Reproductive choices of haemophilia carriers

British Journal of Haematology

Volumn 106, Issue 2, 1999, Pages 421-426

  Tedgard U ^a,b   Ljung, R ^a   McNeil, T F ^a  

^a LUND UNIVERSITY   (Sweden)

^b LUND UNIVERSITY HOSPITAL   (Sweden)

Author keywords

Birth rate; Haemophilia; Prenatal diagnosis; Reproduction; Therapeutic abortion

Indexed keywords

BLOOD CLOTTING FACTOR;

ADOPTION; ADULT; ARTICLE; CONTROLLED STUDY; FAMILY HISTORY; FEMALE; GENETIC COUNSELING; GENETIC RISK; HEMOPHILIA; HETEROZYGOTE; HUMAN; MAJOR CLINICAL STUDY; PLASMA TRANSFUSION; PRENATAL DIAGNOSIS; PRIORITY JOURNAL; REPRODUCTION; SWEDEN; THERAPEUTIC ABORTION;

ABORTION, INDUCED; ADULT; AGE DISTRIBUTION; ATTITUDE TO HEALTH; CHOICE BEHAVIOR; FEMALE; GENETIC SCREENING; HEMOPHILIA A; HETEROZYGOTE; HUMANS; MIDDLE AGED; PEDIGREE; PREGNANCY; PREGNANCY COMPLICATIONS, HEMATOLOGIC; PRENATAL DIAGNOSIS;

EID: 0032870816     PISSN: 00071048     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2141.1999.01566.x     Document Type: Article

References (26)

1. Akmeteli, M.R., Aledort, L.M., Alexaniants, S., Bulanov, A.G., Elston, R.C., Gunter, E.K., Goussev, A., Graham, J.B., Hermans, J., Larrieu, M.J., Lothe, F., McLaren, A.D., Mannuci, P.M., Prentice, C.E.M. & Veltkamp, J.J. (1977) Methods for the detection of haemophilia carriers: a memorandum. Bulletin of the World Health Organization, 55, 675-702.
2. Antonovsky, A. (1993) The structure and properties of the sense of coherence scale. Social Science Medicine, 36, 725-733.
3. Beeson, D. & Golbus, M.S. (1985) Decision making: whether or not to have prenatal diagnosis and abortion for X-linked conditions. American Journal of Medical Genetics, 20, 107-114.
4. Brettler, D.B. (1996) Inhibitors in congenital haemophilia. Baillieres Clinical Haematology, 9, 319-329.
5. Decruyenaere, M., Evers Kiebooms, G., Denayer, L. & Van den Berghe, H. (1992) Cystic fibrosis: community knowledge and attitudes towards carrier screening and prenatal diagnosis. Clinical Genetics, 41, 189-196.
6. Evans, D.I. & Shaw, A. (1979) Attitudes of haemophilia carrier to fetoscopy and amniocentesis. (Letter). Lancet, ii, 1371.
7. Francis, R.B., Jr & Kasper, C.K. (1983) Reproduction in hemophilia. Journal of the American Medical Association, 250, 3192-3195.
8. Hansson, K. & Cederblad, M. (1995) Känsla av sammanhang. Studier från ett salutogent perspektiv. Lund: Institutionen för barn-och ungdomspsykiatri, Lunds universitet. Forskning om Barn och familj, 6, 1-58.
9. Ikkala, E., Helske, T., Myllyla, G., Nevanlinna, H.R., Pitkanen, P. & Rasi, V. (1982) Changes in the life expectancy of patients with severe haemophilia A in Finland in 1930 79. British Journal of Haematology, 52, 7-12.
10. Kadir, R.A., Economides, D.L., Braithwaite, J., Goldman, E. & Lee, C.A. (1997) The obstetric experience of carriers of haemophilia. British Journal of Obstetrics and Gynaecology, 104, 803-810.
11. Kessler, S. (1989) Psychological aspects of genetic counseling. VI. A critical review of the literature dealing with education and reproduction. American Journal of Medical Genetics, 34, 340-353.
12. Kraus, E.M. & Brettler, D.B. (1988) Assessment of reproductive risks and intentions by mothers of children with hemophilia. American Journal of Medical Genetics, 31, 259-267.
13. Larsson, S.A. (1985) Life expectancy of Swedish haemophiliacs, 1831-1980. British Journal of Haematology, 59, 593-602.
14. Lee, C.A. (1996) Transfusion-transmitted disease. Baillieres Clinical Haematology, 9, 369-394.
15. Ljung, R., Kling, S. & Tedgård, U. (1995) The impact of prenatal diagnosis on the incidence of haemophilia in Sweden. Haemophilia, 1, 190-193.
16. Ljung, R., Petrini, P. & Nilsson, I. M. (1990) Diagnostic symptoms of severe and moderate haemophilia A and B: a survey of 140 cases. Acta Paediatrica Scandinavica, 79, 196-200.
17. Lubs, M.L. (1979) Does genetic counseling influence risk attitudes and decision making? Birth Defects, Original Articles Series, 15, 355-367.
18. Markova, I., Forbes, C.D. & Inwood, M. (1984) The consumers' views of genetic counseling of hemophilia. American Journal of Medical Genetics, 17, 741-752.
19. Miller, C.H., Hilgartner, M.W. & Aledort, L.M. (1987) Reproductive choices in hemophilic men and carriers. American Journal of Medical Genetics, 26, 591-598.
20. Nilsson, I. M., Berntorp, E., Löfqvist, T. & Pettersson, H. (1992) Twenty-five years' experience of prophylactic treatment in severe haemophilia A and B. Journal of Internal Medicine, 232, 25-32.
21. Rosendaal, F.R., Varckamp, I., Smit, C., Brocker-Vriends, A.H., van Dijck, H., Vandenbroucke, J.P., Hermans, J., Suurmeijer, T.P. & Briet, E. (1989) Mortality and causes of death in Dutch haemophiliacs, 1973-86. British Journal of Haematology, 71, 71-76.
22. Tedgård, U., Ljung, R. & McNeil, T.F. (1999) How do carriers of hemophilia and their spouses experience prenatal diagnosis by chorionic villus sampling? Clinical Genetics, 55, 26-33.
23. Tedgård, U., Ljung, R., McNeil, T., Tedgård, E. & Schwartz, M. (1989) How do carriers of hemophilia experience prenatal diagnosis (PND)? Carriers' immediate and later reactions to amniocentesis and fetal blood sampling. Acta Paediatrica Scandinavica, 78, 692-700.
24. Varekamp, I., Suurmeijer, T., Brocker-Vriends, A. & Rosendaal, F.R. (1992) Hemophilia and the use of genetic counseling and carrier testing within family networks. Birth Defects, Original Article Series, 28, 139-148.
25. Varekamp, I., Suurmeijer, T.P., Brocker-Vriends, A.H., van Dijck, H., Smit, C., Rosendaal, F.R. & Briet, E. (1990) Carrier testing and prenatal diagnosis for hemophilia: experiences and attitudes of 549 potential and obligate carriers. American Journal of Medical Genetics, 37, 147-154.
26. Varekamp, I., Suurmeijer, T.P., Rosendaal, F.R. & Brocker-Vriends, A. H. (1993) The use of preventive health care services: carrier testing for the genetic disorder haemophilia. Social Science Medicine, 37, 639-648.