"I'm still blessed": The assets and needs of HIV-affected caregivers over 50

Families in Society

Volumn 82, Issue 5, 2001, Pages 525-536

  Poindexter, Cynthia Cannon ^a  

^a BOSTON UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 0035537803     PISSN: 10443894     EISSN: None     Source Type: Journal    
DOI: 10.1606/1044-3894.172     Document Type: Article

References (61)

1. Allers, C. T. (1990). AIDS and the older adult. The Gerontologist, 30(3), 405-407.
2. Averitt, D. (2000). HIV/AIDS and social work: The medical context. In V. Lynch (Ed). HIV/AIDS at year 2000: A sourcebook for social workers, (pp. 1-17). Boston: Allyn & Bacon.
3. Benner, P. (1994). The tradition and skill of interpretive phenomenology in studying health, illness, and caring practices. In P. Benner, (Ed). Interpretive phenomenology: Embodiment, caring, and ethics in health and illness (pp. 99-127). Thousand Oaks: Sage.
4. Brabant, S. (1994). An overlooked AIDS affected population: The elderly parent as caregiver. Journal of Gerontological Social Work, 22(1/2), 131-145.
5. Brody, E. M. (1985). Parent care as normative family stress. The Gerontologist, 25(1), 19-25.
6. Burnette, D. (1997). Grandmother caregivers in inner-city Latino families: A descriptive profile and informal social supports. Journal of Multicultural Social Work, 5(3/4), 121-137.
7. Burton, L. M. (1992). Black grandparents rearing children of drug-addicted parents: Stressors, outcomes, and social service needs. Gerontologist, 32, 744-751.
8. Burton, L. M., Dilworth-Anderson, P., & Merriwether-deVries, C. (1995). Context and surrogate parenting among contemporary grandparents. Marriage and Family Review, 20(3/4), 349-366.
9. Centers for Disease Control and Prevention. (1999). HIV/AIDS surveillance. Atlanta, GA: Author.
10. Callandro, G. & Hughes, C. (1998). The experience of being a grandmother who is the primary caregiver for her HIV-positive grandchild. Nursing Research, 47(2), 107-113.
11. Cates, J. A., Graham, L. L., Boeglin, D., & Tielker, S. (1990). The effect of AIDS on the family system. Families in Society, 71, 195-201.
12. Chesla, C. A. (1994) Parents' caring practices with schizophrenic offspring. In P. Benner, (Ed). Interpretive phenomenology: Embodiment, caring, and ethics in health and illness (pp. 167-184). Thousand Oaks: Sage.
13. Cowger, C. D. (1994). Assessing client strengths: Clinical assessment for client empowerment. Social Work, 39(3), 262-268.
14. Delgado, M. (1999). Social work practice in nontraditional urban settings, New York: Oxford University Press.
15. Dilworth-Anderson, P., Williams, S. W., & Cooper, T. (1999). Family caregiving to elderly African Americans: Caregiver types and structures. Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 54B(4), S237-S241.
16. Fujiura, G. T. & Braddock, D. (1992). Fiscal and demographic trends in mental retardation services: The emergence of the family. In L. Rowitz, (Ed.), Mental retardation in the year 2000 (pp. 316-338). New York: Springer-Verlag.
17. Fredriksen, K. I. (1996). Informal caregiving: Current trends in public policy and service provision. Journal of Clinical Geropsychology, 2(1), 37-50.
18. Fuller-Thomson, E., Minkler, M., & Driver, D. (1997). A profile of grandparents raising grandchildren in the United States. The Gerontologist, 37, 406-411.
19. Germain, C. B. (1991). Human behavior in the social environment: An ecological view. New York: Columbia University Press.
20. Glaser, B. & Strauss, A. (1967). The discovery of grounded theory. Chicago: Aldine.
21. Goldberg-Glen, R., Sands, R. G., Cole, R. D., & Cristofalo, C. (1998). Multigenerational patterns and internal structures in families in which grandparents raise grandchildren. Families in Society 79, 477-489.
22. Gutheil, I. A. & Chichin, E. R. (1991). AIDS, older people, and social work. Social Work, 16(4), 237-244.
23. Hayden, M. F. (1992, August). Adults with mental retardation and other developmental disabilities waiting for community based services in the U.S. Policy Research Brief, 4(3), Minneapolis, MN: University of Minnesota, Center for Residential Services and Community Living.
24. th ed.). Pacific Grove, CA: Brooks/Cole.
25. Herek, G. M., Mitnick, L., Burris, S., Chesney, M., Devine, P., Fullilove, M. T., Fullilove, R., Gunther, H. C., Levi, J., Michaels, S., Novick, A., Pryor, J., Snyder, M., & Sweeney, T. (1998). AIDS and stigma: A conceptual framework and research agenda. AIDS and Public Policy Journal, 13(1), 36-47.
26. Jendrek, M.P. (1994). Grandparents who parent their grandchildren: circumstances and decisions. The Gerontologist, 34(2), 206-216.
27. Joslin, D. (1995). Older adults as caregivers in the HIV/AIDS epidemic. Coalition on AIDS in Passaic County Winter newsletter. N.J.: Coalition on AIDS in Passaic County.
28. Joslin, D. & Brouard, A. (1995). The prevalence of grandmothers as primary caregivers in a poor pediatric population. Journal of Community Health, 20(5), 383-401.
