The experience of parents in the diagnosis of autism. A pilot study

Autism

Volumn 3, Issue 3, 1999, Pages 273-285

  Midence, Kenny ^a   O'Neill, Meena ^a  

^a BANGOR UNIVERSITY   (United Kingdom)

Author keywords

Autism; Diagnosis; Grounded theory; Parents

Indexed keywords

ADAPTATION; ARTICLE; ATTITUDE; AUTISM; BEHAVIOR DISORDER; CASE REPORT; CHILD PARENT RELATION; CONFUSION; EXPECTATION; EXPERIENCE; FAMILY LIFE; FEMALE; HUMAN; INTERVIEW; MALE; PILOT STUDY; PRIORITY JOURNAL; SCHOOL CHILD; UNITED KINGDOM;

EID: 0032852285     PISSN: 13623613     EISSN: None     Source Type: Journal    
DOI: 10.1177/1362361399003003005     Document Type: Article

References (24)

1. ANDERSON, R. & BURY, M. (eds) (1988) Living with Chronic Illness: The Experience of Patients and Their Families. London: Unwin Hyman.
2. BIRNBAUM, A. & COHEN, H.J. (1993) 'On the Importance of Helping Families: Policy Implications from a National Study', Mental Retardation 31: 67-74.
3. BRISTOL, M. (1984) 'Family Resources and Successful Adaptation to Autistic Children', in E. SCHOPLER & G.B. MESIBOV (eds) The Effects of Autism on the Family. New York: Plenum.
4. CHARMAZ, K. (1990) '"Discovering" Chronic Illness: Using Grounded Theory', Social Science and Medicine 11: 1161-72.
5. CHARMAZ, K. (1995) 'Grounded Theory', in J.A. SMITH, R. HARRÉ, & L. VAN LANGENHOVE (eds) Rethinking Methods in Psychology. London: Sage.
6. COBB, P.S. (1987) 'Creating Respite-Care Programmes', Exceptional Parent 15(5): 31-3.
7. DUMAS, J.E., WOLF, L.C., FISMAN, S.N. & CULLIGAN, A. (1991) 'Parenting Stress, Child Behaviour Problems, and Dysphoria in Parents of Children with Autism, Down Syndrome, Behaviour Disorders, and Normal Development', Exceptionality 2: 97-110.
8. GLASER, B. & STRAUSS, A. (1967) The Discovery of Grounded Theory. Chicago, IL: Aldine.
9. GRAY, D.E. (1993) 'Negotiating Autism: Relations between Parents and Treatment Staff', Social Science and Medicine 36: 1037-46.
10. GRAY, D.E. (1994) 'Coping with Autism: Stresses and Strategies', Sociology of Health and Illness 16: 275-300.
11. HENWOOD, K. & PIDGEON, N. (1995) 'Qualitative Research and Psychological Theorising', The Psychologist 3: 115-18.
12. HOLMES, N. & CARR, J. (1991) 'The Pattern of Care in Families of Adults with a Mental Handicap: A Comparison between Families of Autistic Adults and Down Syndrome Adults', Journal of Autism and Developmental Disorders 21 (2): 159-76.
13. HOWLIN, P. & MOORE, A. (1997) 'Diagnosis in Autism: A Survey of 1200 Patients in the UK', Autism 1: 135-62.
14. MARCUS, L.M., KUNCE, L.J. & SCHOPLER, E. (1997) 'Working with Families', in D.J. COHEN & F.R. VOLKMAR (eds) Handbook of Autism and Pervasive Developmental Disorders. New York: Wiley.
15. MICHIE, S., MCDONALD, V. & MARTEAU, T. (1996) 'Understanding Responses to Predictive Genetic Testing: A Grounded Theory Approach', Psychology and Health 11: 455-70.
16. NORTON, P. & DREW, C. (1994) 'Autism and Potential Family Stressors', The American Journal of Family Therapy 22: 67-76.
17. PIPER, E. & HOWLIN, P. (1992) 'Assessing and Diagnosing Developmental Disorders That Are Not Evident at Birth: Parental Evaluations of Intake Procedures', Child: Care, Health and Development 18: 35-55.
18. QUINE, L. & RUTTER, D.R. (1994) 'First Diagnosis of Severe Mental and Physical Disability: A Study of Doctor-Parent Communication', Journal of Child Psychology and Psychiatry 35: 1273-87.
19. SIEGEL, B. (1997) 'Coping with the Diagnosis of Autism', in D.J. COHEN & F.R. VOLKMAR (eds) Handbook of Autism and Pervasive Developmental Disorders. New York: Wiley.
20. SLOPER, P. & TURNER, S. (1993) 'Determinants of Parental Satisfaction with Disclosure of Disability', Developmental Medicine and Child Neurology 35: 816-25.
21. STRAUSS, A. (1993) Qualitative Analysis for Social Scientists. New York: Cambridge University Press.
22. STRAUSS, A. & CORBIN, J. (1990) Basics of Qualitative Research: Grounded Theory Procedures and Techniques. Newbury Park, CA: Sage.
23. SULLIVAN, R.C. (1997) 'Diagnosis Autism: You Can Handle It!', in D.J. COHEN & F.R. VOLKMAR (eds) Handbook of Autism and Pervasive Developmental Disorder. New York: Wiley.
24. TURPIN, G., BARLEY, V., BEAIL, N., SCAIFE, J., SLADE, P., SMITH, J.A. & WALSH, S. (1997) 'Standards for Research Projects and Theses Involving Qualitative Methods: Suggested Guidelines for Trainees and Courses', Clinical Psychology Forum 108: 3-7.