Chronic illness - A disruption in life: Identity-transformation among women with chronic fatigue syndrome and fibromyalgia

Journal of Advanced Nursing

Volumn 34, Issue 3, 2001, Pages 312-319

  Asbring, Pia ^a,b  

^a KAROLINSKA INSTITUTE   (Sweden)

^b Box 4402   (Sweden)

Author keywords

Chronic fatigue syndrome; Fibromyalgia; Identity; Illness experience; Illness gains; Loss

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGED; ARTICLE; CHRONIC DISEASE; CHRONIC FATIGUE SYNDROME; COST OF ILLNESS; FEMALE; FIBROMYALGIA; GRIEF; HUMAN; LIFE EVENT; MIDDLE AGED; NURSING METHODOLOGY RESEARCH; PATIENT ATTITUDE; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUESTIONNAIRE; SELF CONCEPT; SOCIAL BEHAVIOR; SOCIAL ISOLATION; SWEDEN; WORK;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; CHRONIC DISEASE; COST OF ILLNESS; FATIGUE SYNDROME, CHRONIC; FEMALE; FIBROMYALGIA; GRIEF; HUMANS; LIFE CHANGE EVENTS; MIDDLE AGED; NURSING METHODOLOGY RESEARCH; QUALITY OF LIFE; QUESTIONNAIRES; SELF CONCEPT; SICK ROLE; SOCIAL BEHAVIOR; SOCIAL ISOLATION; SWEDEN; WOMEN; WORK;

EID: 0035344114     PISSN: 03092402     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2648.2001.01767.x     Document Type: Article

References (36)

