Participation of relatives in the care of cancer patients

European Journal of Oncology Nursing

Volumn 4, Issue 2, 2000, Pages 99-107

  Eriksson, Elina ^a   Lauri, Sirkka ^a  

^a UNIVERSITY OF TURKU   (Finland)

Author keywords

Participation, cancer patients, relatives, concrete care activities, emotional support, participation in decision making

Indexed keywords

EID: 0034196380     PISSN: 14623889     EISSN: None     Source Type: Journal    
DOI: 10.1054/ejon.2000.0084     Document Type: Article

References (38)

1. Athlin E., Furåker C., Jansson C., Norberg A. Application of primary nursing within a team setting in the hospice care of cancer patient. Cancer Nursing. 16:1993;388-397.
2. Avis M. Choice cuts: an exploratory study of patients' views about participation in decision making in the context of caring. Journal of Advanced Nursing. 17:1994;1430-1439.
3. Blank J J, Clark L., Longman A J, Atwood J R. Rerceived home care needs of cancer patients and their caregivers. Cancer Nursing. 12:1989;78-84.
4. Bloomfield K. Ask the family. Nursing Times. 82:1986;28-30.
5. Cahill J. Patient participation - a review of the litterature. Journal of Clinical Nursing. 7:1998;119-128.
6. Chaitchik S., Kreitler S., Rapoport Y., Algor R. What do cancer patients' spouses know about the patients? Cancer Nursing. 15:1992;353-362.
7. Degner L F, Gow C M, Thompson L A. Critical nursing behaviors in care for the dying. Cancer Nursing. 14:1991;246-253.
8. Degner L F, Russel C A. Preferences for treatment control among adults with cancer. Research in Nursing and Health. 11:1988;367-374.
9. Degner L F, Sloan J A. Decision making during serious illness: What role do patients really want to play? Journal of Clinical Epidemiology. 45:1992;941-950.
10. Dracup K A, Breu C S. Using nursing research findings to meet the needs of grieving spouse. Nursing Research. 27:1978;212-292.
11. Friedman L C, Baer P E, Nelson D V, Montague L., Smith F E, Dwrokin R J. Women with breast cancer: Perception on family functioning and adjustment to illness. Psychosomatic Medicine. 50:1988;529-540.
12. Hietaranta E., Jokinen M. The adaptation process of a family member of a cancer patient. Hoitotiede. 1:1989;12-18.
13. Hinds C. The needs of families who care for patients with cancer at home: Are we meeting them? Journal of Advanced Nursing. 10:1985;575-581.
14. Hoskins C N. Partner relationship inventory. Manual. 1988;Consulting Psychologists Press, California.
15. Hoskins C N. Patterns of adjustment among breast cancer patients and partners. Hoitotiede 1991. Pro Nursing ry:n julkaisusarja A:4. Kirjapaino Pika Oy, Turku. 1991;140-156.
16. Häggmark C., Theorell T., Einhorn J. Ökad medverkan av anhöriga i cancervården kan leda till ett tidigarelagt sorgarbete. Läkartidningen. 85:1988;44-48.
17. Kane R A. Family support for elderly persons with arthritis. Moskowitz R W, Haugh M R, . Arthritis and the elderly. 1986;57-71 Springer, New York.
18. Kirk S., Glendinning C. Trends in community care and patient participation: implications for the roles of informal carers and community nurses in the United Kingdom. Journal of Advanced Nursing. 28:1998;370-381.
19. Kristjanson L J. Indicators of quality of palliative care from a family perspective. Journal of Palliative Care. 1:1986;8-17.
20. Kristjanson L J. Quality of terminal care: Salient indicators identified by families. Journal of Palliative Care. 5:1989;21-28.
21. Kristjanson L J. Family satisfaction with palliative care: A test of four alternative theories. Dissertation. 1991;The University of Arizona.
22. Kuuppelomäki M. Parantumatonta syöpää sairastavien potilaiden kärsimyskokemukset ja selviytymistä tukevat toiminnot. Dissertation. 1996;Annales Universitatis Turkuensis. Ser C Scripta Lingua Fennica Edita 144. University of Turku.
23. Kuuppelomäki M., Lauri S. The ethical decision making of nurses associated with the feeding of demented patients and terminally ill elderly cancer patients in seven countries. Hoitotiede. 3:1991;146-153.
24. Laitinen P. The participation of informal caregivers and care quality in the hospital care of elderly patients aged 75 or older. Dissertation. 1996;Kuopio University Publications E. Social Sciences 39.
25. Leino-Kilpi H. Good nursing care. On what basis? Dissertation. 1990;Annales Universitatis Turkuensis. Ser D Medica - odotologia 49. University of Turku.
26. Läakintöhallitus. Terminaauhoitoa koskevat ohjeet. 1982.
27. Mah M., Boston P., Pepler C. Symptom interpretation and decision-making patterns among chinese immigrant families with a hospitalized member. Canadian Oncology Nursing Journal. Conference proceedings Part One August 1994. 1994;The Canadian Association of Nurses Oncology. p. 42.
28. Mc Daniel S H, Campell T L, Seaburn D B. Family-oriented primacy care: A manual for medical providers. 1990;RR Donnelley Sons, Harrisonburg.
29. Nash A. The role of the nurse in the family support. Wilson-Barnett J., Raiman J., Nursing issues and research in terminal care. 1988;185-199 John Wiley & Sons, Essex.
30. Sosiaali- j a terveysministeriö. "Health for All 2000" programme. Valtion painatuskeskus. 1987.
31. Strandmark Kjölsrud, M, 1996, Patient power and participation in decision making, Proceedings of 8th Biennial Conference of the Workgroup of European Nurse Researchers, Stockholm, Sweden, June 24-27 1996, 539, 553.
32. Suominen T. The nursing care of breast cancer patients: Perceived information, support and participation. Dissertation. 1994;Annales Universitatis Turkuensis. Ser D Medica - odotologia 144. University of Turku.
33. Suomen säädöskokoelma, 1992, Laki potilaan asemasta ja oikeuksista, VPK, Helsinki.
34. Vuorinen E., Saario A. Kotona tapahtuva saattohoito ja sen kustannukset - Kotkan malli. Suomen Lääkärilehti. 24:1997;2699-2702.
35. Waltz C F, Strickland O L, Lenz E R. Measurement in nursing research. 1991;FA Davis Company, Philadelphia.
36. Wilson H S. Research in Nursing. 1989;Addison-Wesley Publishing Company, Inc. California.
37. Woods F N, Lewis F M, Ellison E S. Living with cancer: Family experiences. Cancer Nursing. 12:1989;28-33.
38. Zahlis E H, Shands M E. Breast cancer: Demands of the illness on the patients partner. Journal of Psychosocial Oncology. 9:1991;75-93.