Acute leukaemia or highly malignant lymphoma patients' quality of life over two years: A pilot study

European Journal of Cancer Care

Volumn 10, Issue 1, 2001, Pages 36-47

  Persson, Lena ^a   Larsson, G ^b   Ohlsson, O ^b   Hallberg, I R ^c  

^a KRISTIANSTAD UNIVERSITY   (Sweden)

^b Central Hospital Kristianstad   (Sweden)

^c LUND UNIVERSITY   (Sweden)

Author keywords

EORTC QLQ C30; Mmalignant lymphoma; Nacute leukaemia; Nursing care; Personal interviews; Quality of life

Indexed keywords

ACUTE DISEASE; ARTICLE; HUMAN; INTERVIEW; LEUKEMIA; LYMPHOMA; PILOT STUDY; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE;

ACUTE DISEASE; HUMANS; INTERVIEWS; LEUKEMIA; LYMPHOMA; PILOT PROJECTS; QUALITY OF LIFE;

EID: 0035296043     PISSN: 09615423     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2354.2001.00236.x     Document Type: Article

References (47)

1. Aaronson N.K., Ahmedzai S., Bergman B. et al. (1993) The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. Journal of the National Cancer Institute 85, 365-376.
2. Anderson R.T., Aaronson N.K. & Wilkin D. (1993) Critical review of the international assessments of health-related quality of life. Quality of Life Research 2, 369-395.
3. Antonovsky A. (1979) Health, Stress and Coping. Jossey-Bass, San Francisco.
4. Antonovsky A. (1987) Unraveling the Mystery of Health (Hälsans Mysterium, Elfstadius M., trans.). Jossey-Bass/Natur och Kulture, San Francisco/Stockholm.
5. Antonovsky A. (1993) The structure and properties of the sense of coherence scale. Social Science of Medicine 36, 725-733.
6. Begley C.M. (1996) Using triangulation in nursing research. Journal of Advanced Nursing 24, 122-128.
7. Bergman B., Sullivan M. & Sorenson S. (1992) Quality of life during chemotherapy for small cell lung cancer. Acta Oncology 31, 19-28.
8. Berterö C. & Ek A.-K. (1993) Quality of life of adults with acute leukaemia. Journal of Advanced Nursing 18, 1346-1353.
9. Breetvelt I. & Van Dam F.S.A.M. (1991) Under-reporting by cancer patients: the case of response-shift. Social Science of Medicine 32, 981-987.
10. Cassileth B.R., Lusk E.J. & Tenaglia A.N. (1982) A psychological comparison of patients with malignant melanoma and other dermatologic disorders. Journal of the American Academy of Dermatology 7, 742-746.
11. Cella D.F. (1992) Quality of life: the concept. Journal of Palliative Care 8, 8-13.
12. Cella D.F. & Tulsky S. (1990) Measuring quality of life today: methodological aspects. Oncology 4, 29-38.
13. Cronbach L. (1951) Coefficient alpha and the internal structure of tests. Psychometria 16, 297-334.
14. Dawson D.V. & Siegler I.C. (1996) Analysis of limited longitudinal data sets. Experimental Ageing Research 22, 33-57.
15. Faithfull S. (1991) Patients' experiences following cranial radiotherapy: a study of the somnolence syndrome. Journal of Advanced Nursing 16, 939-946.
16. Fayers P., Aaronson N., Bjordal K. et al. (1995) EORTC QLQ C-30 Scoring Manual. Quality of Life Unit/EORTC Data Centre, Brussels.
17. Hagberg B. (1987) A Conceptual Model of Coping. Gerontological Research Centre, Lund.
18. Hagberg H. & Kimby E. (1994) Maligna lymfom: tumörer med många behandlingsmöjligheter (Malignant lymphomas: tumours with many treatment alternatives). Läkartidningen 91, 2335-2339. [In Swedish].
19. Hjermstad M.J., Fayers P.M., Bjordal K. et al. (1998) Health-related quality of life in the general Norwegian population assessed by the European Organization for Research and Treatment of Cancer core quality-of-life questionnaire: the QLQ-C30 (3+). Journal of Clinical Oncology 16, 1188-1196.
20. King M.T. (1996) The interpretation of scores from the EORTC quality-of-life questionnaire QLQ-C30. Quality of Life Research 5, 555-567.
21. Klee M., Groenvold M. & Machin D. (1997) Quality of life of Danish women: population-based norms for the EORTC QLQ-C30. Quality of Life Research 6, 27-34.
22. Kornblith A.B., Herdon I.I.J.E., Zuckerman E. et al. (1998) Comparison of psychosocial adaptation of advanced stage Hodgkin's disease and acute leukamia survivors. Annals of Oncology 9, 297-306.
