State of the science: Social, psychological, and ethical nursing research in genetics

Biological Research for Nursing

Volumn 1, Issue 2, 1999, Pages 133-146

  Anderson, Gwen ^a  

^a STANFORD UNIVERSITY   (United States)

Author keywords

Ethics; Genetic counseling; Genetic nursing research; Integrative review

Indexed keywords

ADAPTIVE BEHAVIOR; BIOMEDICAL AND BEHAVIORAL RESEARCH; COST OF ILLNESS; FAMILY; GENETIC COUNSELING; GENETIC DISORDER; GENETIC SCREENING; GENETICS; GENETICS AND REPRODUCTION; HUMAN; KNOWLEDGE; MEDICAL ETHICS; MEDICAL GENETICS; MENTAL STRESS; MODEL; NURSING; NURSING DISCIPLINE; NURSING RESEARCH; ORGANIZATION AND MANAGEMENT; PHILOSOPHY; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL; REVIEW; SOCIOLOGY;

BIOMEDICAL AND BEHAVIORAL RESEARCH; GENETICS AND REPRODUCTION;

ADAPTATION, PSYCHOLOGICAL; COST OF ILLNESS; ETHICS, NURSING; FAMILY; GENETIC COUNSELING; GENETIC DISEASES, INBORN; GENETIC SCREENING; GENETICS, MEDICAL; HOLISTIC HEALTH; HUMANS; KNOWLEDGE; MODELS, NURSING; MODELS, PSYCHOLOGICAL; NURSING RESEARCH; SOCIAL SCIENCES; SPECIALTIES, NURSING; STRESS, PSYCHOLOGICAL;

EID: 0033206905     PISSN: 10998004     EISSN: 15524175     Source Type: Journal    
DOI: 10.1177/109980049900100212     Document Type: Article

References (56)

