Self-assessment of well-being in a group of children with epilepsy

Seizure

Volumn 8, Issue 4, 1999, Pages 228-234

  Norrby, Ulla ^a,b   Carlsson, Jane ^a   Beckung, Eva ^a   Nordholm, Lena ^a  

^a UNIVERSITY OF GOTHENBURG   (Sweden)

^b SAHLGRENSKA UNIVERSITY HOSPITAL   (Sweden)

Author keywords

Childhood epilepsy; Questionnaire; Self assessment; Well being

Indexed keywords

ADOLESCENT; ARTICLE; CONTROLLED STUDY; EPILEPSY; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; PSYCHOMETRY; QUESTIONNAIRE; SCHOOL CHILD; SELF EVALUATION; SEX DIFFERENCE; WELLBEING;

EID: 0033150228     PISSN: 10591311     EISSN: None     Source Type: Journal    
DOI: 10.1053/seiz.1999.0286     Document Type: Article

References (43)

1. Brorson L. O., Wranne L. Long-term prognosis in childhood epilepsy: survival and seizure prognosis. Epilepsia. 28:1987;324-330.
2. Cowan L. D., Bodensteiner J. B., Leviton A., Doherty L. Prevalence of the epilepsies in children and adolescents. Epilepsia. 30:1989;94-106.
3. Hauser W. A., Nelson K. B. Epidemiology of epilepsy in children. Cleveland Clinic Journal of Medicine. 56:1989;185-194.
4. Hauser W. A., Annegers J. F., Kurland L. T. Prevalence of epilepsy in Rochester, Minnesota: 1940-1980. Epilepsia. 32:1991;429-445.
5. Sillanpää M. Epilepsy in children: prevalence, disability and handicap. Epilepsia. 33:1992;444-449.
6. Beckung E., Uvebrant P., Hedström A., Rydenhag B. The effects of epilepsy surgery on the sensorimotor function of children. Developmental Medicine and Child Neurology. 36:1994;893-901.
7. Köhler L. Children with and without disabilities in the Nordic countries. A Nordic project. Scandinavian Journal of Social Medicine. 3:1993;146-149.
8. Köhler L., Merrick J. Barns Hälsa och Välfärd. 1991;Studentlitteratur, Lund. p. 385-393.
9. Hoare P. The quality of life in children with chronic epilepsy and their families. Seizure. 2:1993;269-275.
10. Beckung E., Uvebrant P. Motor and sensory impairments in children with intractable epilepsy. Epilepsia. 34:1993;371-373.
11. Beckung E., Uvebrant P. Hidden dysfunctions in childhood epilepsy. Developmental Medicine and Child Neurology. 39:1997;72-78.
12. Hanai T. Quality of life in children with epilepsy. Epilepsia. 37 (Suppl. 3):1996;28-32.
13. Hoare P., Russell M. The quality of life of children with chronic epilepsy and their families: preliminary findings with a new assessment measure. Developmental Medicine and Child Neurology. 37:1995;689-696.
14. Wiklund I., Wirén L., Erling A., Karlberg J., Albertsson-Wikland K. A new selfassessment questionnaire to measure well-being in children, particularly those of short stature. Quality of Life Research. 3:1994;449-455.
15. Erling A., Wiklund I., Wirén L., Albertsson-Wikland K. Measuring health-related well-being in children, particularly in those of short stature. Drotar D., Measuring Health Related Quality of Life in Children and Adolescents: Implications for Research and Practice. 1998;255-271 Lawrence Erlbaum Associates, Publishers, Manurah.
16. Beckung E., Steffenburg U., Uvebrant P. Motor and sensory dysfunctions in children with mental retardation and epilepsy. Seizure. 6:1997;43-50.
17. Bancaud J., Henriksen O., Rubio-Donnadieu F., Seino M., Dreifuss F. E. (chairman), Kiffin Penny Y. Proposal for revised clinical and electrocephalographic classification of epileptic seizures. Commission on Classification and Terminology of the International League Against Epilepsy. Epilepsia. 22:1981;489-501.
18. Roger J. (chairman), Dreifuss F. E., Martinez-Lage M., Munasi C., Porter R. J., Seino M., Wolf P. Proposal for revised classification of epilepsies and epileptic syndromes. Commission on Classification and Terminology of the International League Against Epilepsy. Epilepsia. 30:1989;389-399.
