Functional capacity (dyspnoea) and quality of life in patients with chronic obstructive pulmonary disease (COPD): Assessment and methodological aspects;Funktionelle Kapazitat (Dyspnoe) und Lebensqualitat bei Patienten mit chronisch obstruktiven Lungenerkrankungen (COPD): Erhebungsinstrumente und methodische Aspekte

Pneumologie

Volumn 53, Issue 3, 1999, Pages 133-142

  Hutter B O ^a   Wurtemberger G ^b  

^a UNIVERSITY HOSPITAL RWTH AACHEN   (Germany)

^b NONE

Author keywords

[No Author keywords available]

Indexed keywords

CHRONIC OBSTRUCTIVE LUNG DISEASE; DAILY LIFE ACTIVITY; DYSPNEA; EXERCISE TOLERANCE; FAMILY LIFE; FUNCTIONAL ASSESSMENT; HUMAN; LEISURE; LUNG FUNCTION; METHODOLOGY; PHYSICAL CAPACITY; PRIORITY JOURNAL; QUALITY OF LIFE; RECREATION; REVIEW; SOCIAL INTERACTION; HEALTH STATUS; LUNG; LUNG FUNCTION TEST; PATHOPHYSIOLOGY; PSYCHOLOGICAL ASPECT;

DYSPNEA; HEALTH STATUS; HUMANS; LUNG; LUNG DISEASES, OBSTRUCTIVE; QUALITY OF LIFE; RESPIRATORY FUNCTION TESTS;

EID: 0032969156     PISSN: 09348387     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (81)

