Finding ethical principles and practical guidelines for the controlled flow of patient data

Methods of Information in Medicine

Volumn 38, Issue 4-5, 1999, Pages 345-349

  Rigby, Michael ^a   Draper, R ^b   Hamilton, I ^b  

^a KEELE UNIVERSITY   (United Kingdom)

^b St John of God Hospitaller Services Ireland   (Ireland)

Author keywords

Confidentiality; Duty of Care; Electronic Patient Records; Ethics

Indexed keywords

CONFIDENTIALITY; ETHICS; INFORMED CONSENT; MEDICAL RECORD; MENTAL HEALTH; PATIENT CARE; PATIENT INFORMATION; PRACTICE GUIDELINE; PRIORITY JOURNAL; PRIVACY; QUALITY CONTROL; REVIEW;

EID: 0033427164     PISSN: 00261270     EISSN: None     Source Type: Journal    
DOI: 10.1055/s-0038-1634403     Document Type: Review

References (22)

1. Noyes P. Child Abuse - A Study of Inquiry Reports 1980-1989; HMSO, London, 1991.
2. Righy MJ. An Electronic Patient Information System in Mental Health - An Integrated Solution for Better Care and Management, in Adlassnig K-P, Grabner G, Bergtsson S, Hansen R (eds). Medical Informatics Europe 1991, Proceedings Vienna, Austria, 1991; Berlin: Springer-Verlag 1991.
3. Rigby MJ, Robins SC. A Networked Patient-Based Integrated Care System as a Basis for the Achievement of Quality in Practice; in Roger-France F, Noothoven van Goor J, Staehr-Johansen K: Case-Based Telematic Systems Towards Equity in Health Care (Studies in Health Technology and Informatics Vol. 14); Amsterdam: IOS Press 1994.
4. Royal College of Psychiatrists: Report of the Mental Health Information Systems Working Group; London: Royal College of Psychiatrists, 1992.
5. Ritchie JH (Chairman) et al. The Report of the Enquiry into the Care and Treatment of Christopher Clunis; London: HMSO 1994.
6. Anderson RJ. Security in Clinical Information Systems: London: British Medical Association 1996.
7. Draper R. Electronic Patient Records: Usability vs Security, with Special Reference to Mental Health Records; in Anderson R (ed.): Personal Medical Information - Security, Engineering, and Ethics: Personal Information Workshop, Cambridge, UK, June 21-23 1996 Proceedings; Berlin: Springer-Verlag 1997.
8. Roberts R, Thomas J, Rigby M, Williams J. Practical Protection of Confidentiality in Acute Care; in Anderson R (ed.): Personal Medical Information - Security, Engineering, and Ethics: Personal Information Workshop, Cambridge, UK, June 21-23 1996 Proceedings; Berlin: Springer-Verlag 1997.
9. Rigby MJ. Child Health - A Time for Better Understanding? Health Trends 1981; 13: 97-9.
10. Rigby MJ, Tiplady P, Osborne D. Principles, Ethics and Law in Preventive Child Health, in Barber B, Cao D, Quin D, Wagner G: Medinfo 89, Proceedings of the Sixth Conference on Medical Informatics, Beijing and Singapore 1989; Amsterdam: North Holland 1989.
11. Cushman R. Exeptionalism Redux. How Different is Health Care Informatatics? In Anderson R (ed.): Personal Medical Information - Security, Engineering, and Ethics: Personal Information Workshop, Cambridge, UK, June 21-23 1996 Proceedings; Springer-Verlag: Berlin 1997.
12. Woodward B. Information Management as Risk Management; in Anderson R (ed.). Personal Medical Information - Security, Engineering, and Ethics: Personal Information Workshop, Cambridge, UK, June 21-23 1996 Proceedings; Springer-Verlag: Berlin 1997.
13. www.cpri.org/resource/docs/access.html
14. Commission on Physical Sciences, Mathematics, and Applications. For the Record: Protecting Electronic Health Information. Washington DC: National Academy Press. 1997
15. www.emory.edu/WHSC/MED/HTN/ ~achung/hippocrates.html
16. Beauchamp TL, Childress JF. Principles of Biomedical Ethics (third edition): New York: Oxford University Press 1989.
17. Rigby MJ, Robins SC. A Networked Patient-Based Integrated Care System as a Basis for the Achievement of Quality in Practice; in Roger-France F, Noothoven van Goor J, Staehr-Johansen K: Case-Based Telematic Systems Towards Equity in Health Care (Studies in Health Technology and Informatics Vol. 14); Amsterdam: IOS Press 1994.
18. Rigby M. Keeping Confidence in Confidentiality: Linking Ethics, Efficacy, and Opportunity in Health Care Computing - A Case Study; in Anderson R (ed.): Personal Medical Information - Security, Engineering, and Ethics; Personal Information Workshop, Cambridge, UK, June 21 - 23 1996, Proceedings; Berlin: Springer-Verlag 1997, 129-50.
19. Draper R, Rigby M (eds.). Towards an Ethical Protocol for Mental Health Informatics - Key Conclusions from an International Working Conference held at Hospitaller House. Stillorgan, County Dublin on 12th June 1997; Dublin: Hospitaller Order of St. John of God, Stillorgan 1997.
20. Innes J. Privacy, Intimacy, and Isolation; Oxford: Oxford University Press 1992.
21. Rigby MJ. Electronic Patient records - Confidentiality, Access, and the 'Need to Know', a discussion paper; Plymouth: Plymouth Community Services NHS Trust 1995.
22. Hospitaller Order of St. John of God. Principles for the Legal and Ethical Governance of Electronic Record Systems Related to Service Users; Dublin: Hospitaller Order of St. John of God, Stillorgan, Co. 1998.