Ethical Aspects of Genetic Testing

Biological Research For Nursing

Volumn 3, Issue 1, 2001, Pages 24-32

  Carter, Michele A ^a  

^a UNIVERSITY OF TEXAS MEDICAL BRANCH   (United States)

Author keywords

ethical issues; genetic testing; guidelines; values

Indexed keywords

GENETIC DISORDER; GENETIC SCREENING; GENETICS; HUMAN; MEDICAL ETHICS; NURSING; REVIEW; STANDARD;

ETHICS, NURSING; GENETIC DISEASES, INBORN; GENETIC SCREENING; HUMANS;

EID: 0035412105     PISSN: 10998004     EISSN: None     Source Type: Journal    
DOI: 10.1177/109980040100300104     Document Type: Article

References (20)

1. American Society of Human Genetics (ASHG). 1998. ASHG statement: professional disclosure of familial genetic information. American Journal of Human Genetics 62: 474-483.
2. Anderson G. 1996. The evolution and status of genetics education in nursing in the United States, 1993-1995. Image 28: 101-106.
3. ASHG/ACMG (American Society of Human Genetics Board of Directors & American College of Medical Genetics Board of Directors). 1995. Points to consider: ethical, legal, and psychological implications of genetic testing in children and adolescents. American Journal of Human Genetics 57: 1233-1241.
4. Carter MA. 1993. Ethical framework for care of the chronically III. Holistic Nursing Practice 8: 67-77.
5. Carter MA. 1995. Patient-provider relationship in the context of genetic testing for hereditary cancers. Journal of the National Cancer Institute Monographs 17: 119-121.
6. Escher M, Sappino AP. 2000. Primary care physicians'knowledge and attitudes towards genetic testing for breast-ovarian cancer predisposition. Annals of Oncology 11(9):1131-1135.
7. Geller G, Tambor ES, Chase GA, Hofman KJ, Faden RR, Holtzman NA. 1993. Incorporation of genetics into primary care practice: will physicians do the counseling and will they be directive? Archives of Family Medicine 2: 1119-1125.
8. Giardiello FM, Brensinger JD, Peterson GM, Luce MC, Hylind LM, Bacon JA, Booker SV, Parker RD, Hamilton SR. 1997. The use and interpretation of commercial APC gene testing for familial adenomatous polyposis. New England Journal of Medicine 226: 823-827.
9. Greeley HT. 1998. Genomics research and human subjects. Science 282(5389):625.
10. McCrary SV, Allen B, Moseley R, Crandall LA, Ostrer H, Curry RW, Dewar MA, Nye D. 1993. Ethical and practical implications of the human genome initiative for family medicine. Archives of Family Medicine 2: 1158-1163.
11. Mendel G. [1865] 1966. Experiments on plant hybrids. In: Stern C, Sherwood ER, editors. The origin of genetics: a Mendel sourcebook. San Francisco: Freeman. p 1-48.
12. Monsen R. 1984. Genetics in basic nursing program curricula: a national survey. Maternal Child Nursing 13: 177-185.
13. Orentlicher D. 1997. Genetic privacy in the patient-physician relationship. In: Rothstein MA, editor. Genetic secrets: protecting privacy and confidentiality in the genetic era. New Haven, CT: Yale University Press. p 77-91.
14. President acts to bar genetic discrimination. 2000. New York Times, February 8.
15. Rothstein MA. 1998. Genetic privacy and confidentiality: why they are so hard to protect. Journal of Law Medicine and Ethics 26(3):198-204.
16. Secretary's Advising Committee on Genetic Testing (SACGT). 2000. Enhancing the oversight of genetic tests: recommendations of the SACGT. Bethesda, MD: National Institutes of Health [Online]. Available: http://www4.od.nih.gov/oba/sacgt.htm
17. Suter SM. 1991. Whose genes are these anyway? Family conflict over access to genetic information. Michigan Law Review 91: 1854-1908.
18. U.S. Department of Health and Human Services. 1979. The Belmont report: ethical guidelines for the protection of human subjects of research. DHEW Pub. No. (OS)78-0012. Washington, DC: Government Printing Office.
19. Watson J, Crick F. 1953. Molecular structure of nucleic acids: a structure for deoxyribonucleic acid. Nature 171: 737-738.
20. Whittaker LA. 1992. The implications of the human genome project for family practice. Journal of Family Practice 35: 294-301.