.
25. Hanley, R. J., Wiener, J. M., & Harris, K. M. (1991). Will paid home care erode informal support? Journal of Health Politics, Policy, & Law, 16, 507-521.
26. Jöreskog, K. G., & Sörbom, D. (1993). LISREL 8: Structural equation modeling with the SIMPLIS command language. Chicago: Scientific Software International.
27. Kahn, R. L., Goldfarb, M., Pollack, M., & Peck, A. (1960). Brief objective measures for the determination of mental status in the aged. American Journal of Psychiatry, 117, 326-328.
28. Kane, R. A. (1995). Expanding the home care concept: Blurring distinctions among home care, institutional care, and other long-term care services. The Milbank Quarterly, 73, 161-186.
29. Kane, R. A., & Wilson, K. B. (1993). Assisted living in the United States: A new paradigm for residential care for frail older persons. Washington, DC: American Association of Retired Persons.
30. Lieberman, M. A., & Fisher, L. (1998). Predicting utilization of community services for patients and families with Alzheimer's disease. Journal of Clinical Geropsychology, 4, 219-234.
31. Lord, F. M. (1963). Elementary models for measuring change. In C. W. Harris (Ed.), Problems in measuring change (pp. 21-38). Madison: University of Wisconsin Press.
32. Lyons, K. S., & Zarit, S. H. (1999). Formal and informal support: The great divide. International Journal of Geriatric Psychiatry, 14, 183-196.
33. Lyons, K. S., Zarit, S. H., & Townsend, A. (2000). Families and formal service usage: Stability and change in patterns of interface. Journal of Aging and Mental Health, 4, 234-243.
34. Maas, M. L., Swanson, E., Buckwalter, K. C., Lenth, R., Specht, J. P., TrippReimer, T., et al. (2000). Nursing interventions for Alzheimer's family role trials: Final report (R01NR01689). School of Nursing, Iowa City: University of Iowa.
35. Marsden, J. P. (1999). Older persons' and family members' perceptions of homeyness in assisted living. Environment and Behavior, 31, 84-106.
36. Matthews, S. H. (1987). Provision of care to old parents: Division of responsibility among adult children. Research on Aging, 9, 45-60.
37. Matthews, S. H., & Heidorn, J. (1998). Meeting filial responsibilities in brothers-only sibling groups. Journal of Gerontology: Social Sciences, 53B, S278-S286.
38. Max, W., Webber, P., & Fox, P. (1995). Alzheimer's disease: The unpaid burden of caring. Journal of Aging and Health, 7, 179-199.
39. Maxwell, S. E., & Howard, G. S. (1981). Change scores-Necessary anathema? Educational and Psychological Measurement, 41, 747-756.
40. Mitchell, J. M., & Kemp, B. J. (2000). Quality of life in assisted living homes. Journal of Gerontology: Psychological Sciences, 55B, P111-P127.
41. Mollica, R. (2000). State assisted living policy: 2000. Portland, ME: National Academy for State Health Policy.
42. Montgomery, R. J. V. (1982). Impact of institutional care policies on family integration. Gerontologist, 22, 54-58.
43. Moss, M. S., Lawton, M. P., Kleban, M. H., & Duhamel, L. (1993). Time use of caregivers of impaired elderly before and after institutionalization. Journal of Gerontology, 48, S102-S111.
44. Nesselroade, J. R., & Cable, D. G. (1974). "Sometimes, it's okay to factor difference scores" - The separation of state and trait anxiety. Multivariate Behavioral Research, 9, 273-282.
45. Noelker, L. S., & Bass, D. M. (1989). Home care for elderly persons: Linkages between formal and informal caregivers. Journal of Gerontology: Social Sciences, 44, 563-570.
46. Noelker, L., & Harel, Z. (1978). Predictors of well-being and survival among institutionalized aged. Gerontologist, 18, 562-567.
47. Penrod, J. D., Kane, R. A., & Kane, R. L. (2000). Effects of post-hospital informal care on nursing home discharge. Research on Aging, 22, 66-82.
48. Pruchno, R. A., & Rose, M. S. (2000). The effects of long-term care environments on health outcomes. Gerontologist, 40, 422-428.
49. Rogosa, D. R. (1996). Myths and methods: Myths about longitudinal research plus supplemental questions. In J. M. Gottman (Ed.), The analysis of change (pp. 3-66). Mahwah, NJ: Erlbaum.
50. Rubin, A. S., & Shuttlesworth, G. E. (1983). Engaging families as support resources in nursing home care: Ambiguity in the subdivision of tasks. Gerontologist, 23, 632-636.
51. Schumacker, R., & Lomax, R. G. (1996). A beginner's guide to structural equation modeling. Mahwah, NJ: Erlbaum.
52. Schwarz, A. N., & Vogel, M. E. (1990). Nursing home staff and residents' families role expectations. Gerontologist, 30, 169-183.
53. Shanas, E. (1979). The family as a support system in old age. Gerontologist, 19, 169-174.
54. Teti, D. M., Gelfand, D. M., Messinger, D. S., & Isabella, R. (1995). Maternal depression and the quality of early attachment: An examination of infants, preschoolers, and their mothers. Developmental Psychology, 31, 364-376.
55. Ware, J. E., Jr., & Sherbourne, C. D. (1992). The MOS 36-item Short Form Health Survey (SF-36). Medical Care, 30, 473-483.
56. Whitlatch, C. J., & Noelker, L. (1996). Caregiving and caring. Encyclopedia of Gerontology, 1, 253-268.
57. Willett, J. B. (1988). Questions and answers in the measurement of change. In E. Z. Rothkopf (Ed.), Review of research in education (Vol. 15, pp. 345-422). Washington, DC: AERA.
58. Willett, J. B., & Sayer, A. G. (1994). Using covariance structure analysis to detect correlates and predictors of change over time. Psychological Bulletin, 116, 363-381.