What is and what should be: Maternal perceptions of their roles in the NICU

Infant-Toddler Intervention

Volumn 9, Issue 3, 1999, Pages 281-298

  Bruns, Deborah A ^a   McCollum, Jeanette A ^a   Cohen Addad, Nicole ^b  

^a UNIVERSITY OF ILLINOIS AT URBANA CHAMPAIGN   (United States)

^b NEW YORK MEDICAL COLLEGE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CAREGIVER; DECISION MAKING; HUMAN; MATERNAL CARE; MEDICAL PERSONNEL; MOTHER CHILD RELATION; NEWBORN INTENSIVE CARE; PREMATURITY;

EID: 0032884893     PISSN: 10535586     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (34)

1. Able-Boone, H., Dokecki, P. R., & Smith, M. S. (1989). Parent and health care provider communication and decision making in the intensive care nursery. Children's Health Care, 18, 133-141.
2. Bogdan, R., Brown, M. A., & Foster, S. B. (1992). Be honest but not cruel: Staff/parent communication on a neonatal unit. In P. M. Ferguson, D. L. Ferguson, & S. J. Taylor (Eds.), Interpreting disability: A qualitative reader (pp. 19-37). New York: Teachers College Press.
3. Brown, W., Pearl, L. F., & Carrasco, N. (1991). Evolving models of family-centered services in neonatal intensive care. Children's Health Care, 20, 50-55.
4. Bruder, M. B., & Walker, B. (1990). Discharge planning: Hospital to home transitions for infants. Topics in Early Childhood Special Education, 9(4), 26-42.
5. Denzin, N. K. (1989). The research act: A theoretical introduction to sociological methods (3rd ed.). Englewood Cliffs, NJ: Prentice-Hall.
6. DePompei, P. M., Whitford, K. M., & Beam, P. H. (1994). One institution's efforts to implement family-centered care. Pediatric Nursing, 20(2), 119-121.
7. Dobbins, N., Bohlig, C., & Sutphen, J. (1994). Partners in growth: Implementing family-centered changes in the neonatal intensive care unit. Children's Health Care, 23, 115-126.
8. Dunst, C. J., Trivette, C. M., Davis, M., & Cornwell, J. (1988). Enabling and empowering families of children with health impairments. Children's Health Care, 17, 71-81.
9. Dunst, C., Trivette, C., & Deal, A. (1988). Enabling and empowering families: Principles and guidelines for practice. Cambridge, MA: Brookline Books.
10. Flynn, L. L., & McCollum, J. (1989). Support systems: Strategies and implications for hospitalized newborns and their families. Journal of Early Intervention, 13, 173-182.
11. Flynn, L. L., & McCollum, J. (1993). Support for rural families of hospitalized infants: The parents' perspective. Children's Health Care, 22, 19-37.
12. Glesne, C., & Peshkin, A. (1992). Becoming qualitative researchers: An introduction. White Plains, NY: Longman.
13. Goldson, E. (1993). The medically fragile infant. In M. Krajicek & R. Tompkins (Eds.), The medically fragile infant (pp. 1-11). Austin, TX: Pro-Ed.
14. Hains, A. H., Rosenkoetter, S. E., & Fowler, S. A. (1991). Transition planning with families in early intervention programs. Infants and Young Children, 3(4), 38-47.
15. Hanline, M. F., & Deppe, J. (1990). Discharging the premature infant: Family issues and implications for intervention. Topics in Early Childhood Special Education, 9(4), 15-25.
16. Harrison, H. (1983). The premature baby book. New York: St. Martin's Press.
17. Huberman, A. M., & Miles, M. B. (1994). Data management and analysis methods. In N. K. Denzin & Y. S. Guba (Eds.), Handbook of qualitative research (pp. 428-444). Thousand Oaks, CA: Sage.
18. Hughes, M., & McCollum, J. (1994). Neonatal intensive care: Mothers' and fathers' perceptions of what is stressful. Journal of Early Intervention, 18, 258-268.
19. Johnson, B. H. (1990). The changing role of families in health care. Children's Health Care, 19, 234-241.
20. Johnson, B. H. (1995). Newborn intensive care units pioneer family-centered change in hospitals across the country. Zero to Three, 15(6), 11-17.
21. Kohrman, A. F. (1990). Bringing home a medically complex baby: Psychological issues for families, caretakers, and professionals. Zero to Three, 11(3), 36-41.
22. Leff, P. T., & Walizer, E. H. (1992). Building the healing partnership: Parents, professionals, and children with chronic illnesses and disabilities. Cambridge, MA: Brookline Books.
23. Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Beverly Hills, CA: Brookline.
24. McNab, T. C., & Blackman, J. A. (1998). Medical complications of the critically ill newborn: A review for early intervention professionals. Topics in Early Childhood Special Education, 18(4), 197-205.
25. Meck, N. E., Fowler, S. A., Claflin, K., & Rasmussen, L. B. (1995). Mothers' perceptions of their NICU experience 1-and 7-month post-discharge. Journal of Early Intervention, 19, 288-301.
26. Odom, S. L., & Chandler, L. (1990). Transition to parenthood for parents of technology-assisted infants. Topics in Early Childhood Special Education, 9(4), 43-54.
27. Paulson, P. R., & Calvi, A. M. (1993). The transition from hospital to home. In M. Krajicek & R. Tompkins (Eds.), The medically fragile infant (pp. 49-60). Austin, TX: Pro-Ed.
28. Peshkin, A. (1988). Virtuous subjectivity: In the participant-observers I's. In D. N. Berg & K. K. Smith (Eds.), The self in social inquiry (pp. 267-281). Newbury Park, CA: Sage.
29. Sheikh, L., O'Brien, M., & McCluskey-Fawcett, K. (1993). Parent preparation for the NICU-to-home transition: Staff and parent perceptions. Children's Health Care, 22, 227-239.
30. Shelton, T. L. & Stepanek, J. S. (1994). Family-centered care for children needing specialized health and developmental services. Bethesda, MD: Association for the Care of Children's Health.
31. Stake, R. (1995). The art of case study research. Thousand Oaks, CA: Sage.
32. Thurman, S. K. (1994). Family-centered care in the neonatal intensive care unit. In S. L. Hostler (Ed.), Family-centered care: An approach to implementation (pp. 213-249). Kluge Children's Rehabilitation Center, VA: Author.
33. Westby, C. E. (1990). Ethnographic interviewing: Asking the right questions to the right people in the right ways. Journal of Childhood Communication Disorders, 13, 101-111.
34. Wyly, M. V., Allen, J., Pfalzer, S. M., & Wilson, J. R. (1996). Providing a seamless system from hospital to home: The NICU Training Project. Infants and Young Children, 8(3), 77-84.