Specialized continuing care models for persons with dementia: A systematic review of the research literature

Canadian Journal on Aging

Volumn 19, Issue 1, 2000, Pages 106-126

  Roberts, Jacqueline ^a   Browne, Gina ^a   Gafni, Amiram ^a   Varieur, Michael ^a   Loney, Patricia ^a   De Ruijter, Maureen ^a  

^a MCMASTER UNIVERSITY   (Canada)

Author keywords

Continuing Care; Dementia; Literature Review

Indexed keywords

ARTICLE; CAREGIVER; DEMENTIA; GERONTOPSYCHIATRY; INSTITUTIONAL CARE; PATIENT CARE; PUBLICATION;

EID: 0033934319     PISSN: 07149808     EISSN: None     Source Type: Journal    
DOI: 10.1017/S0714980800016615     Document Type: Article

References (61)

1. Alfredson, B., & Annerstedt, L. (1994). Staff attitudes and job satisfaction in the care of demented elderly people: Group living compared to long-term care institutions. Journal of Advanced Nursing, 20, 964-974.
2. Annerstedt, L. (1993). Development and consequences of group living in Sweden. Social Science Medicine, 37(12), 1529-1538.
3. Annerstedt, L. (1994). An attempt to determine the impact of group living care in comparison to traditional long-term care on demented elderly patients. Aging Clinical Experimental Research, 6(5), 372-380.
4. Annerstedt, L., Gustafson, L., & Nilsson, K. (1993). Medical outcomes of psychosocial intervention in demented patients: one-year clinical follow-up after relocation into group living units. International Journal of Geriatric Psychiatry, 8, 833-841.
5. Austin, B., & Melbourne, P. (1990). Hospice services for the terminal Alzheimer's patient. Caring Magazine, 9(11), 60-62.
6. Berg, L., Buckwalter, K., Chaftetz, P., Gwyther, L., Holmes, D., Koepke, K., Lawton, M., Lindeman, D., Magaziner, J., Maslow, K., Morley, J., Ory, M., Rabins, P., Sloan, P., & Teresi, J. (1991). Special care units for person with dementia. Journal of the American Geriatric Society, 39(12), 1229-1236.
7. Branch, L., Coulam, R., & Zimmerman, Y. (1995). The PACE evaluation: initial findings. The Gerontologist, 35(3), 349-359.
8. Brody, E., Saperstein, A., & Lawton, M.P. (1989). A multi-service respite program for caregivers of Alzheimer's patients. Journal of Gerontological Social Work, 14(1/2), 41-74.
9. Brooks, C. (1989). Cost differences between hospice and non-hospice care. A comparison of insurer payments and provider charges. Evaluations & The Health Professions, 12(2), 159-178.
10. Burdz, M., Eaton, W., & Bond, J. (1988). Effects of respite care on dementia and nondementia patients and their caregivers. Psychology and Aging, 3(1), 38-42.
11. Canadian Study for Health and Aging Working Group. (1994). Canadian study of health and aging: study methods and prevalence of dementia. Canadian Medical Association Journal, 150(6), 899-912.
12. Carr, J., & Marshall, M. (1993). Innovations in long stay care for people with dementia. Reviews in Clinical Gerontology, 3, 157-167.
13. Cole, M. (1988). Evaluation of psychogeriatric services. Canadian Journal of Psychiatry, 33(1), 57-58.
14. Conlin, M., Caranasos, G., & Davidson, R. (1992). Reduction of caregiver stress by respite care: a pilot study. Southern Medical Journal, 85(11), 1096-1100.
15. Coon, D. (1991). A concept in search of standards. In D. Coons (ed) Specialized Dementia Care Units. Baltimore: John Hopkins University Press.
16. Donaldson, C., & Gregson, B. (1989). Prolonging life at home: what is the cost? Community Medicine, 2(3), 200-209.
17. Drummond, M., Mohide, A., Tew, M., Streiner, D., Pringle, D., & Gilbert, J.R. (1991). Economic evaluation of a support program for caregivers of demented elderly. International Journal of Technology Assessment in Health Care, 7(2), 209-219.
18. Engedal, K. (1989). Day care for demented patients in general nursing homes. Scandinavian Journal of Primary Health Care, 7, 161-166.
19. Ernst, R., & Hay, J. (1994). The US economic and social costs of Alzheimer's Disease revisited. American Journal of Public Health, 84(8), 1261-1264