19. W. A. Mehrens, R. L. Ebel, Rand McNally & Co, Chicago, IL, 1969, 132, 167.
20. Lansky L. L., List M. A., Lansky S. B., Cohen M. E., Sinks L. F. Toward the development of a Play Performance Scale for Children (PPSC). Cancer. 56 (Suppl.):1985;1837-1840.
21. Lindström B., Eriksson B. Quality of life for children with disabilities. Sozial-und Praventivmedizin. 38:1993;83-89.
22. Erling A., Wiklund I., Albertsson-Wikland K. Prepubertal children with short stature have a different perception of their well-being and stature than their parents. Quality of Life Research. 3:1994;425-429.
23. Bullinger M., von Mackensen S., Landgraf J. Assessing the quality of life in children. Quality of Life Research. 3:1994;41-45.
24. Lindström B., Köhler L. Youth, disability and quality of life. Pediatrician. 18:1991;121-128.
25. Shaben T. Psychosocial issues in kidney-transplanted children and adolescents: literature review. American Nephrology Nurses Association Journal. 6:1993;663-668.
26. Landgraf J. M., Abetz L. N. Measuring health outcomes in pediatric populations: issues in psychometrics and application. Spilker B., Quality of Life and Pharmacoeconomics in Clinical Trials. 1996;793-802 Lippincott-Raven Publishers, Philadelphia.
27. Payton O. D. Research: Validation of Clinical Practice. 1994;F. A. Davies Co, Philadelphia.
28. Tibblin G., Bengtsson C., Furunes B., Lapidus L. Symptoms by age and sex. The population studies of men and women in Gothenburg, Sweden. Scandinavian Journal of Primary Health Care. 8:1990;9-17.
29. Austin J. K., Huster G. A., Dunn D. W., Risinger M. W. Adolescents with active or inactive epilepsy or asthma: a comparison of quality of life. Epilepsia. 37:1996;1228-1238.
30. Austin J. K., Huberty T. J., Huster G. A., Dunn D. W. Academic achievement in children with epilepsy or asthma. Developmental Medicine and Child Neurology. 40:1998;248-255.
31. Hollandworth J. Evaluating the impact of medical treatment on the quality of life: a 5-year update. Social Science and Medicine. 4:1988;425-434.
32. Kajandi M. Livskvalitet - ett psykiatriskt och interaktionistiskt perspektiv. Socialmedicinsk tidskrift. 69:1992;20-32.
33. Rosenbaum P. L., Saigal S. Measuring health-related quality of life in pediatric populations: conceptual issues. Spilker B., Quality of Life and Pharmacoeconomics in Clinical Trials. 1995;785-791 Lippincott-Raven, Philadelphia.
34. Baker G. A., Jacoby A., Buck D., Stalgis C., Monnet D. Quality of life of people with epilepsy: a European study. Epilepsia. 38:1997;353-362.
35. Sander J. W. A. S. Some aspects of prognosis in the epilepsies: a review. Epilepsia. 34:1993;1007-1016.
36. Jacoby A. Epilepsy and quality of everyday life. Findings from a study of people with well-controlled epilepsy. Social Science and Medicine. 43:1992;657-666.
37. Baker G. A., Smith D. F., Dewey M., Jacoby A., Chadwick D. W. The initial development of a health-related quality of life model as an outcome measure in epilepsy. Epilepsy Research. 16:1993;65-81.
38. Austin J. K., Smith M. S., Risinger M. W., McNelis A. M. Childhood epilepsy and asthma: comparison of quality of life. Epilepsia. 35:1994;608-615.
39. Gloersen G., Lien A. M., Loyning T., Paulsen J. Seizure frequency during physical activity. Epilepsia. 34 (Suppl. 2):1993;55.
40. Schoemaker M. M., Hijlkema M. G. J., Kalveboer A. F. Physiotherapy for clumsy children: an evaluation study. Developmental Medicine and Child Neurology. 36:1994;143-155.
41. Collings J. A. Psychosocial well-being and epilepsy: an empirical study. Epilepsia. 31:1990;418-426.
42. Collings J. A. Epilepsy and well-being. Social Science and Medicine. 31:1990;165-170.
43. Rutishauser C., Sawyer S. M., Bowes G. Quality-of-life assessment in children and adolescents with asthma. European Respiratory Journal. 12:1998;486-494.