Outcome measures in pediatric neurology: Why do we need them?

Journal of Child Neurology

Volumn 15, Issue 12, 2000, Pages 775-780

  Ronen, G M ^a   Rosenbaum, P ^a   Streiner, D L ^a  

^a MCMASTER UNIVERSITY   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; BRAIN TUMOR; CHILD; EPILEPSY; HUMAN; INFANT; LOW BIRTH WEIGHT; NEURAL TUBE DEFECT; NEUROLOGY; OUTCOMES RESEARCH; PATIENT ATTITUDE; PATIENT GUIDANCE; PEDIATRICS; POPULATION RESEARCH; PRIORITY JOURNAL; QUALITY OF LIFE; REVIEW;

EID: 0034488579     PISSN: 08830738     EISSN: None     Source Type: Journal    
DOI: 10.1177/088307380001501201     Document Type: Review

References (48)

1. Outcomes research: Measuring the end results of health care
2. Multi-attribute health status classification systems: Health Utilities Index
3. The MOS 36-Item Short-Form Health Status Survey (SF-36): Conceptual framework and item selection
4. Measuring health-related quality of life
5. A checklist for evaluating the usefulness of rating scales
6. Assessment of quality-of-life outcomes
7. Outcome assessments and air ambulance services, letter
8. Children's quality of life measures
9. Health-related quality of life in childhood epilepsy: The results of children's participating in identifying the components
10. Health status of children with special health care needs: Measurement issues and instruments
11. Quality of life research in pediatric oncology. Research methods and barriers
12. Measuring health-related quality of life in pediatric populations
13. Measuring quality of life
14. Sticks and stones may break my bones...reasoning about illness causality and body functioning in children who have a chronic illness
15. Development in children's causal theories of their seizure disorder
16. The role of children in reporting their physical disabilities
17. Minimum skills required by children to complete health-related quality of life instruments for asthma: Comparison of measurement properties
18. Children and adult perceptions of childhood asthma
19. Measurement of quality of well being in a child and adolescent cystic fibrosis population
20. A quality of life instrument for adolescents with chronic headache
21. Health-related quality of life (HRQL) in childhood epilepsy: Can parents serve as proxies for their children?
22. ™: Measurement Model for the Pediatric Quality of Life Inventory
23. An objective method for the assessment of psychosocial problems in adolescents with epilepsy
24. Development of the Quality of Life in epilepsy inventory for adolescents: The QOLIEAD-48
25. Risk factors for poor health-related quality of life in adolescents with epilepsy
26. Development of a health-related quality of life instrument for use in children with spina bifida
27. Comprehensive assessment of the health status of extremely low birth weight children at eight years of age: Comparison with a reference group
28. Comparison of the health-related quality of life of extremely low birth weight children and a reference group of children at age eight years
29. Self-perceived health status and health-related quality of life of extremely low-birth-weight infants at adolescence
30. Differences in preferences for neonatal outcomes among health care professionals, parents, and adolescents
31. A multi-attribute approach to health status measurement and clinical management - Illustrated by an application to brain tumors in childhood
32. Health-related quality of life in survivors of tumors of the central nervous system in childhood - A preference-based approach to measurement in a cross-sectional study
33. Assessment of health status in survivors of cancer
34. Applicability of the Health Utilities Index to a population of childhood survivors of central nervous system tumors in the U.K.
35. Health status in 52 long-term survivors of pediatric brain tumors
36. Headache intensity and quality of life in adolescents. How are changes in headache intensity in adolescents related to changes in experienced quality of life?
37. Functional status II (R): A measure of child health status
38. Adolescent health status measurement: Development of the child health and illness profile
39. Quality of life in early adolescence: A sixteen-dimensional health-related measure (16D)
40. Quality of life in pre-adolescence: A 17-dimensional health-related measure (17D)
41. The Quality of Life Profile-Adolescent Version: Background, description, and initial validation
42. Health related quality of life measure for children in the TAQOL
43. Future directions of quality of life research