20. Guyatt, G., Sackett, D., & Cook, D. (1993) (1994). Users Guides to the Medical Literature. II How to use an article about therapy or prevention: A. Journal of the American Medical Association, 270(21), 2598-2601; B. Journal of the American Medical Association, 271(1), 59-63.
21. Guyatt, G., Sackett, D., & Cook, D. (1993) (1994). Users Guides to the Medical Literature. II How to use an article about therapy or prevention: A. Journal of the American Medical Association, 270(21), 2598-2601; B. Journal of the American Medical Association, 271(1), 59-63.
22. Haynes, B., Sackett, D., Gray, J., Cook, D., & Guyatt, G. (1996). Transferring evidence from research into practice. 1. The role of clinical care research evidence into clinical decisions. Evidenced Based Medicine, Nov./Dec., 196-197.
23. Hedrick, S., Rothman, M., Chapko, M., Ehreth, J., Diehr, P., Inui, T., Connis, R., Grover, P., & Kelly, J. (1993). Summary and discussion of methods and results of the adult day care evaluation study. Medical Care, 31(9), SS94-SS103.
24. Heyland, D., Kernerman, P., Gafni, A., & Cook, D. (1996). Economic evaluations in the critical care literature: do they help us improve the efficiency of our unit? Critical Care Medicine, 2(9), 1591-1598.
25. Holmes, D., Teresi, J., Weiner, A., Monaco, C., Ronch, J., & Vickers, R. (1990). Impacts associated with special care units in long term care facilities. The Gerontologist, 30(2), 178-183.
26. Hu, T., Huang, L., & Cartwright, W. (1986). Evaluation of the costs of caring for the senile demented elderly: a pilot study. The Gerontologist, 26(2), 158-163.
27. Kemper, P., Applebaum, R., & Harriagan, M. (1987). Community care demonstrations: What have we learned? Health Care Financing Review, 5(4), 87-100.
28. Lavoie, J.P. (1995). Support groups for informal caregivers don't work! Refocus the groups or the evaluations. Canadian Journal on Aging, 14(3), 580-603.
29. Lawton, M.P., Brody, E., & Saperstein, A. (1989). A controlled study of respite service for caregivers of Alzheimer's patients. The Gerontologist, 29(1), 8-16.
30. Loney, P., Chambers, L., Bennett, K., Roberts, J., & Stratford, P. (1998). Critical appraisal of the health research literature: Prevalence or incidence of a health problem. Chronic Diseases of Canada, 19(4), 170-176.
31. Maas, M., Swanson, E., Specht, J., & Buckwalter, K. (1994). Alzheimer's special care units. Nursing Clinics of North America, 29(1), 173-194.
32. Max, W., Webber, P., & Fox, P. (1995). Alzheimer Disease: the unpaid burden of caring. Journal of Aging and Health, 7(2), 179-199.
33. Milne, C., Sacco, C., Cetinski, G., & Roberts, J. (1992). Correlates of caregiver wellbeing with and without the use of a day programme for cognitively impaired elderly. Working Paper 92-1, System-Linked Research Unit, McMaster University, Hamilton, ON.
34. Mitchell, N. (1997). Personal communication. Care Manager of McConnell Place North of the Capital Care Group. Edmonton, Alberta.
35. Mittelman, M., Ferris, S., Shulman, E., Steinberg, G., & Levin, B. (1996). A Family Intervention to Delay Nursing Home Placement of Patients with Alzheimer Disease. JAMA, 276(21), 1725-1731.
36. Mittelman, M.S., Ferris, S.H., Steinberg, G., Shulman, E., Mackell, J.A., Ambinder, A., & Cohen, J. (1993). An intervention that delays institutionalization of Alzheimer's Disease patients: treatment of spouse-caregivers. Gerontologist, 33, 730-740.
37. Mohide, E.A., Pringle, D.M., Streiner, D.L., Gilbert, J.R., Muir, G., & Tew, M. (1990). A randomized trial of family caregiver support in the home management of dementia. Journal of the American Geriatrics Society, 38, 446-454.
38. Montgomery, R. (1988). Respite care: lessons from a controlled design study. Health Care Financing Review, Annual Supplement, 133-138.
39. O'Leary, M., & Glenner, J. (1989). Parallel programming: for Alzheimer's disease and other Dementia patients. American Journal of Alzheimer's Care and Related Disorders and Research, 4(5), 19-23.
40. Ostbye, T., & Crosse, E. (1994). Net economic costs of dementia in Canada. Canadian Medical Association Journal, 151(10), 1457-1464.
