Needs and supports reported by Latino families of young children with developmental disabilities

American Journal on Mental Retardation

Volumn 104, Issue 5, 1999, Pages 437-451

  Bailey Jr , Donald B ^a   Skinner, Debra ^a   Correa, Vivian ^b   Arcia, Emily ^c   Reyes Blanes, María E ^d   Rodriguez, Patricia ^a   Vázquez Montilla, Elia ^e   Skinner, Martie ^a  

^a UNIVERSITY OF NORTH CAROLINA   (United States)

^b UNIVERSITY OF FLORIDA   (United States)

^c UNIVERSITY OF MIAMI   (United States)

^d UNIVERSITY OF CENTRAL FLORIDA   (United States)

^e FLORIDA GULF COAST UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CULTURAL FACTOR; DEVELOPMENTAL DISORDER; FEMALE; HEALTH SERVICE; HISPANIC; HUMAN; INFANT; MALE; MENTAL DEFICIENCY; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; SOCIAL SUPPORT;

ACCULTURATION; CHILD, PRESCHOOL; DEVELOPMENTAL DISABILITIES; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HISPANIC AMERICANS; HUMANS; INFANT; MALE; MENTAL RETARDATION; MEXICAN AMERICANS; SOCIAL SUPPORT;

EID: 0033193847     PISSN: 08958017     EISSN: None     Source Type: Journal    
DOI: 10.1352/0895-8017(1999)104<0437:NASRBL>2.0.CO;2     Document Type: Article

References (43)