1. Aaronson, N. K.: Quality of life: what is it? How should it be measured? Oncology 2 (1988) 69-74
2. Alonso, J., J. M. Anto, M. Gonzalez, J. A. Fiz, J. Izquierdo, J. Morera: Measurement of general health status of non-oxygen dependent chronic obstructive pulmonary disease patients. Med. Care 30 (1992) 125-135
3. Anthonisen, N. R., E. C. Wright, J. E. Hodgkin and the IPPB Trial Group: Prognosis in chronic obstructive pulmonary disease: results from multicenter clinical trials. Am. Rev. Respir. Dis. 133 (1986) 14-20
4. Bergner, M., R. A. Bobbitt, W. B. Carter, B. S. Gilson: The Sickness Impact Profile: Development and final revision of a health status measure. Med. Care 19 (1981) 787-805
5. Borak, J., P. Slivinsky, Z. Piasecki, J. Zielinsky: Psychological status of COPD patients on long-term oxygen therapy. Eur. Respir. J. 4 (1991) 59-62
6. Borg, G.: Psychophysical bases of perceived exertion. Med. Sci. Sports Exer. 14 (1982) 377-381
7. Bullinger, M.: Gesundheitsbezogene Lebensqualität und subjektive Gesundheit. Psychother. Psychosom. Med. Psychol. 47 (1997) 76-91
8. Burdon, J. G. W., M. C. F. Pain, A. R. Rubinfeld, A. Nana: Chronic lung disease and the perception and breathlessness. Eur. Respir. J. 7 (1994) 1342-1349
9. Carrieri, V. K., S. Johnson-Bjerklie, S. Jacobs: The sensation of dyspnea. A review. Heart Lung 13 (1984) 436-447
10. Curtis, J. R., R. A. Deyo, C. D. Hudson: Health related quality of life among patients with chronic obstructive pulmonary disease. Thorax 49 (1994) 162-179
11. Dales, R. E., W. O. Spitzer, M. F. Schechter, S. Suissa: The influence of psychological status on respiratory symptom reporting. Am. Rev. Respir. Dis. 139 (1989) 1459-1463
12. Dardes, N., M. G. Chiappini, B. Moscatelli, M. A. Re, L. Pelliciotti, G. Benedetti, S. Vulterini: Quality of life of COPD patients treated by long-term oxygen. Lung 168 (1990) 789-793
13. DeBruin, A. F., L. P. DeWitte, F. Stevens, J. P. M. Diederiks: Sickness Impact Profile: the state of the art of a generic functional status measure. Soc. Sci. Med. 35 (1992) 1003-1014
14. Dudley, D. L., C. J. Martin, T. H. Holms: Dyspnea: psychologic and physiologic observations. J. Psychosom. Res. 11 (1968) 325-339
15. Epler, G. R., F. A. Sabee, E. A. Gaensler: Determination of severe impairment (disability) in interstitial lung disease. Am. Rev. Respir. Dis. 121 (1980) 647-659
16. Feinleib, M., H. M. Rosenberg, J. G. Collins, J. E. Delozier, R. Pokras, F. M. Chevarley: Trends in COPD morbidity and mortality in the United States. Am. Rev. Respir. Dis. 140 (1989) S9-18
17. Feinstein, A. R.: Clinimetric perspectives. J. Chron. Dis. 40 (1987) 635-640
18. Fletcher, C. M.: The clinical diagnosis of pulmonary emphysema - an experimental study. Proc. R. Soc. Med. 45 (1952) 577-584
19. Fletcher, C. M., P. C. Elmes, C. H. Wood: The significance of respiratory symptoms and the diagnosis of chronic bronchitis in a working population. Br. Med. J. 1 (1959) 257-266
20. Fletcher, A. E., B. M. Hunt, C. J. Bulpitt: Evaluation of quality of life in clinical trials of cardiovascular disease. J. Chron. Dis. 40 (1987) 557-566
21. Gift, A. G., S. M. Plant, A. Jacox: Psychologic and physiologic factors related to dyspnea in subjects with chronic obstructive pulmonary disease. Heart Lung 15 (1986) 595-601
22. Guyatt, G. H., P. J. Thomson, L. B. Berman, M. J. Sullivan, M. Townsend, N. L. Jones, S. O. Pugsley: How should we measure function in patients with chronic heart and lung disease? J. Chron. Dis. 38 (1985) 517-524
23. Guyatt, G. H., M. Townsend, L. B. Berman, S. O. Pugsley: Quality of life in patients with chronic airflow limitation. Brit. J. Chest Dis. 81 (1987) 45-54
24. Guyatt, G. H., L. B. Berman, M. Townsend, S. O. Pugsley, L. W. Chambers: A new measure of quality of life for clinical trials in chronic lung disease. Thorax 42 (1987) 773-778
25. Guyatt, G. H., M. Townsend, J. Keller, J. Singer, S. Nogradi: Measuring functional status in chronic lung disease: conclusions from a randomized control trial. Respir. Med. 85 (1991) 17-21
26. Guyatt, G. H., J. Keller, J. Singer, S. Halcrow, M. Newhouse: Controlled trial of respiratory muscle training in chronic airflow limitation. Thorax 47 (1992) 598-602
27. Hoang Thi, T. H., F. Guillemin, A. Cornette, J. M. Polu, S. Briancon: Health-related quality of life in long term oxygen-treated chronic obstructive pulmonary disease patients. Lung 175 (1997) 63-71
28. Hoffman, L. A., S. W. Wesmiller, F. C. Sciurba: Nasal cannula and transtracheal oxygen delivery. A comparison of patient response after 6 months of each technique. Am. Rev. Respir. Dis. 145 (1992) 827-831
29. Hopewell, P., J. Turner: Comparison of respiratory symptoms elicited by self-administered questionnaire to physiologic, functional and psycho-social variables. Am. Rev. Respir. Dis. 123 (1981) S93
