A one-year follow-up study of family caregivers of institutionalized elders with dementia

American Journal of Alzheimer's Disease and Other Dementias

Volumn 15, Issue 4, 2000, Pages 229-238

  Lévesque, Louise ^a   Ducharme, Francine ^a   Lachance, Lise ^b  

^a CENTRE DE RECHERCHE   (Canada)

^b UNIVERSITÉ DU QUÉBEC À CHICOUTIMI   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CAREGIVER; COPING BEHAVIOR; DEMENTIA; DISTRESS SYNDROME; FOLLOW UP; HUMAN; REGRESSION ANALYSIS; SOCIAL SUPPORT; STRESS; WELLBEING;

EID: 0033898126     PISSN: 15333175     EISSN: None     Source Type: Journal    
DOI: 10.1177/153331750001500405     Document Type: Article

References (51)

1. Naleppa MJ: Families and the institutionalized elderly: A review. Journal of Gerontological Social Work. 1996; 27: 87-111.
2. Chenier MC: Review and analysis of caregiver burden and nursing home placement. Geriatric Nursing. 1997; 18: 121-126.
3. Winslow BW, Carter P: Patterns of burden in wives who care for husband with dementia. Nursing Clinics of North America. 1999; 34: 275-286.
4. Almberg B, Grafström M, Winblad B: Caring for a demented elderly person-Burden and burnout among caregiving relatives. Journal of Advanced Nursing. 1997; 25: 109-116.
5. Aneshensel CS, Pearlin LI, Mullan JT, et al: Profiles in Caregiving: The unexpected Career. New York: Academic Press., 1995.
6. Barber CE: Spousal care of Alzheimer's disease patients in nursing home versus in-home settings: Patient impairments and caregiver impacts. Clinical Gerontologist. 1993; 12: 3-30.
7. Buck D, Gregson BA, Bamford CH, et al: Psychological distress among informal supporters of frail older people at home and in institutions. International Journal of Geriatric Psychiatry. 1997; 12: 737-744.
8. Grafström M, Fratiglioni L, Sandman PO, Winblad B: Health and social consequences for relatives of demented and non-demented elderly. A population based study. Journal of Clinical Epidemiology. 1992; 45: 861-870.
9. King S, Collins C, Given B, Vredevoogd J: Institutionalization of an elderly family member: Reactions of spouse and non-spouse caregivers. Archives of Psychiatric Nursing. 1991; 5: 323-330.
10. Stephens MAP, Kinney JM, Ogrocki PK: Stressors and well-being among caregivers to older adults with dementia: The in-home versus nursing home experience. The Gerontologist. 1991; 31: 217-223.
11. Pratt C, Wright S, Schmall V: Burden, coping and health status: A comparison of family caregivers to community dwelling and institutionalized Alzheimer's patients. Journal of Gerontological Social Work. 1987; 10: 99-112.
12. Gaugler JE, Zarit S, Pearlin, LI: Caregiving and institutionalization: Perceptions of family conflict and socioemotional support. International Journal of Aging and Human Development. 1999; 49: 1-25.
13. Hertzberg A, Ekman SL: How the relatives of elderly patients in institutional care perceive the staff. Scandinavian Journal of Caring Sciences. 1996; 10: 205-211.
14. McCallion P, Toseland R, Freeman K: An evaluation of a family visit education program. American Geriatrics Society. 1999; 47: 203-214.
15. Townsend AL: Nursing home care and the family caregivers’ stress. In MAP Stephens & coll. (Eds.): Stress and coping in later-life families(pp. 267-280). New York: Hemisphere Publishing Corporation., 1990.
16. Zarit SH, Whitlatch CJ: Institutional placement: Phases of the transition. The Gerontologist. 1992; 32: 665-672.
17. Ducharme F, Lévesque L, Gendron M, Legault A: A program to promote the mental health of family caregivers of institutionalized demented elderly patients: Development process and qualitative evaluation. Clinical Nursing Research. (accepted).
18. Bonder BR, Miller B, Linsk M: Who should do what? Staff and family responsibilities for persons with Alzheimer's disease in nursing homes. Clinical Gerontologist. 1991; 10: 80-84.
19. Bowers B: Family perception of care in a nursing home. The Gerontologist. 1988; 28: 361-369.
20. Duncan MT, Morgan DL: Sharing the caring: Family caregivers’ views of their relationships with nursing home staff. The Gerontologist. 1994; 34: 235-244.
21. Maas ML, Buckwalter KC, Kelley LS, Stolley JM: Family members’ perceptions. How they view care of Alzheimer's patients in a nursing home. Journal of Long-term Care Administration. 1991; 19: 21-25.
22. Rosenthal CJ, Sulman J, Marshall VW: Problems experienced by families of long-stay patients. Canadian Journal on Aging/La revue canadienne du vieillissement. 1992; 11: 169-183.
