Disclosure of developmental disability: A study of paediatricians' practices

Journal of Paediatrics and Child Health

Volumn 36, Issue 1, 2000, Pages 27-31

  Hasnat, M J ^a   Graves, P ^a  

^a MONASH UNIVERSITY   (Australia)

Author keywords

Child developmental disorders; Diagnosis; Disabled; Paediatrics; Professional practice; Truth disclosure

Indexed keywords

ARTICLE; CLINICAL PRACTICE; DEVELOPMENTAL DISORDER; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; PATIENT ATTITUDE; PRIORITY JOURNAL; SCORING SYSTEM; TRAINING; VALIDATION PROCESS;

AUSTRALIA; CHILD; COMMUNICATION; DEVELOPMENTAL DISABILITIES; DISABLED CHILDREN; HUMANS; PARENTS; PEDIATRICS; PHYSICIAN'S PRACTICE PATTERNS; PHYSICIAN-PATIENT RELATIONS; TRUTH DISCLOSURE;

EID: 0033995268     PISSN: 10344810     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1440-1754.2000.00448.x     Document Type: Article

References (29)

1. Sloper P, Turner S. Determinants of parental satisfaction with disclosure of disability. Dev. Med. Child Neurol. 1993; 35: 816-25.
2. McKay M, Hensey O. From the other side: Parents' views of their early contacts with health professionals. Child Care Health Dev. 1990; 16: 373-81.
3. Quine L, Pahl J. First diagnosis of severe mental handicap: Characteristics of unsatisfactory encounters between doctors and parents. Soc. Sci. Med. 1987; 22: 53-62.
4. Cunningham CC, Morgan PA, McGucken RB. Down's syndrome: Is dissatisfaction with disclosure of diagnosis inevitable? Dev. Med. Child Neurol. 1984; 26: 33-9.
5. Firth MA. Diagnosis of duchenne muscular dystrophy: Experiences of parents of sufferers. BMJ 1983; 286: 700-1.
6. Murdoch JC. Communication of the diagnosis of down syndrome and spina bifida in Scotland 1971-81. J. Ment. Def. Res. 1983; 27: 247-53.
7. Tarran EC, Parents' views of medical and social work services for families with young cerebral palsied children. Dev. Med. Child. Neurol. 1981; 23: 173-82.
8. Right from the Start Working Group. Right from the Start Strategy: The Template. Scope, London, 1995.
9. Ryan S. Talking to the parents of a baby who is likely to develop permanent neurological impairment following brain insult in the perinatal period. Postgrad. Med. J. 1995; 71: 336-40.
10. Fallowfield L. Giving sad and bad news. Lancet 1993; 341: 476-8.
11. Krahn GL, Hallum A, Kime C. Are there good ways to give bad news? Pediatrics 1993; 91: 578-82.
12. Sloper P, Turner S. Determinants of parental satisfaction with disclosure of disability. Dev. Med. Child. Neurol. 1993; 35; 816-25.
13. Sharp MC, Strauss RP, Lorch SC. Communicating medical bad news: Parents' experiences and preferences, J. Pediatr. 1992; 121: 539-46.
14. Taylor DC. Counselling the parents of handicapped children. BMJ 1982; 284: 1027-8.
15. Cottrell DJ, Summers K. Communicating an evolutionary diagnosis of disability to parents. Child Care Health Dev. 1990; 16: 211-8.
16. Critchley EMR, Mitchell JD. Explanation and management of neurological disability, BMJ 1987; 294: 1203-5.
17. Olson J, Edwards M, Hunter JA. The physician's role in delivering sensitive information to families with handicapped infants. Clin. Pediatr. 1987; 26: 231-4.
18. Cunningham CC, Davis H. Early parent counselling. In Craft M, Bicknell J, Hollins S, eds. Mental Handicap. Balliere Tindall, London, 1985; 162-76.
19. Myers BA. The informing interview: Enabling parents to 'hear' and cope with bad news. Am. J. Dis. Child. 1983; 137: 572-7.
20. Shiono H, Kadowaki J. The questionnaire to parents of children with the Down's syndrome: How to inform parents and psychological responses to counselling. Am. J. Med. Gen. 1979; 4: 215-8.
21. Bocian ME, Kabac MM. Crisis counselling: The newborn infant with a chromosomal anomaly. Pediatr. Clinics N. Am. 1978; 25: 643-50.
22. Gayton WF, Walker L. Down syndrome: Informing the parents. Am. J. Dis. Child 1974; 127: 510-2.
23. Carr J. Mongolism: Telling the parents. Dev. Med. Child. Neurol. 1970; 12: 213-21.
24. Turner S, Sloper P. Pediatricians' practice in disclosure and follow-up of severe physical disability in young children. Dev. Med. Child. Neurol. 1992; 34: 348-58.
25. Lipton HL, Svarstad B. Sources of variation in clinicians communication to parents about mental retardation. Am. J. Ment. Def. 1977; 2: 155-61.
26. Nursey AD, Ronde JR, Fanner RDT. A study of doctors' and parents' attitudes to people with mental handicaps. J. Ment. Def. Res. 1990; 34: 143-55.
27. Wolraich ML. Communication between physicians and parents of handicapped children. Except. Child. 1982; 48: 324-9.
28. Hasnat MJ, Graves P. Disclosure of developmental disability: A study of paient satisfaction and the determinants of satisfaction. J. Paediatr. Child Health 2000; 36: 32-35.
29. Mackeith R. The feelings and behaviour of parents of handicapped children. Dev. Med. Child Neurol. 1973; 15: 524-7.