Continuum of palliative care: Lessons from caring for children infected with HIV-1

Lancet

Volumn 354, Issue 9186, 1999, Pages 1287-1291

  Oleske, James M ^a   Czarniecki, Lynn ^a  

^a MSB F 570A   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; CHILDHOOD CANCER; CHILDHOOD DISEASE; CHILDHOOD MORTALITY; EPIDEMIC; HISTORY OF MEDICINE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS 1; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; PALLIATIVE THERAPY; PERINATAL INFECTION; PRIORITY JOURNAL; QUALITY OF LIFE; REVIEW; TERMINAL CARE;

EID: 0033539316     PISSN: 01406736     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0140-6736(98)12487-X     Document Type: Note

References (36)

1. Grothe T.M., Brody R.V. Palliative care for HIV disease. J Palliat Care. 11:1995;48-49.
2. Von Gunten C.F., Martinez J., Neely K.J., von Roenn J.H. AIDS and palliative medicine: medical treatment issues. J Palliat Care. 11:1995;5-9.
3. Report on the global HIV/AIDS epidemic, June 1996. 1998;UNAIDS/WHO, Geneva.
4. Liben S. Pediatric palliative medicine: obstacles to overcome. J Palliat Care. 12:1996;24-28.
5. Martinson I.M. Hospice care for children: past, present, and future. J Pediatr Oncol Nurs. 10:1993;93-98.
6. Martinson I.M., Moldow D.G., Armstrong G.O.et al. Home care for children dying of cancer. Res Nurs Health. 9:1986;11-16.
7. Foley F., Flannery S. AIDS palliative care: challenging the palliative paradigm. J Palliat Care. 11:1995;34-37.
8. The World Health Report 1995: bridging the gap. Report of the Director General. 1995;WHO, Geneva.
9. Martinson I.M. An international perspective on palliative care for children. J Palliat Care. 12:1996;13-15.
10. Oleske J.M. The many needs of the HIV-infected child. Hosp Pract. 29:1994;81-87.
11. Boland M., Burr C., Harvey D. Pediatric AIDS revisited: family, social and legal issues. Semin Pediatr Infect Dis. 6:1995;40-45.
12. Lewis S.Y., Haiken H.J., Hoyt L.G. Living beyond the odds: a psychosocial perspective of long-term survivors of pediatric human immunodeficiency virus infection. J Dev Behav Pediatr. 15:1994;12-17.
13. Nielsen K., McSherry G., Petru A.et al. A descriptive survey of pediatric human immunodeficiency virus-infected long term survivors. Pediatrics. 99:1997;1-7.
14. Futterman D., Hein K. Medical care of HIV-infected adolescents. AIDS Clin Care. 4:1992;95-98.
15. Oleske JM. Preventing disability and providing rehabilitation for infants, children and youths with HIV/AIDS. NIH publication no 95-3850. Bethesda, MD: US Department of Health and Human Services/National Institute of Child Health and Human Development, January, 1995.
16. Ferris F., Flannery J. A comprehensive guide for the care of persons with HIV disease - module 4: palliative care. 1995;Mount Sinai Hospital/Casey House, Toronto.
17. James L., Johnson B. The needs of parent of pediatric oncology patients during the palliative care phase. J Pediatr Oncol Nurs. 14:1997;83-95.
18. DeTrill M., Kovalcik R. The child with cancer. Influence of culture on truth-telling and patient care. Am NY Acad Sci. 809:1997;197-210.
19. Tasker M. How can I tell you? Secrecy and disclosure with children when a family member has AIDS. 1992;Association for the Care of Children's Health, Bethesda, MD.
20. Oleske J.M., Ruben-Hale A. Enhancing supportive care and promoting quality of life: clinical practice guidelines. Pediatr AIDS HIV Infect Fetus Adolesc. 6:1995;187-203.
21. Convention on the rights of children. 1991;United Nations, New York.
22. Levetown M. Ethical aspects of pediatric palliative care. J Palliat Care. 12:1996;35-39.
23. CDC. Guidelines for the use of antiretroviral agents in pediatric HIV infection. MMWR Morb Mortal Wkly Rep 1998; 47 (RR-4): 1-43 [published erratum appears in MMWR Morb Mortal Wkly Rep 1998; 47: 315].
24. CDC. Guidelines for the use of antiretroviral agents in pediatric HIV infection. MMWR Morb Mortal Wkly Rep 1998; 47 (RR-4): 1-43 [published erratum appears in MMWR Morb Mortal Wkly Rep 1998; 47: 315].
25. Oleske J.M., Rothpletz-Puglia P.M., Winter H. Historical perspectives on the evolution in understanding the importance of nutritional care in pediatric HIV infection. J Nutr. 126:1996;2616-2619.
26. Pellegrino E.D. Emerging ethical issues in palliative care. JAMA. 279:1998;1521-1522.
27. Reiter G., Kudler N. HIV and palliative care: part I and II. AIDS Clin Care. 8:1996;21-34.
28. Grubman S., Gross E., Lerner-Weiss N.et al. Older children and adolescents with perinatally acquired HIV infection. Pediatrics. 95:1995;657-666.
29. El-Sadr W, Oleske JM, Agins BD, et al. Evaluation and management of early HIV infection. Clinical practice guideline no 7. AHCPR publication no 94-0572. Rockville, MD: Agency for Health Care Policy and Research/Public Health Service/US Department of Health and Human Services, January, 1994.
30. Rothpletz-Puglia P.M. Perspectives in practice: case report of children infected with HIV. Topics Clin Nutr. 12:1997;69-77.
31. Welch K., Kissinger P., Bessinger R.et al. The clinical profile of end stage AIDS. AIDS Patient Care STD. 12:1998;125-129.
32. Czarniecki L., Boland M., Oleske J.M. Pain in children with HIV disease. PAAC Notes. 5:1993;492-495.
33. Oleske J., Boland M. When a child with a chronic condition needs hospitalization. Hosp Pract. 32:1997;167-181.
34. Corner J. Is there a research paradigm for palliative care? Palliat Med. 10:1996;201-208.
35. Billings J.A., Block S. Palliative care in undergraduate medical education. JAMA. 278:1997;733-738.
36. Martinson I.M. Pediatric hospice nursing. Ann Rev Nurs Res. 13:1995;195-214.