1. Arcia, E., Keyes, L., Gallagher, J. J., & Herrick, H. (1993). National portrait of socio-demographic factors associated with underutilization of services: Relevance to early intervention. Journal of Early Intervention, 17, 283-297.
2. Bailey, D. B., & Blasco, P. M. (1990). Parents' perspectives on a written survey of family needs. Journal of Early Intervention, 14, 196-203.
3. Bailey, D. B., Blasco, P. M., & Simeonsson, R. J. (1992). Needs expressed by mothers and fathers of young children with disabilities. American Journal on Mental Retardation, 97, 1-10.
4. Bailey, D. B., & Simeonsson, R. J. (1988). Assessing needs of families with handicapped infants. Journal of Special Education, 22, 117-127.
5. Bailey, D. B., Skinner, D., Rodriguez, P., Gut, D., & Correa, V. (1999). Awareness, use, and satisfaction with services for Latino parents of young children with disabilities. Exceptional Children, 65, 367-381.
6. Barnhart, L. L., Fitzpatrick, V. D., Sidell, N. L., Adams, M. J., Shields, G. S., & Gomez, S. J. (1994). Perception of family need in pediatric oncology. Child and Adolescent Social Work Journal, 11, 137-148.
7. Blacher, J. (1984). Sequential stages of parental adjustment to the birth of a child with handicaps: Fact or artifact? Mental Retardation, 22(2), 55-68.
8. Blacher, J., Shapiro, J., Lopez, S., Diaz, L., & Fusco, J. (1997). Depression in Latina mothers of children with mental retardation: A neglected concern. American Journal on Mental Retardation, 101, 483-496.
9. Bronfenbrenner, U. (1977). Toward an experimental ecology of human development. American Psychologist, 32, 513-531.
10. Chesney, A. P., Chavira, J. A., Hall, R. P., & Gary, H. E. (1982). Barriers to medical care of Mexican-Americans: The role of social class, acculturation, and social isolation. Medical Care, 20, 883-891.
11. Cooper, C. S., & Allred, K. W. (1992). A comparison of mothers' versus fathers' needs for support in caring for a young child with special needs. Infant-Toddler Intervention, 2, 205-221.
12. Crnic, K. A., Friedrich, W. N., & Greenberg, M. T. (1983). Adaptation of families with mentally retarded children: A model of stress, coping, and family ecology. American Journal of Mental Deficiency, 88, 125-138.
13. Crnic, K., Greenberg, M., & Slough, N. (1986). Early stress and social support influences on mothers' and high-risk infants' functioning in late infancy. Infant Mental Health Journal, 7, 19-33.
14. Dilworth-Anderson, P., Burton, L. M., & Turner, W. L. (1993). The importance of values in the study of culturally diverse families. Family Relations, 42, 238-242.
15. Dunst, C. J., Trivette, C. M., & Deal, A. (1994). Supporting and strengthening families, Vol. 1: Methods, strategies, practices. Cambridge, MA: Brookline Books.
16. Dunst, C. J., Trivette, C. M., & Hamby, D. W. (1994). Measuring social support in families with young children with disabilities. Cambridge, MA: Brookline Books.
17. Dunst, C. J., Trivette, C. M., & Jenkins, B. (1988). Family Support Scale. In C. Dunst, C. Trivette, & A. Deal (Eds.), Enabling and empowering families (pp. 155-157). Cambridge, MA: Brookline Books.
18. Gallimore, R., Weisner, T., Bernheimer, L., Guthrie, D., & Nihira, K. (1993). Family responses to young children with developmental delays: Accommodation activity in ecological and cultural context. American Journal on Mental Retardation, 98, 185-206.
19. Garshelis, J. A., & McConnell, S. R. (1993). Comparison of family needs assessed by mothers, individual professionals, and interdisciplinary teams. Journal of Early Intervention, 16, 36-49.
20. Gartner, A., Lipsky, D., & Turnbull, A. (1991). Supporting families with a child with a disability. Baltimore: Paul Brookes.
21. Ginsberg, E. (1992). Access to health care for Hispanics. In A. Furino (Ed.), Health policy and the Hispanic (pp. 22-31). Boulder, CO: Westview Press.
22. Golding, J., & Burnam, A. (1990). Stress and social support as predictors of depressive symptoms in Mexican Americans and non-Hispanic Whites. Journal of Clinical and Social Psychology, 9, 268-286.
23. Graves, C., & Hayes, V. E., (1996). Do nurses and parents of children with chronic conditions agree on parental needs? Journal of Pediatric Nursing, 11, 288-299.
24. Groce, N. E., & Zola, I. R. (1993). Multiculturalism, chronic illness, and disability. Pediatrics, 91, 1048-1055.
25. Harry, B. (1992). Cultural diversity, families, and the special education system: Communication and empowerment. New York: Teachers College Press.
26. Heller, T., Markwardt, R., Rowitz, L., & Farber, B. (1994). Adaptation of Hispanic families to a member with mental retardation. American Journal on Mental Retardation, 99, 289-300.
27. Ingstad, B., & Whyte, S. R. (Eds.). (1995). Disability and culture. Berkeley: University of California Press.
28. Jacobson, D. (1987). The cultural context of social support and support networks. Medical Anthropology Quarterly, 1, 42-67.
29. Kalmuss, D., & Fennelly, K. L. (1990). Barriers to prenatal care among low-income women in New York City. Family Planning Perspectives, 22, 215-218.
30. Keefe, S. E., Padilla, A. M., & Carlos, M. L. (1979). The Mexican-American extended family as an emotional support system. Human Organization, 38, 144-152.
31. Kirkman-Liff, B., & Mondragon, D. (1991). Language of the interview: Relevance for research of southwest Hispanics. American Journal of Public Health, 81, 1399-1404.
32. Leclere, F. B., Jensen, L., & Biddlecom, A. E. (1994). Health care utilization, family context, and adaptation among immigrants to the United States. Journal of Health and Social Behavior, 35, 370-384.
33. Lynch, E. W., & Hanson, M. J. (Eds). (1992). Developing cross-cultural competence: A guide for working with young children and their families. Baltimore: Brookes.
34. McCollum, J. A., & Hemmeter, M. L. (1997). Parent-child interaction intervention when children have disabilities. In M. J. Guralnick (Ed.), The effectiveness of early intervention (pp. 549-578). Baltimore: Brookes.
35. Moore, P., & Hepworth, J. T. (1994). Use of perinatal and infant health services by Mexican-American Medicaid enrollees. Journal of the American Medical Association, 272, 297-304.
36. Pianos, R., Zayas, L. H., & Busch-Rossnagel, N. A. (1997). Mental health factors and teaching behaviors among low-income Hispanic mothers. Families in Society, 78, 4-12.
37. Sexton, D., Burrell, B., & Thompson, B. (1992). Measurement integrity of the Family Needs Survey. Journal of Early Intervention, 16, 343-352.
38. Sexton, D., Snyder, P., Rheams, T., Barron-Sharp, B., & Perez, J. (1991). Considerations in using written surveys to identify family strengths and needs during the IFSP process. Topics in Early Childhood Special Education, 11, 81-91.
39. Shapiro, J., & Simonsen, D. (1994). Educational/support group for Latino families of children with Down syndrome. Mental Retardation, 32, 403-415.
40. Shonkoff, J. P., Hauser-Cram, P., Krauss, M. W., & Upshur, C. C. (1992). Development of infants with disabilities and their families. Monographs of the Society for Research in Child Development, 57(6, Serial No. 230).
41. Sontag, J. C., & Schacht, R. (1994). An ethnic comparison of parent participation and information needs in early intervention. Exceptional Children, 60, 422-433.
42. Sontag, J. C., Schacht, R., Horn, R., & Lenz, D. (1993). Parental concerns for infants and toddlers with special needs in rural vs. urban counties of Arizona. Rural Special Education Quarterly, 12, 36-46.
43. Wells, K. B., Hough, R. L., Golding, J. M., Burnam, M. A., & Karno, M. (1987). Which Mexican-Americans underutilize health services? American Journal of Psychiatry, 144, 918-927.