Protection of privacy by third-party encryption in genetic research in Iceland

European Journal of Human Genetics

Volumn 8, Issue 10, 2000, Pages 739-742

  Gulcher, J R ^a   Kristjansson, K ^a   Gudbjartsson, H ^a   Stefansson, K ^a  

^a DECODE GENETICS   (Iceland)

Author keywords

Biobank; Database; Encryption; Ethics; Genetics; Privacy; Sample bank; Third party

Indexed keywords

ARTICLE; COMPUTER PROGRAM; COMPUTER SECURITY; DATA BASE; GENETIC ANALYSIS; HUMAN; ICELAND; INFORMATION RETRIEVAL; LABORATORY; MEDICAL GENETICS; MEDICAL INFORMATION; MEDICAL RESEARCH; MEDICAL SCHOOL; PATIENT INFORMATION; PHENOTYPE; PREDICTION; PRIORITY JOURNAL; PRIVACY; RETRIEVAL SYSTEM; SAMPLING; STORAGE; VOLUNTEER;

BIOETHICS; COMPUTER COMMUNICATION NETWORKS; COMPUTER SECURITY; CONFIDENTIALITY; DATABASES, FACTUAL; FAMILY; GENETICS; GENOTYPE; HUMAN; ICELAND; PEDIGREE; PHENOTYPE;

EID: 0033772930     PISSN: 10184813     EISSN: None     Source Type: Journal    
DOI: 10.1038/sj.ejhg.5200530     Document Type: Article

References (12)

1. Concerns about privacy in research may be exaggerated
2. Statement on the principled conduct of genetic research
3. Control of DNA samples and information
4. Response to the NBAC on ethical issues surrounding research using human biological samples
5. Privacy in genetic research
6. Population genomics: Laying the ground-work for genetic disease modeling and targeting
7. The Icelandic Healthcare Database: A tool to create knowledge, a social debate, a bioethical and privacy challenge
8. Reducing the vertical transmission of HIV. Anonymous testing is unethical
9. Screening and the new genetics; a public health perspective on the ethical debate