30. Hütter, B. O.: Medizinpsychologische Aspekte von chronisch-obstruktiven Lungenerkrankungen. Zeitschr. f. Med. Psychol. 4 (1995) 154-175
31. Hütter, B. O., G. Würtemberg: Lebensqualität bei Patienten mit chronisch-obstruktiven Lungenerkrankungen: Psychometrische Gütekriterien der deutschen Version des Sickness Impact Profiles (SIP) und erste Ergebnisse der Anwendung. Pneumologie 51 (1997) 108-114
32. Hütter, B. O., G. Würtemberger: Lebensqualität von Patienten mit chronisch-obstruktiven Lungenerkrankungen (COPD) unter Flüssigsauerstofftherapie: Welche Bedeutung haben psychosoziale Variablen wie Aspekte der Compliance und der emotionalen Anpassung? Zeitschr. f. Med. Psychol. 6 (1997) 15-22
33. Hunt, S. M., S. P. McKenna, J. McEwan: A quantitative approach to perceived health status: a validation study. J. Epidemiol. Commun. Health 34 (1980) 281-286
34. Janson-Bjerklie, S., V. K. Carrieri, M. Hudes: The sensations of pulmonary dyspnea. Nurs. Res. 35 (1986) 154-159
35. Jones, P. W., C. M. Baveystock, P. Littlejohns: Relationships between general health measured with the Sickness Impact Profile and respiratory symptoms, physiological measures and respiratory symptoms, physiological measures and mood in patients with chronic airflow limitation. Am. Rev. Respir. Dis. 140 (1989) 1538-1543
36. Jones, P. W., F. H. Quirk, C. M. Baveystock: The St. Georges Respiratory Questionnaire. Respir. Med. 85 (1991) 25-31
37. Jones, P. W., F. H. Quirk, C. M. Baveystock, P. Littlejohns: A self-complete measure for chronic airflow limitation - the St. Georges Respiratory Questionnaire. Am. Rev. Respir. Dis. 145 (1992) 1321-1327
38. Jones, P. W. & The Nedocromil Sodium Quality of Life Study Group. Eur. Respir. J. 7 (1994) 55-62
39. Kaplan, R. M., J. W. Bush: Health related quality of life measurement for evaluation research and policy analysis. Health Psychol. 1 (1982) 61-80
40. Kaplan, R. M., C. J. Atkins, O. Timms: Validity of a quality of well-being scale as an outcome measure in chronic obstructive pulmonary disease. J. Chron. Dis. 37 (1984) 85-95
41. Keller, C.: Predicting the performance of daily activities of patients with chronic lung disease. Percept. Mot. Skills 63 (1986) 647-651
42. Kilian, K. J., R. L. Jones: The use of exercise testing and other methods in the investigation of dyspnea. Clin. Chest Med. 5 (1984) 99-108
43. Kornblith, A. B., J. C. Holland: Handbook of measures for psychological, social, and physical function in cancer. Vol.I. Quality of life. The Memorial Sloan-Kettering Cancer Center, New York 1994
44. Larson, J. L., M. J. Kim, J. T. Sharp, D. A. Larson: Inspiratory muscle training with pressure threshold breathing device in patients with chronic obstructive pulmonary disease. Am. Rev. Respir. Dis. 138 (1988) 689-696
45. MacKenzie, C. R., M. E. Charlson, D. DiGioia, K. Kelley: Can the Sickness Impact Profile measure change? An example of scale assessment. J. Chron. Dis. 39 (1986) 429-438
46. MacKenzie, C. R., M. E. Charlson, D. DiGioia, K. Kelley: A patient specific measure of change in maximal function. Arch. Intern. Med. 146 (1986) 1325-1329
47. Mahler, D. A., D. H. Weinberg, C. K. Wells, A. R. Feinstein: The measurement of dyspnea: contents, interobserver agreement, and physiologic correlations of two new clinical indexes. Chest 85 (1984) 751-758
48. Mahler, D. A., R. A. Rosiello, A. Harver, Z. T. Lentine, J. F. McGovern, J. A. Daubenspeck: Comparison of clinical dyspnea ratings and psychophysical measurements of respiratory sensation in obstructive airway disease. Am. Rev. Respir. Dis. 135 (1987) 1229-1233
49. Mahler, D. A., C. K. Wells: Evaluation of clinical methods for rating dyspnea. Chest 93 (1988) 580-586
50. Mahler, D. A., A. Harver, R. A. Rosiello, J. A. Daubenspeck: Measurement of respiratory sensation in interstitial lung disease: evaluation of clinical dyspnea ratings and magnitude scaling. Chest 96 (1989) 767-771
51. Mahler, D. A., A. Harver: The symptom of dyspnea. In: D. A. Mahler (Ed.): Dyspnea. Futura Publishing Company, Mount Kisco (1990) 1-53
52. Mahler, D. A., K. Faryniarz, D. Tomlinson, G. L. Colice, A. G. Robins, E. M. Olmstead, G. T. O'Connor: Impact of dyspnea and physiologic function on general health status in patients with chronic obstructive pulmonary disease. Chest 102 (1992) 395-401
53. Mahler, D. A., A. Harver: Factor analysis of dyspnea ratings, respiratory muscle strength and lung function in patients with chronic obstructive pulmonary disease. Am. Rev. Respir. Dis. 145 (1992) 467-470
54. Medical Research Council Working Party: Long-term domiciliary oxygen therapy in chronic hypoxemic cor pulmonale communicating bronchitis and emphysema. Lancet 1 (1981) 681
55. McGavin, C. R., M. Artvinli, H. Naoe, G. J. McHardy: Dyspnea, disability, and distance walked: comparison of estimates of exercise performance in respiratory disease. Brit. Med. J. 2 (1978) 241-243