1. Abdellah F. 1991. The human genome initiative: Implications for nurse researchers. J Profess Nurs7(6):332-332.
2. Anderson G. 1998a. Creating moral space in prenatal genetics. Qual Health Res: An Int and an Interdis J8(2):168-187.
3. Anderson G. 1998b. Storytelling: Aholistic foundation for genetic nursing. Holis Nurs Prac12(3):64-76.
4. Anderson G. 1999. Nondirectiveness in prenatal genetic services: Patients read between the lines. Nurs Eth: Int J Health Care Profess6(2):126-136.
5. Baroni M, Anderson Y, Mischler E. 1997. Cystic Fibrosis newborn screening: Impact of early intervention screening results on parenting stress. Ped Nurs23(2):143-151.
6. Beck S, Breckenridge-Potterf S, Wallace S, Ware J, Asay E, Giles R. 1988. The family high-risk program: Targeted cancer prevention. Onc Nurs Forum15(3):301-306.
7. Borgman C, editor. 1990. Scholarly communications and bibliometrics. Thousand Oaks, CA: Sage.
8. Bower C, Blum L, Watson C, Stanley F. 1996. Folate and the prevention of neural tube defects: Evaluation of a health promotion project in Western Australia. Health Promo Int11(3):177-187.
9. Brissette S, Zinman R, Reidy M. 1988. Disclosure of psychological concerns of young adults with advanced cystic fibrosis (CF) by a nurse home visiting program. Int J Nurs Studies25(1):67-72.
10. Cox C, Roughman K. 1984a. Empirical test of the interaction model of client health behavior. Research in Nurs and Health7:275-285.
11. Cox C, Sullivan J, Roghmann K. 1984b. A conceptual explanation of risk-reduction behavior and intervention development. Nurs Res33(3):168-73.
12. Damrosch S, Perry L. 1989. Self-reported adjustment, chronic sorrow, and coping of parents of children with Down Syndrome. Nurs Res38(1):25-30.
13. Davies B, Doran T. 1981. Factors in awoman's decision to undergo genetic amniocentesis. Nurs Res31(1):56-59.
14. Faux S. 1991. Sibling relationships in families with congenitally impaired children. J Ped Nurs6(3):175-184.
15. Feldman K. 1971. Using thework of others: Some observations on reviewing and integrating. Soc Ed44:86-102.
16. Feldstein M, Baker J, Gemma P. 1996. Family stories of cystic fibrosis. Nurs Leader Forum2(1):14-23.
17. Fibison W, Davies B. 1983. Dilemmas in prenatal diagnosis: A case study. Iss in Health Care of Women4:57-67.
18. Folkman S, Lazarus R. 1988. The relationship between coping and emotion: Implications for theory and research. Soc Sci in Med26(3):309-317.
19. Ganong L. 1987. Integrative reviews in nursing research. Res Nurs and Health10(1):1-11.
20. Gibson C. 1986. Howparents cope with a child with cystic fibrosis.Nurs Papers18(3):31-45.
21. Grace J. 1984. Does a mother's knowledge of fetal gender affect attachment? Mater Child Nurs9:42-45.
22. Heaman D. 1995. Perceived stressors and coping strategies of parents who have children with developmental disabilities: A comparison of mothers with fathers. J Ped Nurs10(5):311-319.
23. Heidrich S, Cranley M. 1989. Effects of fetal movement, ultrasound scans and amniocentesis on maternal-fetal attachment. Nurs Res38(2):81-84.
24. Hymovich. 1988. Parent perception inventory. King of Prussia, PA: Author.
25. Janis I, Mann L. 1977. Decision making: A psychological analysis of conflict, choice, and commitment. New York: Free Press.
26. Joachim G, Hassall E. 1992. Familial inflammatory bowel disease in a pediatric population. J Adv Nurs17(11):1310-1315.
27. Kruger S, Shawver M, Jones L. 1980. Reactions of families to the child with cystic fibrosis. Image: J Nurs Sch12(3):67-72.
28. Lazarus R, Launier R. 1978. Stress-related transactions between persons and environment. In L. Pervin & M. Lewis, editors. Perspectives in international psychology. New York: Plenum. p 287-325.
29. Lee J, Phoenix D, Brown W, Jackson B. 1997. Acomparison study of children with sickle cell disease and their non-diseased siblings on hopelessness, depression, and perceived competence. J Adv Nurs25(1):79-86.
30. Loebig M. 1990. Mother's assessments of the impact of children with spina bifida on the family. Mater Child Nurs J19(3):251-264.
31. Matthews A. 1990. Known fetal malformations during pregnancy: A human experience of loss. Birth Defects: Ori Art Ser26(3):168-175.
32. McCubbin H, McCubbin M, Cauble E. 1979. CHIP: Coping Health Inventory for Parents (Form A). St. Paul, Minnesota: Family Social Science, University of Minnesota.
33. McCubbin M. 1984. Nursing assessment of parental coping with cystic fibrosis. West J Nurs Res6(4):407-417.
34. Mobley C, Harless L, Miller K. 1996. Self-perception of preschool children with spina bifida. J Ped Nurs, 11(4), 217-224.
35. Monsen R. 1992. Autonomy, coping, and self-care agency in healthy adolescents and in adolescents with spina bifida. J Ped Nurs7(1):9-13.
36. Price T, Payne R, Oberleitner M. 1996. Familial pancreatic cancer in South Louisiana. Cancer Nurs19(4):275-282.
37. Rodgers B, Ferholt J, Cooper C. 1974. A screening tool to detect psychological adjustment of children with cystic fibrosis. Nurs Res23(5):420-426.
38. Rubin R. 1984. Maternal identity and the maternal experience. New York: Springer.
39. Russell M, Reinbold J, Maltby H. 1996. Transferring to adult health care: Experiences of adolescents with Cystic Fibrosis. J Ped Nurs11(4):262-268.
40. Samuelson J, Foltz J, Foxall M. 1992. Stress and coping in families of children with a myelomenigocele. Arch Psychiat NursVI(5):287-295.
41. Sandelowski M, Harris B, Holditch-Davis D. 1991. Amniocentesis in the context of infertility. Health Care for Women Int12(2):167-178.
42. Skirton H, Glendinning N. 1997. Using research to develop care for patients with Huntington's disease. Brit J Nurs6(2):83-90.
43. Spitzer A. 1992. Illness and treatment appraisal processes of healthy and hemophilic boys. Res Nurs and Health15(1):3-9.
44. Tessaro I, Borstelmann N, Regan K, Rimer B, Winer E. 1997. Genetic testing susceptibility to breast cancer: Findings from women's focus groups. J Women's Health6(3):317-327.
45. Van Cleve L. 1989. Parental coping in response to their child's spina bifida. J Ped Nurs4(3):172-176.
46. Van Cleve L. 1993a. Alpha-fetoprotein testing: Opinions of parents of children with spina bifida. Mater Child Nurs J21(1):20-25.
47. Van Cleve L. 1993b. Nurses' experience caring for anencephalic infants who are potential organ donors. J Ped Nurs8(2):79-84.
48. Van Os D, Clark C, Turner C, Herbst J. 1985. Life stress and cystic fibrosis. West J Nurs Res7(3):301-315.
49. VanPutte A. 1988. Perinatal bereavement crisis: Coping with negative outcomes from prenatal diagnosis. J Perinatal Neonatal Nurs2(2):12-22.
50. Walker M. 1992. Maternal reactions to fetal sex. Health Care for Women Int13(3):293-302.
51. Whyte D. 1992. A family nursing approach to the care of a child with a chronic illness. J Adv Nurs17(3):317-327.
52. Williams J. 1992. School-aged children with Turner's Syndrome. J Ped Nurs7(1):14-19.
53. Williams J. 1995. Parenting a daughter with precocious puberty or Turner Syndrome. J Ped Health Care9(3):109-114.
54. Williams J, Richman L, Yarbrough D. 1991. A comparison of memory and attention in Turner syndrome and learning disabilities. J Ped Psychol16(5):585-593.
55. Williams J, Schutte D. 1997. Benefits and burdens of genetic carrier identification. West J Nurs Res19(1):71-81.
56. Winslow W. 1987. First pregnancy after 35: What is the experience?Maternal and Child Nurs12(2):92-96.