29. Kelley, S. J. (1993). Caregiver stress in grandparents raising grandchildren. Image: Journal of Nursing Scholarship, 25(4), 331-337.
30. Kelly, T. B., & Kropf, N. P. (1995). Stigmatized and perpetual parents: Older parents caring for adult children with life-long disabilities. Journal of Gerontological Social Work, 24(1-2), 3-16.
31. Levine, C. (Ed.). (1993). Orphans of the HIV epidemic. New York: United Hospital Fund.
32. Levine, C. (1995). In whose care and custody? Orphans of the HIV epidemic. AIDS Clinical Care, 7(10), 83.
33. Lincoln, Y. & Guba, E. (1985). Naturalistic inquiry. Beverly Hills: Sage.
34. Linsk, N. & Bonk, N. (2000). Adherence to treatment as social work challenges. In V. Lynch, (Ed). HIV/AIDS at year 2000: A sourcebook for social workers, (pp. 211-227). Boston: Allyn & Bacon.
35. Luescher, K. & Pillemer, K. (1998). Intergenerational ambivalence: A new approach to the study of parent-child relations in later life. Journal of Marriage and the Family, 60(2), 413-425.
36. Marks, N. F. (1996). Caregiving across the lifespan: National prevalence and predictors. Family Relations, 45(1), 27-36.
37. Mason, S. & Linsk, N. (2000). Relative caregivers as foster parents of HIV-affected children. Unpublished manuscript.
38. McKinlay, J. B., Skinner, K., Riley, J. W., & Zablotsky, D. (1993). On the relevance of social science concepts and perspectives. In M. W. Riley, M. G. Ory, & D. Zablotsky, (Eds.), AIDS in an aging society. New York: Springer.
39. McKnight, J. L. & Kretzmann, J. (1991). Mapping community capacity, Building community capacity (a Research and Policy Report) Center for Urban Affairs and Policy Research, Northwestern University.
40. nd ed.). Newbury Park, CA: Sage.
41. Minkler, M., Roe, K. M., & Price, M. (1992). The physical and emotional health of grandmothers raising grandchildren in the crack cocaine epidemic. The Gerontologist, 32 (6), 351-358.
42. Mishler, E. G. (1986). Research interviewing: Context and narrative. Cambridge, MA: Harvard University Press.
43. Murphy, B. C. & Dillon, C. (1998). Interviewing in action. Pacific Grove, CA: Brooks/Cole.
44. Niebuhr, S. & Royse, J. (1989). Take care! St. Paul, MN: Wilder Foundation.
45. Ogu, C. & Wolfe, L. R. (1994). Midlife and older women and HIV/AIDS. Washington, DC: American Association of Retired Persons.
46. Patton, M. Q. (1990). Qualitative evaluation and research methods. Newbury Park, CA: Sage.
47. Perreault, M., Reidy, M., Taggart, M. E., Richard, L., & Savard, N. (1992). Needs assessment of natural caregivers of people with HIV or AIDS. International Conference on AIDS. July 19-24; 8(2): B159 (abstract no. PoB 3436).
48. Poindexter, C. & Linsk, N. (1998). The sources of social support for a sample of HIV-affected older minority caregivers. Families in Society, 79, 491-503.
49. Poindexter, C. & Linsk, N. (1999a). HIV-related stigma in a sample of HIV-affected older African-American caregivers. Social Work, 44(1), 46-61.
50. Poindexter, C. & Linsk, N. (1999b). "I'm just glad that I'm here": Stories of seven African-American HIV-affected grandmothers. Journal of Gerontological Social Work, 32(1), 63-81.
51. Reidy, M., Taggart, M. E., Asselin, L. (1991). Psychosocial needs expressed by the natural caregivers of HIV infected children. AIDS Care, 3(3), 331-343.
52. Riessman, C. K. (1993). Narrative Analysis. Newbury Park, CA: Sage.
53. Saleebey, D. (1996). The strengths perspective in social work practice: Extensions and cautions. Social Work, 41(3), 296-305.
54. Solomon, K. (1996). Psychosocial issues. In K. M. Nokes (Ed.). HIV/AIDS and the older adult. Washington, DC: Taylor & Francis.
55. Stone, R., Cafferata, G. L., & Sangl, J. (1987). Caregivers of the frail elderly: A national profile. The Gerontologist, 27(5), 616-626.
56. Strauss, A. & Corbin, J. (1990). Basics of qualitative research. Newbury Park, CA: Sage.
57. Taylor-Brown, S. & Wiener, L. (2000). Parents and their children: Planning in the face of uncertainty. In V. Lynch, (Ed.). HIV/AIDS at year 2000: A sourcebook for social workers, (pp. 66-78). Boston: Allyn & Bacon.
58. Turner, H. A. & Pearlin, L. I. (1989). Issues of age, stress, & caregiving: Informal supports of persons with AIDS. Generations, 13, 56-59.
59. Walker, A. J.; Pratt, C. C.; Eddy, L.(1995). Informal caregiving to aging family members: A critical review. Family Relations, 44(4), 402-411.
60. Wheeler, D. & Shernoff, M. (1999). The role of mental health professionals in medical decision making regarding protease inhibitors. In M. Shernoff, (Ed.) AIDS and mental health practice: Clinical and policy issues, (pp. 3-18). New York: Haworth.
61. Wiener, L. (1998). Counseling Parents and Children with HIV. In Aronstein, David M. & Thompson, Bruce J., HIV and Social Work: A Practitioner's Guide, (pp. 315-326). New York: Haworth.