41. Oxman, A., Cook, D., & Guyatt, G. (1994). Users guides to the medical literature: VII. How to use an overview. JAMA, 272(17), 1367-1371.
42. Reifler, B., Kethley, A., O'Neill, P., Hanley, R., Lewis, S., & Stenchever, D. (1982). Five-year experience of a community outreach program for the elderly. American Journal of Psychiatry, 139(2), 220-223.
43. Rice, D., Fox, P., Max, W., Webber, P., Lindeman, D. Hauch, W., & Sequia, E. (1993). The economic burden of A.Z. care. Data Watch, Summer, 164-176.
44. Roberts, J., Browne, G., & Denton, M. (1995). Assessment of respite needs: caregivers of cognitively impaired persons living in the Halton Community. Final Report. New Horizons Grant, System-Linked Research Unit, McMaster University, Hamilton, ON.
45. Roberts, J., Browne, G., Milne, C., Spooner, L., Gafni, A., Watt, S., Drummond-Young, M., Legris, J., LeClair, K., Beaumont, L., & Roberts, J. (1999). Problem solving counselling for caregivers of cognitively impaired: Effective for whom? Nursing Research, 48(3), 263-272.
46. Rovner, B., Steile, C., Shmuely, Y., & Folstein, M. (1996). A randomized trial of dementia care in nursing homes. JAGS, 44(7), 7-13.
47. Sackett, D., Rosenberg, W., Gray, J.A., Haynes, R.B., & Richardson, W. (1996). Evidenced based medicine: what it is and what it isn't. British Medical Journal, 312, 71-72.
48. Stolee, P., Kessler, L., & Le Clair, K. (1996). A community development and outreach program in geriatric mental health: four years' experience. Journal of American Geriatrics Society, 44(3), 314-320.
49. Tooth, J. (1996). Who wants a home life? Journal of Dementia Care, July/August, 12-14.
50. Volicer, L., Collard, A., Hurley, A., Bishop, C., Kern, D., & Karon, S. (1994). Impact of special care units for patients with advanced Alzheimer's disease on patients' discomfort and costs. Journal of the American Geriatric Society, 42(6), 597-603.
51. Wankel, M., Saunder, L., Pong, R., & Church, W. (1995). Building a stronger foundation: a framework for planning and evaluating community-based health services in Canada. Internet http://www.hwc.ca/datahpsb/hssa/ pln&eval.ans.
52. Weinberger, M., Gold, D., Divine, G., Cowper, P., Hodgson, L., Schrevner, M., & George, L. (1993). Expenditures in caring for patients with dementia who live at home. American Journal of Public Health, 83(3), 338-341.
53. Weissert, W., Wan, T., Livierators, B., & Katz, S. (1980). Effects and costs of day-care services for the chronically ill - a randomized experiment. Medical Care, 18(6), 567-584.
54. Welch, H., Walsh, J., & Larson, E. (1992). The cost of institutional care in Alzheimer's Disease: nursing home and hospital use in a prospective cohort. Journal of the American Geriatrics Society, 40, 221-224.
55. Wells, Y., & Jorm, A. (1987). Evaluation of a special nursing home unit for dementia sufferers: A randomized controlled comparison with community care. Australian and New Zealand Journal of Psychiatry, 21, 524-531.
56. Wilson, S., Kovach, C., & Stearns, S. (1996). Hospice concepts in the care of end-stage dementia. Geriatric Nursing, 17(1), 6-10.
57. Wimo, A., Krakau, I., Mattsson, B., & Nelvig, A. (1994). The impact of cognitive decline and workload on the costs of dementia care. International Journal of Geriatric Psychiatry, 9, 479-489.
58. Wimo, A., Mattsson, B., Adolfsson, R., Eriksson, T., & Nelvig, A. (1993). Dementia day care and its effects on symptoms and institutionalization - a controlled Swedish study. Scandinavian Journal of Primary Health Care, 11, 117-123.
59. Wimo, A., Mattson, B., Krakau, I., Eriksson, T., Nelvig, A., & Karlsson, G. (1995). Cost-utility analysis of group living in dementia care. International Journal of Technology Assessment in Health Care, 11(1), 49-65.
60. Worrall, G., & Chambers, L. (1989). Can we afford not to evaluate services for persons with dementia. Canadian Family Physician, 35, 573-580.
61. Yesavage, J., & Brooks III, J. (1991). On the importance of longitudinal research in Alzheimer's Disease. American Geriatrics Society, 39, 942-944.