56. McSweeny, A. J., I. Grant, R. K. Heaton, K. M. Adams, R. M. Timms: Life quality of patients with chronic obstructive pulmonary disease. Arch. Intern. Med. 142 (1982) 473-478
57. Mittman, C., T. Barbela, D. McCaw, E. Pedersen: The Respiratory Disease Questionnaire: use of a self-administered version. Arch. Environment. Health 34 (1979) 151-157
58. Muir, L. F., F. Laumonier: Living conditions of serious chronic respiratory insufficiency patients treated at home on oxygen therapy or assisted ventilation. Lung 168 (1990) 489-494
59. Muza, S. R., M. R. Silvermann, G. C. Gilmore, H. K. Hellerstein, S. G. Kelsen: Comparison of scales used to quantitate the sense of effort to breathe in patients with chronic obstructive pulmonary disease. Am. Rev. Respir. Dis. 141 (1990) 909-913
60. Najman, J. M., S. Levine: Evaluating the impact of medical care and technologies on the quality of life: a review and a critique. Soc. Sci. Med. 15 (1981) 107-115
61. Petty, T. L., G. G. Weinmann: Building a national strategy for the prevention and management of and research in chronic obstructive pulmonary disease. National Heart, Lung, and Blood Institute Workshop Summary. JAMA 277 (1997) 246-253
62. Prigatano, G. P., E. L. Wright, D. Levin: Quality of life and its predictors in patients with mild hypoxemia and chronic obstructive pulmonary disease. Arch. Intern. Med. 144 (1984) 1613-1619
63. Redelmeier, D. A., R. S. Goldstein, S. T. Min, R. H. Hyland: Spirometry and dyspnea in patients with COPD. Chest 109 (1996) 1163-1168
64. Ries, A. L., R. M. Kaplan, E. Blumberg: Use of factor analysis to consolidate multiple outcome measures in chronic obstructive pulmonary disease. J. Clin. Epidemiol. 44 (1991) 497-503
65. Rose, G. A., H. Blackburn, R. F. Gillum: Cardiovascular survey methods. World Health Organisation, WHO Monograph Series, No 65, Geneva 1982
66. Sandhu, H. S.: Psychosocial issues in chronic obstructive pulmonary disease. Clin. Chest Med. 7 (1986) 629-642
67. Siafakas, N. M., P. Vermeire, N. B. Pride, P. Paoletti, J. Gibson, P. Howard, J. C. Yernault, M. Decramer, T. Higenbottam, D. S. Postma, J. Ress, on behalf of the Task Force: Optimal assessment and management of chronic obstructive pulmonary disease (COPD). Eur. Respir. J. 8 (1995) 1398-1420
68. Silvermann, M., J. Barry, H. Hellerstein, J. Janos, S. Kelson: Variability of the perceived sense of effort in breathing during exercise in patients with chronic obstructive pulmonary disease. Am. Rev. Respir. Dis. 137 (1988) 206-209
69. Stewart, A. L., S. Greenfield, R. D. Hays, K. Wells, W. H. Rogers, S. D. Berry, E. A. McGlynn, J. E. Ware: Functional status and well-being of patients with chronic conditions: results from the Medical Outcomes Study. JAMA 262 (1989) 907-913
70. Stewart, A. L., J. E. Ware: Measuring functioning and well-being. The Medical Outcomes Study approach. Duke University Press, Durham 1992
71. Tandon, P. K., H. Stander, R. P. Schwarz: Analysis of quality of life data from a randomized, placebo-controlled heart-failure trial. J. Clin. Epidemiol. 42 (1989) 955-962
72. Thier, S. O.: Forces motivating the use of health status assessment-measures in clinical settings and related clinical research. Med. Care 30 (1992) 15-22
73. Tobin, M. J.: Dyspnea. Pathophysiologic basis, clinical presentation, and management. Arch. Intern. Med. 150 (1990) 1604-1613
74. Tsukino, M., K. Nishimura, A. Ikeda, H. Koyama, M. Mishima, T. Izumi: Physiologic factors that determine the health-related quality of life in patients with COPD. Chest 110 (1996) 896-903
75. Ware, J. E.: Standards for validating of health measures: Definition and content. J. Chron. Dis. 40 (1987) 473-480
76. Ware, J. E., C. D. Sherbourne: A 36-item short from health survey (SF-36): I. Conceptual framework and item selection. Med. Care 30 (1992) 473-483
77. Wijkstra, P. J., R. Van Altena, J. Kraan, V. Otten, D. S. Postma, G. H. Koeter: Quality of life in patients with chronic obstructive pulmonary disease improves after rehabilitation at home. Eur. Respir. J. 7 (1994) 269-273
78. Wijkstra, P.J., E. M. Tenvergert, R. Van Altena: Reliability and validity of the Chronic Respiratory Questionnaire (CRQ). Thorax 49 (1994) 465-467
79. Wijkstra, P. J., E. M. Tenvergert, Th. W. Vandermark, D. S. Postma, R. Van Altena, J. Kraan, G. H. Koeter: Relation of lung function, maximal inspiratory pressure, dyspnoea and quality of life with exercise capacity in patients with chronic obstructive pulmonary disease. Thorax 49 (1994) 468-472
80. Williams, S. J., M. R. Bury: Impairment, disability and handicap in chronic respiratory illness. Soc. Sci. Med. 29 (1989) 609-616
81. Williams, A.: Economics of coronary artery bypass grafting. Br. Med. J. 291 (1985) 326-329