Support services and peer support for parents of at-risk infants: An international perspective

Children's Health Care

Volumn 29, Issue 2, 2000, Pages 129-145

  Boukydis, C F Zachariah ^a,b  

^a BROWN UNIVERSITY   (United States)

^b WOMEN AND INFANTS HOSPITAL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTATION; ARTICLE; CAREGIVER; GROUP PSYCHOLOGY; HEALTH SERVICE; HIGH RISK POPULATION; HOSPITALIZATION; INTENSIVE CARE UNIT; PARENTAL BEHAVIOR; PRIMARY MEDICAL CARE; SELF HELP; SUPPORT GROUP;

EID: 0034077399     PISSN: 02739615     EISSN: None     Source Type: Journal    
DOI: 10.1207/S15326888CHC2902_5     Document Type: Article

References (46)

1. Affleck, G., Tennen, H., & Rowe, J. (1991). Infants in crisis: How parents cope with newborn infant care and its aftermath. New York: Springer-Verlag.
2. Affleck, G., Tennen, H., Rowe, J., Roscher, B., & Walker, L. (1989). Effects of formal support on mothers' adaptation to the hospital-to-home transition of high risk infants: The benefits and costs of helping. Child Development, 60, 488-501.
3. Als, H. (1992). Individualized, family focused developmental care forthe very low birth weight preterra infant in the NICU. In S. L. Friedman & M. Sigman (Eds.), Advances in applied developmental psychology. The psychological development of low birth weight children. Norwood, NJ: Ablex.
4. Boukydis, C. F. Z. (1986). Support for parents and infants: A manual for parenting organizations and professionals. London: Routledge & Kegan Paul.
5. Boukydis, C. F. Z. (1993). Peer self-help for parents of at-risk infants: An international perspective. Boston Institute for the Development of Infants and Parents Newsletter, 12, 3-6.
6. Boukydis, C. F. Z., Lester, B. M., & Hoffman, J. (1987). Parenting and social support networks for parents of preterm and fullterm infants. In C. F. Z. Boukydis (Ed.), Research on support for parents and infants in the postnatal period. Norwood, NJ: Ablex.
7. Boukydis, C. F. Z., & Moses, L. M. (1995). Establishing and maintaining a parenting network for parents of premature/high risk infants. Infants & Young Children, 7, 77-87.
8. Brown, W., Pearl, L., & Carrasco, N. (1991). Evolving models of family-centered services in neonatal intensive care. Children's Health Care, 20, 50-55.
9. Bryant, N. (1984). Self-help groups: An important strategy for perinatal health. Journal of the California Perinatal Association, 4, 24-27.
10. Bustan, D., & Sagi, A. (1984). Effects of early hospital-based intervention on mothers and their preterm infants. Journal of Applied Developmental Psychology, 5, 305-317.
11. Cherniss, D. (1987). Stability and growth in parent-support services: A national study of peer support services for parents of preterm and high-risk infants. In C. F. Z. Boukydis (Ed.), Research on support for parents and infants in the postnatal period. Norwood, NJ: Ablex.
12. Cherniss, G., & Cherniss, D. (1987). Professional involvement in self-help groups for parents of high-risk newborns. American Journal of Community Psychology. 15, 435-444.
13. Crnic, K., Greenberg, M., Ragozin, A., Robinson, N., & Basham, R. (1983). Effects of stress and social support on mothers and premature and full-term infants. Child Development, 54, 209-217.
14. Dawson, P., Robinson, J., & Johnson, C. (1982). Informal social support as an intervention. Zero to Three: Bulletin of the National Center for Clinical Infant Programs, 3, 1-5.
15. De Leeuw, R., Cuttini, M., & Reid, M. (1993). Staff views on parental visiting of very low birthweight infants in neonatal intensive care units - results of a staff enquiry across eleven countries of the Eu-ropean Community. Journal of Perinatal Medicine, 21, 43-52.
16. Eager, M., & Exoo, R. (1980). Parents visiting parents for unequaled support. Maternal-Child Nursing Journal. 5, 78-87.
17. Freud, W. E. (1980). Notes on some psychological aspects of neonatal intensive care. In S. Greenspan & G. Pollock (Eds.), The course of life: Psychoanalytic contributions toward understanding personality development (NIMH Publication No. 257-69). Bethesda, MD: National Institute of Mental Health.
18. Guillemin, J. H., & Holmstrom, L. L. (1986). Mixed blessings: Intensive care for newborns. New York: Oxford University Press.
19. Harper, R., Sia, C., Sokol, S., & Sokol, M. (1976). Observations on unrestricted parental contact with infants in the neonatal intensive care unit Journal of Pediatrics, 89, 441-443.
