Informed consent in the genetic age

Cambridge Quarterly of Healthcare Ethics

Volumn 8, Issue 3, 1999, Pages 393-400

  Goldworth, Amnon ^a  

^a NONE

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; BREAST TUMOR; CULTURAL ANTHROPOLOGY; DOCTOR PATIENT RELATION; FEMALE; GENETIC PRIVACY; GENETIC SCREENING; GENETICS; GENETICS AND REPRODUCTION; HUMAN; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; LEGAL ASPECT; MEDICAL ETHICS; PERSONAL AUTONOMY; PROFESSIONAL PATIENT RELATIONSHIP; RISK ASSESSMENT; STANDARD; TRUST; TUMOR SUPPRESSOR GENE; UNITED STATES;

GENETICS AND REPRODUCTION; PROFESSIONAL PATIENT RELATIONSHIP;

BREAST NEOPLASMS; CULTURAL DIVERSITY; DISCLOSURE; ETHICS, MEDICAL; FEMALE; GENES, BRCA1; GENETIC PRIVACY; GENETIC SCREENING; HUMANS; INFORMED CONSENT; PERSONAL AUTONOMY; PHYSICIAN-PATIENT RELATIONS; RISK ASSESSMENT; TRUST; UNITED STATES;

EID: 0033144130     PISSN: 09631801     EISSN: None     Source Type: Journal    
DOI: 10.1017/S0963180199803181     Document Type: Article

References (18)

1. Applebaum PS, et al. Informed Consent: Legal Theory and Clinical Practice. New York: Oxford University Press, 1987:139.
2. Salgo v. Leland Stanford Jr. University Board of Trustees, 317 P2d 170 (Cal.App., 1957).
3. Canterbury v. Spence, 464 F 26, 787 (US App: DC, 1972).
4. Cobbs v. Grant, 8c3d z29; 502 P.2-1. The subjective standard has also been called the transparency standard. See Brody H. Transparency: informed consent in primary care. Hastings Center Report 1989;19(5):5-9; and King NMP. Transparency in neonatal intensive care. Hastings Center Report 1992;22(2):18-25. Recent opinion has suggested that the physician's role includes the disclosure to patients of his or her motivation, beliefs, and values. See Quill TE, Brody H. Physician recommendations and patient autonomy: finding a balance between physician power and patient choice. Annals of Internal Medicine 1996;125(9):763-9; and Geller G, et al. "Decoding" informed consent: insights from women regarding breast cancer susceptibility testing. Hastings Center Report 1997;27(2):28-33.
5. Cobbs v. Grant, 8c3d z29; 502 P.2-1. The subjective standard has also been called the transparency standard. See Brody H. Transparency: informed consent in primary care. Hastings Center Report 1989;19(5):5-9; and King NMP. Transparency in neonatal intensive care. Hastings Center Report 1992;22(2):18-25. Recent opinion has suggested that the physician's role includes the disclosure to patients of his or her motivation, beliefs, and values. See Quill TE, Brody H. Physician recommendations and patient autonomy: finding a balance between physician power and patient choice. Annals of Internal Medicine 1996;125(9):763-9; and Geller G, et al. "Decoding" informed consent: insights from women regarding breast cancer susceptibility testing. Hastings Center Report 1997;27(2):28-33.
6. Cobbs v. Grant, 8c3d z29; 502 P.2-1. The subjective standard has also been called the transparency standard. See Brody H. Transparency: informed consent in primary care. Hastings Center Report 1989;19(5):5-9; and King NMP. Transparency in neonatal intensive care. Hastings Center Report 1992;22(2):18-25. Recent opinion has suggested that the physician's role includes the disclosure to patients of his or her motivation, beliefs, and values. See Quill TE, Brody H. Physician recommendations and patient autonomy: finding a balance between physician power and patient choice. Annals of Internal Medicine 1996;125(9):763-9; and Geller G, et al. "Decoding" informed consent: insights from women regarding breast cancer susceptibility testing. Hastings Center Report 1997;27(2):28-33.
7. Cobbs v. Grant, 8c3d z29; 502 P.2-1. The subjective standard has also been called the transparency standard. See Brody H. Transparency: informed consent in primary care. Hastings Center Report 1989;19(5):5-9; and King NMP. Transparency in neonatal intensive care. Hastings Center Report 1992;22(2):18-25. Recent opinion has suggested that the physician's role includes the disclosure to patients of his or her motivation, beliefs, and values. See Quill TE, Brody H. Physician recommendations and patient autonomy: finding a balance between physician power and patient choice. Annals of Internal Medicine 1996;125(9):763-9; and Geller G, et al. "Decoding" informed consent: insights from women regarding breast cancer susceptibility testing. Hastings Center Report 1997;27(2):28-33.
8. See note 3, Canterbury, p. 783.
9. Weir RF, Horton JR. DNA banking and informed consent-part I. IRB: A Review of Human Subjects Research 1995;17(4):1-3.
10. Burt RA. The suppressed legacy of Nuremberg. Hastings Center Report 1996;26(5):30-3.
11. Bonnie RJ. Research with cognitively impaired subjects: unfinished business in the regulation of human research. Annals of General Psychiatry 1997;54:105-11.
12. Cassell EJ. The changing concept of the ideal physician. Daedulus 1986;115(2):202.
13. Hubbell FA, et al. Differing beliefs about breast cancer among Latin and Anglo women. Western Journal of Medicine 1986;111: 405-9.
14. Lidz CW, et al. Informed Consent: A Study of Decision Making in Psychiatry. New York: The Guilford Press, 1984:18.
15. Veatch RM. Models of ethical medicine in a revolutionary age. Hastings Center Report 1972;(3)2:5-7.
16. Tarasoff v. Regents of the University of California, California Supreme Court; July 1, 1976. 131 California Reporter 14.
17. A recent study at the National Cancer Institute by Dr. Jeffrey Streuwing and colleagues predicts a 56% chance of developing breast cancer by the age of 70. See Kolata G. Gene study alters estimate of cancer risk. New York Times 1997;May 15:A14.
18. Faden R, Beauchamp TL. A History and Theory of Informed Consent. New York: Oxford University Press, 1986:39-40.