23. Collin C, Stommel M, Wang S, Given CW: Caregiving transitions: Changes in depression among family caregivers of relatives with dementia. Nursing Research. 1994; 43: 220-225.
24. Elmstahl S, Ingvad B, Annerstedt L: Family caregiving in dementia: Prediction of caregiver burden 12 months after relocation to group-living care. International Psychogeriatrics. 1998; 10: 127-146.
25. Grafström M, Winblad B: Family burden in the care of the demented and nondemented elderly-A longitudinal study. Alzheimer Disease and Associated Disorders. 1995; 9: 78-86.
26. Lazarus RS, Folkman S: Stress, appraisal and coping. New York: Springer., 1984.
27. Biegel DE, Sales E, Schulz R: Family caregiving in chronic illness. Newbury Park, CA: Sage., 1991.
28. Zarit SH: Issues and directions in family: Intervention research. In E Light & BD Lebowitz (Eds.): Alzheimer's disease treatment and family stress: Directions for Research(pp. 458-486). Rockville, MD: National Institute of Mental Health., 1989.
29. Kammer CH: Stress and coping of family members responsible for nursing home placement. Research in Nursing & Health. 1994; 17: 89-98.
30. Lévesque L, Cossette S, Laurin L: A multidimensional examination of the psychological and social well-being of caregivers of a demented relative. Research on Aging. 1995; 17: 332-360.
31. Pearlin LI, Mullan JT, Semple SJ, Skaff MM: Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist. 1990; 30: 583-594.
32. Folstein M, Folstein S, McHugh P: Mini-Mental State: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research. 1975; 12: 189-198.
33. Lévesque L, Ducharme, F, Lachance L: Is there a difference between family caregiving of institutionalized elders with or without dementia? Western Journal of Nursing Research. 1999; 21: 472-497.
34. Gouvernement du Québec: Enquête Santé Québec: enquête sociale et de santé de 1992-1993. Québec, Canada: Ministre de la Santé et des Services sociaux., 1996.
35. Gendron M, Lévesque L: Evaluating the functional autonomy of persons with Alzheimer's disease: A tool for observing four activities of daily living. The American Journal of Alzheimer's Care and Related Disorders and Research. 1993; 8: 24-35.
36. Hébert R, Bravo G, Girouard D: Fidélité de la traduction française de trois instruments d’évaluation des aidants naturels de malades déments. Canadian Journal on Aging/La Revue Canadienne du Vieillissement. 1993; 12: 324-337.
37. Teri L, Truax P, Logsdon R, et al: Assessment of behavioral problems in dementia: The revised memory and behavior problems checklist. Psychology and Aging. 1992; 4, 622-631.
38. Tilden VP, Nelson CA, May BA: The IPR Inventory: Development and psychometric characteristics. Nursing Research. 1990; 39, 337-343.
39. Haccoun RR: Une nouvelle technique de vérification de l’équivalence de mesures psychologiques traduites. Revue Québécoise de Psychologie. 1987; 8: 30-39.
40. Moos RH, Cronkite RC, Finney JW: Health and Daily Living Form: Manual. 2nd. edition. Palo Alto, CA: Center of Health Care Evaluation, Stanford University., 1990.
41. Billing AG, Moss RH: The role of coping responses and social resources in attenuating the stress of life events. Journal of Behavioral Medicine. 1981; 4: 139-157.
42. Ilfeld FW: Further validation of Psychiatric Symptom Index in a normal population. Psychological Report. 1976; 39: 1215-1228.
43. Bradburn NM: The structure of psychological well-being. Chicago, IL: Adline., 1969.
44. George LK, Bearon LB: Quality of life in older persons. New York: Human Sciences Press., 1980.
45. Perkinson MA, Albert SM, Luborsky M, et al: Exploring the validity of the Affect Balance Scale with a sample of family caregivers. Journal of Gerontology. 1994; 49: S264-S265.
46. Canadian Study of Health and Aging Working Group: Patterns of caring for people with dementia in Canada. Canadian Journal on Aging/La revue canadienne du vieillissement. 1994; 13, 470-487.
47. Cohen S, Wills T: Stress, social support and the buffering hypothesis. Psychological Bulletin. 1985; 98: 310-357.
48. Stewart MJ: Integrating social support in nursing. Newbury Park: Sage., 1993.
49. Billings AG, Moos RH: Coping, stress, and social resources among adults with unipolar depression. Psychological Bullletin. 1984; 46: 877-891.
50. Twigg J: Models of carers: How do social care agencies conceptualize their relationship with informal carers? Journal of Social Policy. 1989; 18: 53-56.
51. Kalton G, Kasprzyk D, McMillen D: Nonsampling errors in panel surveys. In DG Kasprzyk, G Duncan, G Kalton, M Singh (Eds.) Panel Survey. New-York: Willey.