Dealing with AIDS-related loss and grief in a time of treatment advances

American Journal of Hospice and Palliative Medicine

Volumn 18, Issue 1, 2001, Pages 35-41

  Demmer, Craig ^a  

^a CITY UNIVERSITY OF NEW YORK   (United States)

Author keywords

AIDS patients; bereavement; end of life care; grief; HIV treatment; HIV AIDS; loss

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; ADAPTIVE BEHAVIOR; ATTITUDE TO DEATH; ATTITUDE TO HEALTH; CAREGIVER; FAMILY; GRIEF; HEALTH PERSONNEL ATTITUDE; HUMAN; METHODOLOGY; PSYCHOLOGICAL ASPECT; REVIEW; TERMINAL CARE; TREATMENT FAILURE;

ACQUIRED IMMUNODEFICIENCY SYNDROME; ADAPTATION, PSYCHOLOGICAL; ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO DEATH; ATTITUDE TO HEALTH; CAREGIVERS; FAMILY; GRIEF; HUMANS; TERMINAL CARE; TREATMENT FAILURE;

EID: 0035236331     PISSN: 10499091     EISSN: None     Source Type: Journal    
DOI: 10.1177/104990910101800110     Document Type: Article

References (41)

1. Deeks SG, Smith M, Holodniy M, Kahn JO: HIV-1 protease inhibitors: A review for clinicians. JAMA. 1997; 277(2): 145-153.
2. Williams AB: Adherence to highly active antiretroviral therapy. Nursing Clinics of North America. 1999; 34(1): 113-129.
3. Rabkin JG, Ferrando S: A “second life” agenda: Psychiatric research issues raised by protease inhibitor treatments for people with the human immunodeficiency virus or the acquired immunodeficiency syndrome. Archives of General Psychiatry. 1997; 54(11): 1049-1053.
4. Rofes E: Dry Bones Breathe: Gay Men Creating Post-AIDS Identities and Cultures. New York: Harrington Park Press, 1998.
5. Kalichman SC, Ramachandran B, Ostrow D: Protease inhibitors and the new AIDS combination therapies: Implications for psychological services. Professional Psychology: Research and Practice. 1998; 29(4): 349-356.
6. Selwyn PA, Arnold RA: From fate to tragedy: The changing meanings of life, death, and AIDS. Annals of Internal Medicine. 1998; 129(11): 899-902.
7. Kobayashi JS: The evolution of adjustment issues in HIV/AIDS. Bulletin of the Menninger Clinic. 1997; 61(2): 146-188.
8. Maasen T: Counselling gay men with multiple loss and survival problems: The bereavement group as a transitional object. AIDS Care. 1998; 10(1): S57-S63.
9. Nord D: Multiple AIDS-Related Loss: A Handbook for Understanding and Surviving a Perpetual Fall. Washington, DC: Taylor and Francis, 1997.
10. Androite JM: Victory Deferred: How AIDS has Changed Gay Life in America. Chicago: University of Chicago Press, 1999.
11. Haubrich RH, Little SJ, Currier JS, et al.: California Collaborative Treatment Group: The value of patient-reported adherence to antiretroviral therapy in predicting virologic and immunologic response. AIDS. 1999; 13(9): 1099-1107.
12. Lyons C: HIV drug adherence: Special situations. Journal of the Association of Nurses in AIDS Care. 1997; 8(Suppl): 29-34.
13. Murri R, Ammassari A, De Luca A, et al.: Definition and measurement of adherence to antiretroviral drugs in HIV-1-infected patients. Lancet. June 5, 1999; 353: 1974.
14. Tuldra A, Ferrer MJ, Fumaz CR, et al.: Monitoring adherence to HIV therapy. Archives of Internal Medicine. June 28, 1999; 159: 1376-1377.
15. Altice FL, Friedland GH: The era of adherence to HIV therapy. Annals of Internal Medicine. 1998; 129(6): 503-504.
16. Malow RM, McPherson S, Klimas N, et al.: Adherence to complex combination anti-retroviral therapies by HIV-positive drug abusers. Psychiatric Services. 1998; 49(8): 1021-1024.
17. Lerner BH, Gulick RM, Dubler NN: Rethinking nonadherence: historical perspectives on triple-drug therapy for HIV disease. Annals of Internal Medicine. 1998; 129(7): 573-578.