20. Harrison, H. (1983). The premature baby book: A parent's guide to coping and caring in the first years. New York: St. Martin's Press.
21. Harrison, H. (1993). The principles for family-centered neonatal care. Pediatrics, 92, 643-650.
22. Jacobs, M. K., & Goodman, G. (1989). Psychology and self-help groups: Predictions on a partnership. American Psychologist, 44, 536-545.
23. Jeffcoate, J. A., Humphrey, M. E., & Lloyd, J. K. (1979). Role perception and response to stress in fathers and mothers following preterm delivery. Social Science in Medicine. 13, 139-145.
24. Klaus, M., & Kennell, J. (1985). Parent-infant bonding. London: Mosby.
25. Korteland, C., & Comwell, J. (1991). Evaluating family-centered programs in neonatal intensive care. Children's Health Care. 20, 56-61.
26. Lester, B. M., Boukydis, C. F. Z., Meyer, E., & Fueyo, M. (1995). Family-based intervention for infants in intensive care units. In R. Sauve & S. Saigal (Eds.), Optimizing the neonatal care environment: The 10th Canadian Ross conference (pp. 80-90). Montreal, Canada: Abbott Laboratories Ltd.
27. Levin, B. W. (1990). International perspectives on treatment choice in neonatal intensive care units. Social Science and Medicine, 30, 901-912.
28. Mangurten, H., Slade, C., & Fitzsimmons, D. (1979). Parent to parent support in the care of high-risk newborns. Journal of Obstetrical and Gynecological Nursing, 8, 275-277.
29. Marshall, R. E., Kasman, C., & Cape, L. (1982). Coping with caring for sick newborns, Philadelphia: Saunders.
30. Meyer, E., Garcia-Coll, C., Lester, B., Boukydis, C. F. Z., McDonough, S., & Oh, W. (1994). Family-based intervention improves maternal psychological well-being and feeding interaction of preterm infants. Pediatrics, 93, 241-246.
31. Minde, K., Shosenberg, N., Marton, P., Thompson, J., Ripley, J., & Burns, S. (1980). Self-help groups in a premature nursery-a controlled evaluation. Journal of Pediatrics, 96, 933-940.
32. Minde, K., Trehub, S., Corter, C., Boukydis, C. F. Z., Celhoffer, L., & Marton, P. (1978). Mother-child relationships in the premature nursery: An observational study. Pediatrics, 61, 373-379.
33. Nance, S. (1982). Premature babies: A handbook for parents. New York: Arbor House.
34. Neubauer, A. P. (1987). Gruppenbarbeit mit fruhgeborenen-eltern [Support groups for parents of premature infants]. Monatsschr Kinderheilkd, 135, 504-507.
35. Nugent, J. K. N. (Ed.). (1990). Ab initio: An international newsletter for professionals working with infants and their families. Boston: Child Development Unit, Children's Hospital.
36. Paludetto, R., Mansi, G., Rinaldi, P., Margara-Paludetto, P., & Faggiano-Perfetto, M. (1991). Working toward a humanized neonatal care system in Naples, Italy: Interactions between parents, infants and health care personnel. In K. Nugent, B. Lester, & T. B. Brazelton (Eds.), The cultural contact of infancy (Vol. 2, pp. 112-131). Norwood, NJ: Ablex.
37. Parent Care. (1989). NICU Questionnaire. 9041 Colgate St., Indianapolis, IN 46268-1210, U.S.A.
38. Rauh, V., Achenbach, T., Nurcombe, B., Howell, C., & Teti, D. (1988). Minimizing adverse effects of low birthweight: Four-year results of an early intervention program. Child Development, 59, 544-553.
39. Rosenfield, A. (1980). Visiting in the intensive care nursery. Child Development, 51, 939-941.
40. Thurman, S. K. (1991). Parameters for establishing family-centered neonatal intensive care services. Children's Health Care, 20, 34-39.
41. UNICEF. (1992). The state of the world's children. New York: Oxford University Press.
42. Ware, L. (1992). Results of research on the stability of parent support groups in neonatal intensive care units. Neonatal Intensive Care, 5, 28-32, 56-60.
43. Wranesh, B. (1982). The effect of sibling visiting on bacterial colonization rate ta neonates. Journal of Obstetrical and Gynecological Nursing, 11, 211-215.
44. Yu, V., Jamieson, J., & Astbury, J. (1981). Parents reactions to unrestricted parental contact with infants in the intensive care nursery. Medical Journal of Australia, 1, 294-297.
45. Zarling, C., Hirsch, B., & Landry, S. (1988). Maternal social networks and mother-infant interactions in full-term and very low birthweight, preterm infants. Child Development. 59, 178-185.
46. Zeskind, S., & Iaccino, R. (1984). Effects of maternal visitation to preterm infants ta the neonatal intensive care unit. Child Development, 55, 1887-1893.