Should genetic health care providers attempt to influence reproductive outcome using directive counseling techniques? a public health prospective

Women and Health

Volumn 30, Issue 3, 2000, Pages 39-47

  Fineman, Robert M ^a,b   Walton, Michael T ^c  

^a DOH Office of Maternal and Child Health   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

^c NONE

Author keywords

Directiveness; Ethics; Genetic counseling; Pregnancy outcome

Indexed keywords

ALCOHOL; FOLIC ACID;

ABORTION; ALCOHOL CONSUMPTION; ARTICLE; BIRTH DEFECT; CONGENITAL RUBELLA SYNDROME; FETAL ALCOHOL SYNDROME; GENETIC COUNSELING; HEALTH CARE ORGANIZATION; HEALTH CARE PERSONNEL; HEALTH CARE POLICY; HEALTH PROMOTION; HUMAN; MAJOR CLINICAL STUDY; MATERNAL WELFARE; NEURAL TUBE DEFECT; PATIENT COUNSELING; PRACTICE GUIDELINE; PREGNANCY COMPLICATION; PRENATAL DIAGNOSIS; PRIMARY PREVENTION; PUBLIC HEALTH; WELLBEING;

EID: 0033636327     PISSN: 03630242     EISSN: 15410331     Source Type: Journal    
DOI: 10.1300/J013v30n03_03     Document Type: Article

References (24)

1. Ad Hoc Committee on Genetic Counseling. 1975. Genetic counseling. American Journal of Human Genetics, 27:240–242.
2. Allen, G.E., 1975. Genetics, eugenics, and class struggle. Genetics, 79:29–45.
3. Andrews, L.B., Fullarton, J.E., Holtzman, N.A., and Motulsky, A., 1993. Assessing genetic risks:Implications for health and social policy, Washington, DC:National Academy Press, Institute of Medicine.
4. Baumiller, R.C., Comley, S., Cunningham, G., Fisher, N., Fox, L., Henderson, M., Lebel, R.R., McGrath, G., Pelias, M.K., Porter, I., and Willson, N.R., 1994. Code of ethical principles for genetics professionals, Council of Regional Networks for Genetic Services.
5. Baumiller, R.C., Comley, S., Cunningham, G., Fisher, N., Fox, L., Henderson, M., Lebel, R.R., McGrath, G., Pelias, Z., Porter, I., and Willson, N.R., 1996. Code of ethical principles for genetics professionals. American Journal of Medical Genetics, 65:177–178.
6. Burke, B.M., and Kolker, A., 1994. Directiveness in prenatal genetic counseling. Women, & Health, 22:31–53.
7. Caplan, A.L., 1993. Neutrality is not morality:The ethics of genetic counseling, in Prescribing our future:Ethical challenges in genetic counseling, Edited by:Editors:Bartels, D.M., LeRoy, B.S., and Caplan, A.L., 149–165. New York:Aldine De Gruyter. pages –
8. Doyle, D.L., 1995/1996. On the horizon:A CPT code specific to genetic counseling. Perspectives in Genetic Counseling, 17(4):1–5.
9. Fletcher, J.C., Berg, K., and Tannoy, K.E., 1985. Ethical aspects of genetic counseling:A proposal for guidelines in genetic counseling, prenatal diagnosis, and screening. Clinical Genetics, 27:199–205.
10. Garver, K., and Marchese, S.C., 1986. Genetic counseling for clinicians, 2–3. Chicago:Yearbook Medical Publishers.
11. Gert, B., Berger, E.M., Cahill, G.F., Clouser, K.D., Culver, C.M., Moeschler, J.B., and Singer, G.H. S., 1996. Morality and the new genetics, 125–145. Sudbury, Massachusetts:Jones and Bartlett Publishers.
12. Gervais, K.G., 1993. “Objectivity, value neutrality and nondirectiveness in genetic counseling”. In Prescribing our future:Ethical challenges in genetic counseling, Edited by:Editors:Bartels, D.M., LeRoy, B.S., and Caplan, A.L., 119–130. New York:Aldine De Gruyter. pages –
13. Haller, M. 1963. Eugenics, New Brunswick:Rutgers University Press.
14. Ludmerer, K., 1972. Genetics and American Society, Baltimore:Johns Hopkins Press.
15. Michie, S., Bron, F., Bobrow, M., and Marteau, T.M., 1997. Nondirectiveness in genetic counseling:An empirical study. American Journal of Human Genetics, 60:40–47.
16. Milunsky, A., 1992. Genetic disorders and the fetus:Diagnosis, prevention, and treatment, 3rd edition, 1–31. Baltimore:Johns Hopkins University Press.
17. Motulsky, A.G., 1994. Predictive genetic diagnosis. American Journal of Human Genetics, 55:603–605.
18. Pauker, S.G., and Kassirer, J.P., 1987. Decision analysis. New England Journal of Medicine, 316:250–258.
19. Planned Parenthood of Southeastern Pennsylvania v. Casey. 1994. 114 S Ct 909.
20. Report from the American Society of Human Genetics Information and Education Committee. 1995. Medical school core curriculum in genetics. American Journal of Human Genetics, 56:535–537.
21. 1973. Roe v. Wade, 410 U 113
22. Streissguth, A.P., Grant, T.L., and Ernst, C.C., 1996/1997. The birth to 3 program:A plan of action for Washington State Paper presented to the House of Representatives Committee on Children and Family Services, Olympia, WA
23. Wertz, D.C., and Fletcher, J.C., 1988. Attitudes of genetic counseling:A multi-national survey. American Journal of Human Genetics, 42:592–600.
24. Yarborough, M., Scott, J.A., and Dixon, L.K., 1989. The role of beneficence in clinical genetics:Non-directive counseling reconsidered. Theoretical Medicine, 10(2):139–149.