1. Anderson J.S. & Ferrans E.G. (1997) The quality of life of persons with chronic fatigue syndrome. Journal of Nervous and Mental Disease 185, 359-367.
2. Anderson R. & Bury M. (1988) Living with Chronic Illness: The Experience of Patients and their Families. Unwin Hyman, London.
3. Berger P.L. & Luckman T. (1979) Kunskapssociologi. Hur individen uppfattar och formar sin sociala verklighet [The sociology of knowledge. How the individual experience and form his/her social reality]. Wahlström & Widstrand, Stockholm.
4. Bury M. (1982) Chronic illness as biographical disruption. Sociology of Health and Illness 4, 167-182.
5. Charmaz K. (1983) Loss of self: a fundamental form of suffering in the chronically ill. Sociology of Health and Illness 5, 168-195.
6. Charmaz K. (1987) Struggling for a self: identity levels of the chronically ill. Research in the Sociology of Health Care 6, 283-321.
7. Charmaz K. (1991) Good Days, Bad Days: The Self in Chronic Illness and Time. Rutgers University Press, New Brunswick.
8. Conrad P. (1987) The experience of illness: recent and new directions. Research in the Sociology of Health Care 6, 1-31.
9. Corbin J. & Strauss A. (1987) Accompaniments of chronic illness: changes in body, self, biography and biographical time. Research in the Sociology of Health Care 6, 249-281.
10. Corbin J. & Strauss A. (1988) Unending Work and Care: Managing Chronic Illness at Home. Jossey-Bass, San Francisco.
11. Fukuda K., Straus S.E., Hickie I., Sharpe M., Dobbins J., Komaroff A. & the International Chronic Fatigue Syndrome Study Group (1994) The chronic fatigue syndrome: a comprehensive approach to its definition and study. Annals of Internal Medicine 121, 953-959.
12. Giddens A. (1991) Modernity and Self-Identity. Self and Society in the Late Modern Age. Polity Press, Cambridge.
13. Glaser B. & Strauss A. (1967) The Discovery of Grounded Theory. Strategies for Qualitative Research. Aldine de Gruyter, Chicago.
14. Gullacksen A.-C. (1998) När smärtan blir en del av livet. Livsomställning vid kronisk sjukdom och funktionshinder [When pain becomes a part of life. Readjusting life to chronic illness and disability]. PhD Thesis, Gyllene Snittet, Helsingborg.
15. Henriksson C. (1995) Living with fibromyalgia: a study of the consequences for daily activities. PhD Thesis, Linköping University, Linköping.
16. Hughes A. & Månsson S.-A. (1988) Kvalitativ Sociologi [Qualitative Sociology]. Studentlitteratur, Lund.
17. Komaroff A. (1994) Clinical presentation and evaluation of fatigue and chronic fatigue syndrome. In Chronic Fatigue Syndrome (Straus S. ed.), Marcel Dekker, New York, pp. 61-84.
18. Lindsey E. (1996) Health within illness: experiences of chronically ill/ disabled people. Journal of Advanced Nursing 24, 465-472.
19. Morse J. (1997) Responding to threats to integrity of self. Advances in Nursing Science 19, 21-36.
20. Närrvänen A. (1994) Temporalitet och social ordning [Temporality and Social Order]. PhD Thesis, Linköping University, Linköping.
21. Noørregaard J., Bülow P.M., Prescott E., Jacobsen S. & Danneskiold-Samsøe B. (1993) A four year follow-up study in fibromyalgia. Relationship to chronic fatigue syndrome. Scandinavian Journal of Rheumatology 22, 35-38.
22. Olin R. (1995) Fibromyalgi - ett neuroendokrinologiskt syndrom? [Fibromyalgia - a neuroendocrinological syndrome] Läkartidningen 92, 755-763.
23. Royer A. (1995) Living with chronic illness. Research in the Sociology of Health Care 12, 25-48.
24. Schaefer K.M. (1995a) Struggling to maintain balance: a study of women living with fibromyalgia. Journal of Advanced Nursing 21, 95-102.
25. Schaefer K.M. (1995b) Women living in paradox: loss and discovery in chronic illness. Holistic Nursing Practise 9, 63-74.
26. Schweitzer R., Kelly B., Foran A., Terry D. & Whiting J. (1995) Quality of life in chronic fatigue syndrome. Social Science & Medicine 41, 1367-1372.
27. Strauss A. (ed.) (1991) Creating Sociological Awareness: Collective Images and Symxbolic Representations. Transaction Publishers, New Brunswick.
28. Strauss A. & Corbin J. (1990) Basics of Qualitative Research: Grounded Theory Procedures and Techniques. Sage Publications. Newbury Park.
29. Strauss A., Corbin J., Fagerhaugh S., Glaser B., Maines D., Suczek B. & Weiner C. (1984) Chronic Illness and the Quality of Life, 2nd edn. Mosby, St Louis.
30. Söderberg S. (1999) Women's experiences of living with fibromyalgia: struggling for dignity. PhD Thesis, Umeå University, Umeå.
31. Tuck I. & Human N. (1998) The experience of living with chronic fatigue syndrome. Journal of Psychosocial Nursing and Mental Health Services 36, 15-19.
32. Ware N. (1998) Sociomatics and illness course in chronic fatigue syndrome. Psychosomatic Medicine 60, 394-401.
33. Ware N. (1999) Toward a model of social course in chronic illness: the example of chronic fatigue syndrome. Culture, Medicine and Psychiatry 23, 303-331.
34. Ware N. & Kleinman A. (1992) Culture and somatic experience: the social course of illness in neurasthenia and chronic fatigue syndrome. Psychosomatic Medicine 54, 546-560.
35. Wolfe F., Smythe H., Yunus M., Bennett R., Bombardier C., Goldenberg D., Tugwell P., Campbell S., Abeles M., Clark P., Fam A., Farber S., Fiechtner J., Franklin M., Gatter R., Hamaty D., Lessard J., Lichtbroun A., Masi A., McCain G., Reynolds J., Romano T., Russell J. & Sheon R. (1990) The American College of Rheumatology 1990 criteria for the classification of fibromyalgia: report of the multicenter criteria committee. Arthritis and Rheumatism 33, 160-172.
36. Younger J. (1991) A theory of mastery. Advances in Nursing Science 14, 76-89.