Clinimetric properties of a parent report on their offspring's quality of life

Journal of Clinical Epidemiology

Volumn 53, Issue 2, 2000, Pages 139-146

  Le Coq, E M ^a,b   Boeke, A J P ^a,b   Bezemer, P D ^a,c   Bruil, J ^d   Van Eijk, J Th M ^d  

^a UNIVERSITY OF AMSTERDAM   (Netherlands)

^b Nursing Home Medicine   (Netherlands)

^c VU UNIVERSITY AMSTERDAM   (Netherlands)

^d NONE

Author keywords

Asthma; Methodology; Quality of life; Reproducibility; Responsiveness; Validity

Indexed keywords

ARTICLE; ASTHMA; CHRONIC DISEASE; CONTROLLED STUDY; FEMALE; HEALTH STATUS; HUMAN; MAJOR CLINICAL STUDY; MALE; MEASUREMENT; METHODOLOGY; PARENT; PRIORITY JOURNAL; PROGENY; QUALITY OF LIFE; QUESTIONNAIRE; REPRODUCIBILITY; SCHOOL CHILD; SCORING SYSTEM; VALIDATION PROCESS;

ASTHMA; CHILD; FEMALE; HEALTH STATUS; HEALTH STATUS INDICATORS; HUMANS; MALE; PARENTS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS;

EID: 0034058271     PISSN: 08954356     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0895-4356(99)00158-4     Document Type: Article

References (33)