23. Langius A., Bjorvell H. & Antonovsky A. (1992) The sense of coherence concept: its relation to personality traits in Swedish samples. Scandinavian Journal of Caring Sciences 6, 165-171.
24. Langius A., Bjorvell H. & Lind M.G. (1994) Functional status and coping in patients with oral and pharyngeal cancer before and after surgery. Head and Neck Surgery 16, 559-568.
25. Lawton M.P. (1983) Environment and other determinants of wellbeing in older people. The Gerontologist 23, 349-357.
26. Lesko L.M. (1990) Surviving haematological malignancies: stress responses and predicting psychological adjustment. The Biology of Hematopoiesis 352, 423-437.
27. Lesko L.M., Ostroff J.S., Mumma G. et al. (1992) Long-term psychological adjustment of acute leukaemia survivors: impact of bone marrow transplantation versus conventional chemotherapy. Psychosomatic Medicine 54, 30-47.
28. Liang J.H. (1984) Dimensions of the life satisfaction and index A: a structural formulation. Journal of Gerontology 39, 613-622.
29. Litwins N.M., Rodrigue J.R. & Weiner R.S. (1994) Quality-of-life in adult recipients of bone marrow transplantation. Psychological Reports 75, 323-328.
30. Loge J., Ekeberg Ö. & Kaasa S. (1998) Fatigue in the general Norwegian population: normative data and associations. Journal of Psychosomatic Research 45, 53-65.
31. Molassiotis A. (1999) A correlational evaluation of tiredness and lack of energy in survivors of haematological malignancies. European Journal of Cancer Care 8, 19-25.
32. Nail L. & King K. (1987) Fatigue: a side-effect of cancer treatments. Seminars in Oncology Nursing 3, 257-262.
33. Neugarten B.L., Havighurst R.J. & Tobin S.S. (1961) The measurement of life satisfaction. Journal of Gerontology 16, 134-143.
34. Nordbeck B., Hagberg B., Jadbeck G. et al. (1992) Stroke patients in Sweden. Paper presented at the Fifteenth World Congress of Genrontology, Budapest, Hungary.
35. Ösby E. & Reizenstein P. (1989) Quality of life and care in leukemia, myeloma and non-malignant disease: opinions of patients and relatives, and effects of geography and time. Medicine, Oncology and Tumor Pharmacotherapy 6, 133-141.
36. Persson L., Hallberg I.R. & Ohlsson O. (1995) Acute leukaemia and malignant lymphoma patients' experiences of disease, treatment and nursing care during active treatment phase: an explorative study. European Journal of Cancer Care 4, 133-142.
37. Persson L., Hallberg I.R. & Ohlsson O. (1997) Survivors of acute leukaemia and highly malignant lymphoma: retrospective views of daily life problems during treatment and when in remission. Journal of Advanced Nursing 25, 68-78.
38. Polit D.F. & Hungler B.P. (1995) Nursing Research Principles and Methods. 5th edn. J.B. Lippincot Co., Philadelphia.
39. Rahr V.A. & Tucker R. (1990) Non-Hodgkin's lymphoma: understanding the disease. Cancer Nursing 13, 56-61.
40. Richardson A. (1995) Fatigue in cancer patients: a review of the literature. European Journal of Cancer Care 4, 20-32.
41. Ringdahl G.I. & Ringdahl K. (1993) Testing the EORTC quality-of-life questionnaire on cancer patients with heterogeneous diagnosis. Quality of Life Research 2, 129-140.
42. Rubenowitz S. (1980) Development of Methods To Map Out Psychological Factors Which Should Be Taken Into Consideration in Regional Planning (3). Department of Psychology/ University of Göteborg, Göteborg.
43. Siegel S. & Castellan N.J. Jr (1988) Nonparametric Statistics for the Behavioral Sciences. McGraw-Hill Book Company, New York.
44. The Swedish Cancer Registry Centre for Epidemiology (1997) Cancer Incidence in Sweden 1994. The National Board of Health and Welfare, Stockholm. [In Swedish].
45. The WHOQOL Group (1995) The World Health Organization quality of life assessment (WHOQOL): position paper from the World Health Organization. Social Science of Medicine 41, 1403-1409.
46. Winningham M.L., Nail L.M., Burke B.M. et al. (1994) Fatigue and the cancer experience: the state of the knowledge. Oncology Nursing Forum 21, 23-36.
47. Yeager K.A. & Miaskowski C. (1994) Advances in understanding the mechanisms and management of acute myelogenous leukaemia. Oncology Nursing Forum 21, 541-548.