18. Niemeyer RA, Stewart AE: AIDS-related death anxiety: A review of the literature. In Gendelman HE, Lipton SA, Epstein L, Swindells S (eds.): Neurology of AIDS. New York: Chapman and Hall, 1998: 582-595.
19. Catania JA, Turner HA, Choi KH, Coates TJ: Coping with death anxiety: help-seeking and social support among gay men with various HIV diagnoses. AIDS. 1992; 6: 999-1005.
20. Kurdek LA, Siesky G: The nature and correlates of psychological adjustment in gay men with AIDS-related conditions. Journal of Applied Social Psychology. 1990; 20: 846-860.
21. Viney LL, Henry RM, Walker BM, Crooks L: The psychosocial impact of multiple deaths from AIDS. Omega. 1992; 24(2): 151-163.
22. Dane BO, Miller SO: AIDS: Intervening with Hidden Grievers. Westport, CT: Auburn House, 1992.
23. Mead SCW, Willemsen HWA: Crisis of the psyche: Psychotherapeutic considerations on AIDS, loss, and hope. In Sherr L (ed.): Grief and AIDS. Chichester, UK: John Wiley and Sons, 1995: 115-127.
24. Hoffman MA: Counseling Clients with HIV Disease. New York: Guilford Press, 1996.
25. Brown MA, Powell-Cope GM: AIDS family caregiving: Transitions through uncertainty. Nursing Research. 1991; 40(6): 338-345.
26. Walker RJ, Pomeroy EC, McNeil JS, Franklin C: Anticipatory grief and AIDS: Strategies for intervening with caregivers. Health and Social Work. 1996; 21(1): 49-57.
27. Doka KJ: When illness is prolonged: Implications for grief. In Doka KJ, Davidson J (eds.): Living With Grief When Illness Is Prolonged. Washington, DC: Hospice Foundation of America, 1997: 5-15.
28. Haviland ML, Healton CG, Weinberg GS, et al.: Delivering HIV/AIDS services: The professional care provider speaks out. American Journal of Preventive Medicine: Research Linkages Between Academia and Public Health Practice. 1997; 13(2): 12-18.
29. Demmer C: AIDS attitudes and attitudes toward caring for dying patients. Death Studies. 1999; 23(5): 433-442.
30. Killeen MK: Getting through our grief. American Journal of Hospice & Palliative Care. 1993; 10(5): 18-24.
31. Mallinson RK: Grief work of HIV-positive persons and their survivors. Nursing Clinics of North America. 1999; 34(1): 163-177.
32. Niemeyer RA: Lessons of Loss: A Guide to Coping. New York: McGraw-Hill, 1998.
33. Showalter SE: Walking with grief: The trail of tears in a world of AIDS. American Journal of Hospice and Palliative Care. 1997; 14(2): 68-74.
34. Wiener L, Fair C, Pizzo PA: Care for the child with HIV infection and AIDS. In Armstrong-Dailey A, Goltzer SZ (eds.): Hospice Care for Children. New York: Oxford University Press, 1993: 85-104.
35. Brown MA, Powell-Cope GM: Themes of loss and dying in caring for a family member with AIDS. Research in Nursing and Health. 1993; 16: 179-191.
36. Relf MV: Illuminating meaning and transforming issues of spirituality in HIV disease and AIDS: An application of Parse's theory of human becoming. Holistic Nursing Practice. 1997; 12(1): 1-8.
37. Kaldjian LC, Jekel JF, Friedland G: Endof-life decisions in HIV-positive patients: the role of spiritual beliefs. AIDS. 1998; 12(1): 103-107.
38. Bigelow G, Hollinger J: Grief and AIDS: Surviving catastrophic multiple loss. Hospice Journal. 1996; 11(4): 83-96.
39. Sikkema KJ, Kalichman SC, Kelly JA, Koob JJ: Group intervention to improve coping with AIDS-related bereavement: Model development and an illustrative clinical example. AIDS Care. 1995; 7(4): 463-475.
40. Barroso J: Social support and long-term survivors of AIDS. Western Journal of Nursing Research. 1997; 19(5): 554-582.
41. Higginson I: Palliative care: a review of past changes and future trends. Journal of Public Health Medicine. 1993; 15(1): 3-8.