1. Cocco G., D'Agostino F., Piotti L., Schiano M., Zanon P., Melillo G. Evaluation of quality of life in asthma. Eur Respir Rev. 3:1993;369-372.
2. Ware J.E. Jr. The assessment of health status. Aiken L.H., Mechanic D. Applications of Social Science to Clinical Medicine and Health Policy. 1986;204-228 Rutgers University Press, New Brunswick, NJ.
3. Spilker B. Introduction. Spilker B. Quality of Life Assessments in Clinical Trials. 1990;3-9 Raven Press, New York.
4. Calman K.C. Quality of life in cancer patients. a hypothesis J. Med Ethics. 10:1984;124-127.
5. Juniper E.F., Guyatt G.H., Epstein R.S., Ferrie P.J., Jeaschke R., Hiller T.K. Evaluation of health related quality of life in asthma. development of a questionnaire for use in clinical trials Thorax. 47:1992;78-83.
6. Hyland M.E., Finnis S., Irvine S.H. A scale for assessing quality of life in adult asthma sufferers. J Psychosom Res. 34:1991;99-110.
7. Creer T.L., Wigal J.K., Kotses H., McConnauchy K., Winder J.A. A life activities questionnaire for adult asthma. 1992;Ohio University, Department of Psychology, Athens.
8. Marks G.B., Dunn S.M., Woolcock A.J. A scale for the measurement of quality of life in adults with asthma. J Clin Epidemiol. 45:1992;461-472.
9. Jones P.W., Quirk F.H., Beveystock Z.C.M., Littlejohns P. A self-complete measure of health status for chronic airflow limitation. Am Rev Respir Dis. 145:1992;1321-1327.
10. Maillé A.R., Koning C.J., Zwinderman A.H., Willems L.N., Dijkman J.H., Kaptein A.A. The development of the 'quality of life for respiratory illness questionnaire (QOL-RIQ)'. a disease-specific quality-of-life questionnaire for patients with mild to moderate chronic non-specific lung disease Respir Med. 91:1997;297-309.
11. Usherwood T.P., Scrimgeour A., Barber J.H. Questionnaire to measure perceived symptoms and disability in asthma. Arch Dis Child. 65:1990;779-781.
12. Christie M.J., French D., Sowden A., West A. Development of child-centered disease-specific questionnaires for living with asthma. Psychosom Med. 55:1993;541-548.
13. Creer T.L., Marion R.J., Crer P.P. Asthma problem behavior checklist. parental perceptions of the behavior of asthmatic children J Asthma. 20:1983;97-104.
14. Creer T.L., Wigal J.K., Kotses H., Hatala J.C., McConnauchy K., Winder J.A. A life activities questionnaire for childhood asthma. J Asthma. 30:1993;467-473.
15. Juniper E.F., Guyatt G.H., Feeny D.H., Ferrier P.J., Griffith L.E., Townsend M. Measuring quality of life in children with asthma. Qual Life Res. 5:1996;35-46.
16. French D.J., Christie M.J., Sowden A.J. The reproducibility of the childhood asthma questionnaires. measures of quality of life for children aged 4-16 years Qual Life Res. 3:1994;215-224.
17. Ruthishauser C., Sawyer S.M., Bowes G. Quality-of-life assessment in children and adolescents with asthma. Eur Respir J. 12:1998;486-494.
18. Maes S, Bruil J. Assessing quality of life of children with a chronic illness. In: Rodriguez-Marin, editor. Health Psychology and Quality of Life Research, Proceedings of the 8th Annual Conference of the European Health Psychology Society, Vol. II. Allicante: University of Allicante, Health Psychology Department, 1995. pp. 637-52.
19. Bruil J, Maes S, Coq EM le, Boeke AJP. Assessing quality of life among children with a chronic illness, the development of a questionnaire. Paper presented at the 6th Florida conference on Child Health psychology, 23-26 April 1997.
20. Guyatt G., Walter S., Norman G. Measuring change over time. assessing the usefulness of evaluative instruments J Chron Dis. 40:1987;171-178.
21. Verhulst FC, Koot JM, Akkerhuis GW. Praktische handleiding voor de CBCL (Child Behavior Checklist) [Manual for the CBCL (Child Behavior Checklist)]. Assen/Maastricht: Van Gorcum, 1990.
22. Achenbach T.M., Edelbrock C. Manual for the Child Behavior Checklist and Revised Child Behavior Profile. 1983;University of Vermont Department of Psychiatry, Burlington.
23. Stein R.E.K., Jessop D.J. Functional Status II(R). a measure of child health status Med Care. 28:1990;1041-1055.
24. Warner J.O., Naspitz C.K. Third International Pediatric Consensus Statement on the Management of Childhood Asthma. Pediatr. Pulmonol. 25:1998;1-17.
25. Bruil J. Health related quality of life among primary school children with a chronic illness. The development of a quality of life instrument: the How Are You (HAY). Thesis, Leiden, 1999.
26. Quanjer PhH Tammeling G.J., Cotes J.E.et al. Lung volumes and forced ventilatory flows. Report working party standardization of lung function tests. European community for steel and coal. Eur Respir J. 6(Suppl. 16):1993;5-40.
27. Zapletal A., Samanek M., Paul T. Lung function in children and adolescents. Methods, reference values. Herzog H. Progress in Respiration Research. 1987;1-220 S Karger AG, Basel.
28. Deyo R.A., Centor R.M. Assessing the responsiveness of functional scales to clinical change. an analogy to diagnostic test performance J Chron Dis. 39:1986;897-906.
29. Kaptein A.A., Brand P.L.P., Dekker F.W.et al. Quality of life in a long-term multicentre trial in chronic nonspecific lung disease. assessment at baseline Eur Respir J. 6:1993;1479-1484.
30. Deyo R.A., Diehr P., Patrick D. Reproducibility and responsiveness of health status measures. Statistics and strategies for evaluation. Controlled Clin Trials. 12:1991;142-158.
31. Snedecor G.W., Cochran W.G. Statistical Methods. 1980;Iowa State University Press, Ames. pp. 74,166,183.
32. Cohen J. Statistical Power Analysis for the Behavioural Sciences. 1979;Academic Press, New York. pp. 1-27.
33. Sullivan S.A., Olson L.M. Developing condition-specific measures of functional status and well-being for children. Clin Perform Qual Health Care. 3:1995;132-139.