Improving care at the end of life: What does it take?

Health Affairs

Volumn 19, Issue 6, 2000, Pages 277-283

  Weisfeld, Victoria ^a   Miller, Doriane ^b   Gibson, Rosemary ^b   Schroeder, Steven A ^c  

^a ROBERT WOOD JOHNSON FOUNDATION   (United States)

^b RWJF   (United States)

^c MOUNT SINAI SCHOOL OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CONSUMER; HEALTH SERVICE; HUMAN; NON PROFIT ORGANIZATION; ORGANIZATION; ORGANIZATION AND MANAGEMENT; STANDARD; TERMINAL CARE; TOTAL QUALITY MANAGEMENT; UNITED STATES; VOCATIONAL EDUCATION;

CONSUMER PARTICIPATION; EDUCATION, PROFESSIONAL; FOUNDATIONS; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; ORGANIZATIONAL INNOVATION; TERMINAL CARE; TOTAL QUALITY MANAGEMENT; UNITED STATES;

EID: 0034328501     PISSN: 02782715     EISSN: None     Source Type: Journal    
DOI: 10.1377/hlthaff.19.6.277     Document Type: Article

References (25)

1. J.E. Wennberg and M.M. Cooper, eds., Dartmouth Atlas of Health Care 1999 (Chicago: American Hospital Publishing, Inc., 1999), 93.
2. J. Lynn, "Unexpected Returns: Insights from SUPPORT," in To Improve Health and Health Care 1997: The Roben Wood Johnson Foundation Anthology, ed. S.L Isaacs and J.R. Knickman (San Francisco: Jossey-Bass, 1997), 161-186.
3. See, for example, D.J. Cook et al., "Determinants in Canadian Health Care Workers of the Decision to Withdraw Life Support from the Critically Ill," Journal of the American Medical Association 273, no. 9 (1995): 703-708.
4. SUPPORT Principal Investigators, "A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients," Journal of the American Medical Association 274, no. 20 (1995): 1591-1598.
5. Survey cited in N. Freeborne, "The Collected Reports from SUPPORT and HELP: An Annotated Bibliography of Manuscripts in Print as of December 31, 1999, and SUPPORT Prognostic Formulas," Journal of the American Geriatrics Society 48, no. 5 supplement (2000): S222-S233.
6. S.A. Schroeder, "The Legacy of SUPPORT," Annals of Internal Medicine (16 November 1999): 780-781.
7. B.A. Tyler et al., The Quest to Die with Dignify (Atlanta: American Health Decisions, 1997). To request copies, call Beverly A. Tyler at 800-544-5751.
8. Lake Snell Perry and Associates, Omnibus Survey Results: Last Acts, survey of 1,000 Americans age eighteen or older (Washington: Lake Snell Perry, March 1999).
9. M.J. Field and C.K. Cassel, eds., Approaching Death: Improving Care at the End of Life (Washington: National Academy Press, 1997).
10. Information about Last Acts is available on the Web, , or by calling 202-338-9790.
11. Examples are the Open Society Institute's Project on Death in America fellowships program, which has engaged some sixty-eight young leaders nationwide; the Fan Fox and Leslie R. Samuels Foundation's support of research on advance care planning; the Mayday Fund's work on pain; the Fetzer Institute's concerns for the spiritual aspects of death and dying; the Nathan Cummings Foundation's support of the Missoula Demonstration Project; and the Archstone Foundation's grant to Americans for Better Care of the Dying for the MediCaring Project.
12. M.J. Field and C.K. Cassel, "Educating Clinicians and Other Professionals," in Approaching Death, 207-234.
13. See "The EPEC Project: Education for Physicians on End-of-Life Care," (10 August 2000).
14. M.W. Rabow et al., "End-of-Life Care Content in Fifty Textbooks From Multiple Specialties," Journal of the American Medical Association 283, no. 6 (2000): 771-778; and B.R. Ferrell and R. Virani, "Nursing Responds to the Demand for Improved End-of-Life Care," American Journal of Hospice and Palliative Care (May/June 2000): 150-151.
15. M.W. Rabow et al., "End-of-Life Care Content in Fifty Textbooks From Multiple Specialties," Journal of the American Medical Association 283, no. 6 (2000): 771-778; and B.R. Ferrell and R. Virani, "Nursing Responds to the Demand for Improved End-of-Life Care," American Journal of Hospice and Palliative Care (May/June 2000): 150-151.
16. "Promising Educational Initiatives for Staff, Regulators, and Families," State Initiatives in End-of-Life Care, December 1999, , "Publications" (22 September 2000).
17. Last Acts Financing Task Force, The Challenge of End-of-Life Care: Moving toward Meranoia? 1998, (10 August 2000). Copies are also available by calling Barksdale Ballard and Company at 703-827-8771.
18. Information about the RWJF's Promoting Excellence in End-of-Life Care national program is available at , or by calling 406-243-6601.
19. Innovations in End-of-Life Care,
20. Information about the Center to Advance Palliative Care in Hospitals and Health Systems (CAPC) is available at , or by calling 212-241-7885.
21. Information about the Community-State Partnerships to Improve End-of-Life Care national program is available on the Web, , or by calling 816-842-7110.
22. See .
23. Last Acts Palliative Care Task Force, "Precepts of Palliative Care," December 1997, (6 September 2000) (for professionals); and "A Vision for Better Care at the End of Life," 1998, (6 September 2000) (for a lay audience). The documents are also available by calling Stewart Communications at 312-642-8652.
24. Last Acts Palliative Care Task Force, "Precepts of Palliative Care," December 1997, (6 September 2000) (for professionals); and "A Vision for Better Care at the End of Life," 1998, (6 September 2000) (for a lay audience). The documents are also available by calling Stewart Communications at 312-642-8652.
25. I. Byock, Dying Well: The Prospect for Growth at the End of Life (New York: Riverhead Books, 1997).