The use of large biological sample collections genetics research: Issues for public policy

New Genetics and Society

Volumn 19, Issue 2, 2000, Pages 165-191

  Martin, Paul ^a   Kaye, Jane ^b  

^a UNIVERSITY OF NOTTINGHAM   (United Kingdom)

^b UNIVERSITY OF OXFORD   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

CONFERENCE PAPER; GENETICS; HUMAN; MEDICAL INFORMATION; MEDICAL RESEARCH; MEDICOLEGAL ASPECT; POLICY; PRIORITY JOURNAL; SAMPLING; SOCIAL ASPECT; UNITED KINGDOM;

EID: 0033941638     PISSN: 14636778     EISSN: None     Source Type: Journal    
DOI: 10.1080/713687599     Document Type: Conference Paper

References (30)

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2. 2. www.decode.is
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4. 4. New York Times, 23 January 1999.
5. 5. Interview with David Thor Bjorgvinsson, Chairman of the Monitoring Committee on 6 July 1999.
6. 6. Anon. (1998) MRC funds large-scale human genetic database, Nature Medicine, 4 (12), p1346.
7. 7. See Anon (1999) People power: population profiles and common diseases, Wellcome News, Q3, p18.
8. 8. Ibid.
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10. 10. Convention for the Protection of Human Rights and the Dignity of the Human Being with regard to the Application of Biology and Medicine (Convention on Human Rights and Biomedicine) 1997 ETS No.164.
11. 11. Visit to the Council of Europe web site: http://www.coe.fr/tablconv/164t.htm (21 September 1999).
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13. 13. Royal College of Physicians Committee on Ethical Issues in Medicine (1999) Research based on archived information and samples. Journal of the Royal College of Physicians of London, 33 (3).
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17. 17. Dyer, C. (2000) GP reprimanded for testing patients for HIV without consent, British Medical Journal, 320, p. 135.
18. 18. Kennedy, I. & Grubb, A. (1998) Principles of Medical Law (Oxford: Oxford University Press).
19. 19. s.1(2) Human Tissue Act 1961.
20. 20. Dyer, C. (1999) Government orders inquiry into the removal of children's organs, British Medical Journal, 319, p. 1518.
21. 21. s1(1) Anatomy Act 1984.
22. 22. Herbert (1961) 25 J Criminal Law 163.
23. 23. R v. Welsh [1974] RTR 478.
24. 24. R v. Rothery [1976] RTR 478.
25. 25. [1998] 3 All ER 741.
26. 26. Lord Lester of Herne Hill QC appearing for the General Medical Council in the R v. Dept. of Health ex parte Source Informatics, The Times, 18 January 2000 (Transcript Smith Bernal 21 December 1999).
27. 27. W v. Edgell [1990] 1 All ER 835.
28. 28. The Times, 18 January 2000 (Transcript Smith Bernal 21 December 1999).
29. 29. Department of Health (1997) Report on the Review of Patient Identifiable Information.
30. 30. s.33(1)(b) Data Protection Act 1998.